SclerosingMesenterit

RDLA advocate for sclerosing mesenteritis & mesenteric panniculitis. Pm me 4 info to join others w/SM - MP all over USA & multi countries.Over 650 members

[SclerosingMesenterit @sclerosingmesen]

#sclerosingmesenteritis #mesentericpanniculitis find me on FBook priv grp. Over 650 members wwide diag w/SM or MP-Daughter diag age 14 w/SM-19 abd surgeries now due to multpl bowel obstruct. Just hosp again w/another volvulus (no surg this tm) #RDLA #Globalgenes

[SclerosingMesenterit @sclerosingmesen]

@MAPJournal2017 @g_orl This group now has over 650 worldwide diag w/ sclerosing mesenteritis and/or mesenteric panniculitis

[SclerosingMesenterit @sclerosingmesen]

@MAPJournal2017 @g_orl I have a LG growing grp of 397 people diag w/mesenteric panniculitis or sclerosing mesenteritis. Pls feel free to contact me.

[SclerosingMesenterit @sclerosingmesen]

@BaseballGps

[SclerosingMesenterit @sclerosingmesen]

@BaseballGps

[SclerosingMesenterit @sclerosingmesen]

@BaseballGps Is there a way the bb schedule can get corrected and updated online? A few times this year game says home when its away vs versa. Schedule says today's game is home vs skiatook. Took off wk and came. Fields are empty. Unfortunately 3d time this yr this has happened. Thx!!

[SclerosingMesenterit @sclerosingmesen]

@BaseballGps is the scrimmage against Cascia a go today? We haven't seen any updates on website etc - thx! ☺

[SclerosingMesenterit @sclerosingmesen]

@maulermark @UCDavisHealth Have many contacts w docs and facilities across the USA and several other countries for tx for SM can network her with.

[SclerosingMesenterit @sclerosingmesen]

@maulermark @UCDavisHealth Mark. Have a private medical group w over 500 people in it internationally w SM. Wld love to add your mom. My contact info is on my Twitter hm pg. My daughter diag at age 14 and 19 abdominal surgeries later...

[SclerosingMesenterit @sclerosingmesen]

@RobbieRae61 Elizabeth I'm Lisa.Ur statements are false.He did make the stmts.He's now saying was hacked.U R quoting me as saying something that never happened.he absolutely said those things&washim.nothing new as he's done it many x.topic particularly bad this time & held accountable

[SclerosingMesenterit @sclerosingmesen]

@ElizSpen630 @RobbieRae61 He's since scrubbed his 3 personal pgs & the gov pg. Pls share correctly lisa never said that nor is she married. Chris did an about face as the topic was ss & shared & apparently being held accountable this time.this was nothing new for him for the last sev yrs

[SclerosingMesenterit @sclerosingmesen]

@ElizSpen630 @RobbieRae61 Lisa did not say https://t.co/pbsl96DwvG the facts mixed up. no one can convince me otherwise that it wasn't him that made all the stmnts. People in Okla have seen his antics for many years on his pers & bus ogs & his outlandish stmnts & attacks on people. This was nothing new.

[SclerosingMesenterit @sclerosingmesen]

@ElizSpen630 @RobbieRae61 Wow how the game of telephone misconstrues facts.... Please look at your comment and may want to revise it. Thx

[SclerosingMesenterit @sclerosingmesen]

@alrawi3gad @MAPJournal2017 I shared this article in our priv pg of approx 500 members fm USA & several countries all diag w/#mesentericpanniculitis & #sclerosingmesenteritis.1 member is sched for this in 1.5 wks for her MP. A few others hv printed for their docs. Thx for all you do!

[SclerosingMesenterit @sclerosingmesen]

@MAPJournal2017 Unfortunately we just lost another woman with aggressive acting SM in her mid 40s. You had posted this when Megan passed with SM and only 33 years old. Thx again for all you do!

[SclerosingMesenterit @sclerosingmesen]

@MyHealthShare Were up to pay 500 member mark with mesentericpanniculitis and sclerosingmesenteritis now. Email me to be added

[SclerosingMesenterit @sclerosingmesen]

@MayoClinic Now up to almost 500 members internationally. Email me to be added to a private group for #mesentericpanniculitis and #sclerosingmesenteritis

[SclerosingMesenterit @sclerosingmesen]

@AutoimmuneList International group with almost 500 members with MP or SM. Email me to be added.

[MAP Journal @MAPJournal2017]

The importance of the mesentery - Defining minimal clearances for adequate lymphatic resection relevant to right colectomy for cancer: a post-mortem study. - PubMed - NCBI https://t.co/IUhCpozBAJ

[MAP Journal @MAPJournal2017]

Important advancement in mesenteric diagnostics with implications for therapeutics -
Diagnostic performance of imaging-guided core needle biopsy of the mesentery and peritoneum. - PubMed - NCBI https://t.co/A9C4ibDXVN

[RARE Foundation @RareAdvocates]

Join us at the #RareDisease Congressional Caucus briefing on February 28th at 12:30pm to hear experts discuss the Rare Disease Lifecycle: Diagnosis to Treatment! Registration is FREE & lunch is included https://t.co/xS0T6lYv0a #RareDC2018 #RareCaucus