Jackie Rodriguez

on the journey to raise awareness for Cone Dystrophy,a rare genetic eye condition #conedystrophy #1outof30000 #blindlivesmatter #lowvision

[Jackie Rodriguez @simply_jackiie]

@VICE I think you guys should do a segment on #ConeDystrophy and how the #medical & #ophthalmology sectors ignore, misdiagnose and mistreat those suffering with this rare eye condition. Please help! #shedalight #raiseawareness #lowvision #legallyblind #hope #nyc

[Jackie Rodriguez @simply_jackiie]

So many #ophthalmology publications and none ever cover the subject of #ConeDystrophy, it’s like cone Dystrophy doesn’t exist and we are a mythical creature. #raiseawareness #imatter #myvisionmatters #blindlivesmatter #lowvision

[Jackie Rodriguez @simply_jackiie]

@ClarkChangOD @Wills_Eye Wish this was true. But no one there seemed to care about #ConeDystrophy or even seem knowledgeable about it . Womp womp
#blindlivesmatter #lowvision #legallyblind #colorblind

[Ken Olin @kenolin1]

Here it is. The ransom note. Give him the Wall and the kids go free. Never in our lifetimes has there been more despicable leadership of our country. This is truly vile. https://t.co/Q66okrVTDI

[Chuck Schumer @SenSchumer]

It's unconscionable that the US govt is housing babies & toddlers alone in an institutional setting. This crisis was willfully & purposefully created by @realDonaldTrump. It can & should be ended by the same mechanism.

With the simple flick of a pen, this can be ended.

[Jackie Rodriguez @simply_jackiie]

@GavinCritchley It’s disgusting to say the least! I’m so ashamed to be an American at this very moment. We have become the face of cruel and evil. 😞

[The vOICe vision BCI 🧠🇪🇺 @seeingwithsound]

64% of retinitis pigmentosa patients treated with bone marrow stem cells show improved vision in new MD Stem Cells report https://t.co/1OxAzfCyTR #RP

[Jackie Rodriguez @simply_jackiie]

@bella_biker I wish I could find a doctor in #nyc that works with #bioptics. Being able to drive would drastically change my life for the positive... but yes people are very much so ignorant to the needs & well being of those with low vision & legallyblind

[Jackie Rodriguez @simply_jackiie]

Sooo annoying when people say” how can you still not be able to drive you’re wearing contacts”

Me:well you see I have a stupid #rareeyegenetic condition called #ConeDystrophy & no amount of eye prescription will EVER help

Random person : ... that makes no sense I’m confused

[ColourBlindAwareness 🇺🇦 🌻 @colourblindorg]

Education almost completely ignores the #1ineveryclassroom #1in12boys & #1in200girls with visual colour blindness already, even though it can affect attainment at all levels of edu & has a proven -ve effect on wellbeing. PSHE shld address this too! Good luck w/ your idea! https://t.co/fscLJHjIhf

[Jackie Rodriguez @simply_jackiie]

I only have 1 wish, to hit the lotto.Then I’ll be able to catch the attention of a #genetherapy company in the #Ophthalmology sector to back up a adequate & desperately needed research for #ConeDystrophy in the USA #moneytalks #biotechinvestors

[Jackie Rodriguez @simply_jackiie]

Cone dystrophy can cause a variety of symptoms including decreased visual clarity (acuity) when looking straight ahead (central vision), a reduced ability to see colors and an increased sensitivity to light (photophobia) #conedystrophy #ophthalmology #1outof30000

[Jackie Rodriguez @simply_jackiie]

@RetinaSarasota @EyeHealthUSA @SeanJMcCafferty @KideSystems @ExhibitionGuy1 @GersteinEyeIL Thank you! Same to you!

[Jackie Rodriguez @simply_jackiie]

@no_1_uno @TeenMom @MTV Totally agree with you ! If any other regular mom who hasn’t on a tv show did half the stuff these girls are doing around there babies then children services would be knocking on their door.

[Jackie Rodriguez @simply_jackiie]

@tinaswope2014 @TeenMom @MTV I keep saying the same things! @mtv is creating a bigger monster out of these young girls who are already completely troubled.why can’t they showcase more of the positive ladies like @ChelseaHouska ? They barely give her family airtime because they are too normal and positive

[Jackie Rodriguez @simply_jackiie]

@colourblindorg I totally failed 🤦🏻‍♀️

[Jackie Rodriguez @simply_jackiie]

@colourblindorg @waldjm No you didn’t upset me I was just expressing like some of the others that our immediate thoughts are frustration as we can’t see the colors nor care for them. My second thoughts would be to actually try and guess the colors. Sorry for the confusion

[Jackie Rodriguez @simply_jackiie]

@colourblindorg @waldjm We keep telling you what we think.. it’s frustrating and annoying that’s what we think.. we don’t care about colors because we can’t see it! But our answers are not good enough . Sorry

[Jackie Rodriguez @simply_jackiie]

@colourblindorg It’s a bunch of bright colors stacked up that unfortunately we blind people can tell what they are.. what we think? .. “annoying and frustrating “