Sheila Stern

[RareDNA Foundation @rarednafound]

Proud that MN is one of the states participating in the #NIH funded BEACONS Newborn Screening project!
Especially excited that PPA2 is one of the genes being screened. Earlier detection means more opportunities to protect children & support families.
https://t.co/IA8FnbDrxh

[RareDNA Foundation @rarednafound]

🩵 Today, on the one-year anniversary of Claire's admission to the cardiac ICU, we are honored to launch the PPA2 Cardiomyopathy Research Fund with @umngive
We've committed $5,000 to open the fund & are asking our community to match it.
Donate: https://t.co/pDKnJXk4vG #UMNGive

[Sheila Stern @shemarste]

Best way to spend a Mother’s Day!! #justhermom
Let’s go @SaraStern2027 #24! Shine your light 💕

[Sara Stern @SaraStern2027]

Two games left, going strong!

@CoachNotch
@Coach_Jas
@GMacHoops
@PGHMinnesota
@JrAllStarMN
@EricJrAllStar
@AllyMcGinnis2
@MNSunsbball

[Sheila Stern @shemarste]

We get asked “Why” a lot. My response…we couldn’t not. Children are dying & struggling to survive with #PPA2. The paranoia of raising a child whose heart could stop from a simple cold. How can you not fight for answers. Like @ForumKamdar said. “Claire is our why” 🩵💜

[UMN Medical School @umnmedschool]

After a PPA2 deficiency diagnosis, former D-1 athlete Claire Stern and her family launched the RareDNA Foundation to raise awareness for this ultra-rare mutation and fund heart research at the University of Minnesota. ❤️🧬

🔗: https://t.co/Vei4Cre7hn.

@rarednafound @ForumKamdar

[RareDNA Foundation @rarednafound]

Tune in tonight on @FOX9 to learn more about what the @UMNews (U of M Medical School) is doing to help PPA2!!🫀🩵💜

#RareDNA #PPA2 #HeatbeatforHope #geneticheart

[Sheila Stern @shemarste]

No time to rest, so much work to do. #standingwithclaire #PPA2 #HeartbeatForHope #geneticheart 🩵

[RareDNA Foundation @rarednafound]

As AAU basketball season is underway & we once again enter the gym as a family. It hits differently. Claire survived, @PGHMinnesota did a wonderful story on why we are fighting each day to raise funds for life-saving research. #PPA2 @UMNews
Support here https://t.co/LFMrDuEuDU

[RareDNA Foundation @rarednafound]

Happy Easter! He is Risen ✝️
We do not underestimate the power of our God. As Claire said in an interview this year, “God saved me for a reason…” Thank you to each of who who is part of this next chapter of her story.

[RareDNA Foundation @rarednafound]

13 days left to support research for #PPA2 at the UofM. Who do you donate in honor of? your athlete, who still gets to play? Someone with Heart Failure? Someone who survived #SCA? Someone with #Raredisease? Someone with #genetichearts?
Donate here: https://t.co/YDvZ9nzkom
#Rare

[Sheila Stern @shemarste]

You will know where to find me!! #justhermom. Final year of AAU ever…weird. This girl has grit and determination like no other.

[Sara Stern @SaraStern2027]

Pumped for the new season!
@CoachNotch
@Coach_Jas
@MNSunsbball
@EricJrAllStar
@GMacHoops
@FiveStateHoops
@SelectEventsBB

[Sheila Stern @shemarste]

Big things starting!! More work to do. Beyond blessed to keep it local at the @UMNews

[RareDNA Foundation @rarednafound]

A powerful moment in rare disease research 💙
Claire shares the beginning of groundbreaking stem cell work for #PPA2. Your donation fuels the next discovery & save lives!
👉 Donate today to keep the momentum going.
https://t.co/LFMrDuEuDU
#standingwithclaire #HeartbeatForHope

[Sheila Stern @shemarste]

You have about 2 weeks to shop!! This also supports the 30 day fundraiser challenge!

[RareDNA Foundation @rarednafound]

Like to shop? Want to feel good about supporting our mission at the same time? Check out our NEW merch! A portion of each sale goes towards our #30dayfundraiser challenge! @Bonfire store https://t.co/6H1hhieAdL
#standingwithclaire #PPA2 #genetichearts #heartbeatforhope #rareDNA

[Sheila Stern @shemarste]

Special day today!!

[RareDNA Foundation @rarednafound]

For TODAY only! March 25th 2026 🎉 Donate $50 or more and get a free t-shirt from us! Details below 👇
Donate 🔗 : https://t.co/LFMrDuEuDU
#standingwithclaire #30daychallenge #PPA2 #genetichearts #heartbeatforhope #RareDNA

[Sheila Stern @shemarste]

Miss seeing her play but can’t deny the pride I feel watching her speak like this 🩵💪🏼

[RareDNA Foundation @rarednafound]

This is our WHY. What’s yours?Answers are waiting for Claire and the others who have survived sudden cardiac events, but only if the research can be funded. We’re on a mission to raise $20K in 30 days!
Donate:
https://t.co/LFMrDuEuDU
#HeartbeatsForHope #standingwithclaire #PPA2

[Sheila Stern @shemarste]

Can’t wait to watch @SaraStern2027 do her thing on the court with her Minnesota Suns 17U S40 team this spring and summer! #justhermom

[Abby Notch @CoachNotch]

MEET THE TEAM | Minnesota Suns 17U S40

Sara Stern - @SaraStern2027
6’0 Wing/Forward
Maple Grove High School

Length at the wing/forward spot with the ability to score and defend. Brings consistency and a competitive edge every time she steps on the floor.

[RareDNA Foundation @rarednafound]

Incredible launch day for our #30DayChallenge! 🩵
Help us hit $2,500—or go big and push us to $5K. Every share spreads awareness for #PPA2.
Donate: https://t.co/LFMrDuEuDU
#HeartbeatForHope #standingwithclaire #genetichearts #mymitostory

[Sheila Stern @shemarste]

We can’t do this without you! This research has the potential to not only give specialized care to our girl but advance the understanding and awareness of this frightening, deadly heart mutation. Trust me, none of you want to watch your kid go thru cardiac events.

[RareDNA Foundation @rarednafound]

The 30-Day Challenge starts now! $20,000 for PPA2 Heart Research to support life-saving research @ the University of Minnesota. Follow along, share, & help us reach this together. ❤️
#heartbeatforhope #standingwithclaire #geneticheart
#suddencardiacarrest #cardio #mymitostory

[Sheila Stern @shemarste]

Please forgive the silence of @rarednafound for the past few days! Been supporting our @NDSUwbb🤘team as they climbed to the Summit League Champ game! Big announcement comming this week from RareDNA! #rollherd
#genetichearts
#RareDNAFoundation #standingwithclaire

[Sheila Stern @shemarste]

Thank you for a great kick-off!! Let’s keep the momentum going. We have lives to save people… #RareDNAFoundation
#genetichearts
#standingwithclaire
#PPA2

[RareDNA Foundation @rarednafound]

Thank you for everyone who showed up and supported our first two awareness nights! Off to a great start to find some answers for #PPA2 and other rare #genetichearts.

#RareDNAFoundation
#StandingWithClaire
#mymitostory

[Sheila Stern @shemarste]

@thow15 Thank you for the shout out!!

[Tim How @thow15]

Support the RareDNA Foundation.

https://t.co/rHJOMEZ3HX