SCYSS

Sickle Cell & Young Stroke Survivors provides support to children, young people and families affected by Sickle Cell Disorders and Childhood Strokes.

[Wiley Clinical and Health @WileyHealth]

Women's health in #SickleCell disease patients is an important area of research & there are many articles published in the British Journal of Hematology on the topic.

Check out this one on hydroxycarbamide exposure and ovarian reserves. @BritSocHaem

https://t.co/gWLkikTFPk

[SCYSS @SCYSS]

Happy #WorldSickleCellDay2021 and #JuneTeenth2021!!!

[SCYSS @SCYSS]

Just posted a photo https://t.co/838KKbXe3X

[SCYSS @SCYSS]

Since October, SCYSS has been working hard to make sure our service users feel supported and equipped to get through these hard times with our 'Stay Safe Boxes'.

Special thanks to @InKindDirect & @MONATOfficial UK for their donations. Our project is reliant on such generosity.

[NHS Blood Donation 🩸🩹 @GiveBloodNHS]

Please #KeepDonating🩸 if you can. Our donor centres are still open with extra safety measures in place.

The dedication of our blood, plasma and platelet donors is saving lives every day. ❤️

[SCYSS @SCYSS]

The team at SCYSS wishes you warm & sincere wishes for the new year!

We have many projects planned for the year and our dedicated more than ever to continue Carol's legacy through our work. 2021 will be a good one.

[SCYSS @SCYSS]

If you would like to support our Stay Safe packs or anything else we do, please visit our website today!

https://t.co/kUgxZ0pnmN

[Jo @Jo74766154]

@SCYSS Grey! Hoping people will be kind enough to donate towards this good cause as well 😊

[Brwn S Kool @d4wacko]

@SCYSS This amazing. Keep up the good work. Carol would be so proud of you all.

[SCYSS @SCYSS]

We are distributing Stay Safe packs to families with Children who suffer from SCD

Each pack:
Disposable masks
Hand wash
Hand sanitiser
Surface wipes
Hand towel
Tissues

We are hoping to deliver once a month or every other month during the winter season.

Email [email protected]

[SCYSS @SCYSS]

Can this still be happening? Manchester hospital scan delay 'contributed to girl's stroke death' https://t.co/RSyEWzyOz8 #childhoodstroke

[Lanre Tunji-Ajayi @mrs_tunjiajayi]

With @Globalscd, the #world becomes a smaller village as Global Alliance of Sickle Cell Disease Organizations and its collaborators work to ensure everyone with #SCD have equitable access to optimal care and treatment. @ConquerSCD @SCDAAorg @sicklecell101 @GlobalSCDN

[SCYSS @SCYSS]

Wow! Just been elected Chair of Global Alliance of Sickle cell Disease Organisations. https://t.co/rSwhMd6P09

[Lanre Tunji-Ajayi @mrs_tunjiajayi]

It is indeed an historic day in #Amsterdam as advocates across ten countries and five continents gathered at the inaugural meeting of the Global Alliance of Sickle Cell Disease Organizations #GlobalSCD

[SCYSS @SCYSS]

Hi @DFID_UK @BorisJohnson thank you for your incredible commitment of £90M to @EduCannotWait!! Thanks to you, over half a million kids facing conflict and disaster will be able to go back to school. As a @GlblCtzn I hope the world will follow the UK's lead! #Act4Ed

[SCYSS @SCYSS]

Welcome Hon Ministers @FmardNg @Fmohnigeria @ZShamsuna @shehuri_baba @MinistryFederal. As a @GlblCtzn, I believe in a world without extreme poverty — including for Nigerian children. Will you prioritise investments in nutrition and health to help live out this vision?

[SCYSS @SCYSS]

Hi @AlokSharma_RDG @DFID_UK — no child should suffer from preventable disease. I’m proud #UKAid has protected 76 million children’s lives through @gavi, the Vaccine Alliance — now will you lead the world and support 25% of #Gavi's work to 2025 to #DefeatDiseaseTogether?

[SCYSS @SCYSS]

Kindly Nominate us like this on Twitter👇🏽👇🏽👇🏽

@UNIONBANK_NG I Nominate @Kesca2003Kb is working to raise awareness on Sickle Cell Disorder, support patients with all necessary intervention to make life more easier, empower SCD Patients, conducting clinics and monthly SCD forum.

[SCYSS @SCYSS]

'How I use rugby to fight sickle cell stigma' https://t.co/d0gMZ0SmKr