@Alicebez123 representing MAMBO at #CHCR2022 with results from the FREE-IA study focusing on evaluating an intervention to reduce fatigue in IA @CHCR_UWE
Joanna Robson @Robsonjo4 et al. Disease specific outcome measure for GCA (badly needed!) GCA-PROM. Demonstrated internal and external validity in measuring health related quality of life in GCA patients. @RheumNow#EULAR2022 POS0003
The Droitwich Lecture at #BSR22 - keynote speech by Mwidimi @ndosie - taking us from Mt Kilimanjaro & English language culture shock, to today's challenges in health care, to measuring what counts in clinical research, and developing evidence to inform practice.
Excited to see the GCA-PRO research study from the UWE Rheumatology Research Group being showcased in the Droitwich Lecture keynote speech by Mwidimi @ndosie at the British Society for Rheumatology Annual conference! #BSR22#PROM#HRQOL
Mwidimi Ndosi @ndosie presenting the final results of the GCA-PROM cross-sectional validation study at #BSR22 - a way to measure health-related quality of life in people with Giant Cell Arteritis #GCA#PROM
Great to hear from @charlieharperuk during @RheumatologyUK#bsr22 Heberden Round by Prof Raashid Luqmani about value of using patient experiences to create https://t.co/LIOQIgrzeb
Great insights into living with #vasculitis and the challenges of combining this with new fatherhood from Charlie, who with his family has developed resources to support patients @vascuk@HealthTalk#BSR22 @RashidLuqmani @RheumatologyUK
We are at the @RheumatologyUK Annual Conference for the next three days, exhibiting with our partner organisations in @RAIRDA_org. If you are at the conference, please visit Stand 47. #BSR22
Great to see Jamie @HulleyMills getting his BSR Student Award at #BSR22 for his #SystematicReview on effectiveness of interventions to reduce psychological distress. Didn't quite catch the on-screen moment, but here's where we are, either in Glasgow or online...
People living with #vasculitis#lupus#myositis#Scleroderma or #Sjogrens - would you be interested in taking part in this research to improve support options? Your opinions would be very valuable!
To the immunosuppressed+CEV community
I am so very aware of how you must be feeling right now. You have my full support
I am not sure what more I can do to help or advocate for you as I have been doing since Jan 2020 but I shall try
Everyone matters
#CEV#Immunosuppressed
👋15 more survey responses needed from people in USA 🇺🇸 before Friday 25 Feb! If you are taking #steroids for a #rheumatic condition, please fill in our survey about how steroids affect your quality of life:
https://t.co/2RukKUkFZ1
Many thanks! Please RT if you can!🙏#research
Are you being treated with steroids for rheumatoid arthritis or another rheumatic condition? Researchers @UWEBristol would value your help to test a new questionnaire about steroid impact on quality of life.
Here is the survey link: https://t.co/hYSG4v5eB0
👋Help needed for rheumatology research! If you are taking #steroids for a #rheumatic condition, please fill in our survey about how steroids affect your quality of life #HRQOL:
https://t.co/2RukKUkFZ1
And please RT!🙏@LADAOrg@LupusOrg@LupusAlliance