I am in the hospital with fluid on lungs for a couple days. Was deathly sick today and went to ER in Redmond around 3pm but they decided my Dr.'s are in Bend so they transfered me to Bend at 8:30 pm.
#RaiseyourvoiceforSCLERODERMA! We ALL need, love and appreciate Your support <3
Missed yesterday because I upped Uptravi from 600 t0 800 mcg twice a day and it suckerpunched me with side effects and extreme fatigue so... https://t.co/pqmvgLvDis
#RaiseyourvoiceforSCLERODERMA! We ALL need, love and appreciate Your support <3
Didn't feel good yesterday morning but went in for hemogram blood draw and Procrit shot then out to Goodyear to rotate tires and met a good... https://t.co/Mgk36UOjxN
#RaiseyourvoiceforSCLERODERMA!We ALL need, love and appreciate Your support <3
Yesterday was an awesome day to raise awareness and we were surrounded by love, friendship and the best birthday present ever! Jenni L Garner... https://t.co/oJtKnNIeGM
June 22, 2019 Scleroderma awareness walk was a huge sucess! Thanks to Jenni Garner, Dave Wilkins of Star Productions, Lupita Wesseler, Linda Ayling, Pat Platiro and many more awesome people <3
#RaiseyourvoiceforSCLERODERMA! We ALL need, love and appreciate Your support <3
I have Systemic Diffuse Scleroderma! What exactly does it mean? The human body is a complex network of veins, arteries, connective tissues,... https://t.co/7TM8Yy5SU4
#RaiseyourvoiceforSCLERODERMA! We ALL need, love and appreciate Your support <3
We are both improving thanks to lots of prayers, antibiotics and rest. We have today and tomorrow for more rest and will be ready for... https://t.co/N5Ep28j9yz
So sick. started antibiotics today but voice is gone. Won't be going to Eugene until healed, Sweetheart has sinutitis again so we are both homebound this week and ready for Sat. walk
#RaiseyourvoiceforSCLERODERMA! We ALL need, love and appreciate Your support <3
Had a panic attack at 2 am and now I have the same thing Sweetheart has been fighting for two weeks. Sore throat coughing and downright... https://t.co/iDdREseTaB
Last nght I added another 200mcg Uprtavia to the 4oo I was on for a week; 7 hrs. later the side effects intensified and this morning went back to 400 mcg as advised but headache soon became a migrane (I rarely get... https://t.co/AJWDkhQxTh
#RaiseyourvoiceforSCLERODERMA! We ALL need, love and appreciate Your support <3
Rough day with side effects! Nurse called this morning and explained in great detail how this medication works and gave me a couple... https://t.co/7u55uVT6Vp