shehla mohammed 💙🧡

Paediatric Geneticist, partial to rare and ultra rare disorders, mature student of the cello and kick boxing! Views my own

[shehla mohammed 💙🧡 @snmcb]

The AAF conferences get better each year : 2024 was the best ever ! ⁦@AmyandFriends⁩ ⁦@GSTTnhs⁩ ⁦@GSTT_SpecAmbu⁩ ⁦@EvelinaLondon⁩

[shehla mohammed 💙🧡 @snmcb]

How St Thomas’ Rare Diseases Centre helps families thrive
Guy's and St Thomas' NHS Foundation Trust | 27 Feb 2026
https://t.co/6Gs5yzielP

[shehla mohammed 💙🧡 @snmcb]

@mft_iMRare Brilliant news : congratulations to the team !

[shehla mohammed 💙🧡 @snmcb]

@StephenORahilly @Farooqi_Lab Many congratulations Sadaf : richly deserved !

[shehla mohammed 💙🧡 @snmcb]

Summary !
https://t.co/gW35kcP5MV

Staying calm for lift off: it’s only 1.5 km, 120 mph 0-60 mph in 10 secs!

[shehla mohammed 💙🧡 @snmcb]

Velocity zip wire update : we did it with the parents and one of my patients which made it so so special! Incredible support from so many. We have raised over £10K for Amy and Friends so far !
Thank you all so much. @GSTT_SpecAmbu @GSTTnhs @AmyandFriends

[shehla mohammed 💙🧡 @snmcb]

A notch up from the abseil down St Thomas but also for a good cause. Thanks for any support you can offer ! @GSTT_SpecAmbu @GSTTnhs @AmyandFriends

https://t.co/DMQIw3YXCA

[Guy's and St Thomas' @GSTTnhs]

Dr Shehla Mohammed, consultant in paediatric clinical genetics, contributed to the Plan. She said: "Since its launch there have been improvements in treatment and awareness of rare conditions, but there is more to be done to support patients with rare and ultra rare disorders.”

[shehla mohammed 💙🧡 @snmcb]

Our bespoke Rare Disease Centre enables paediatric, transition and adult patients to be seen by multiple experts ensuring continuity of care, access to therapies and an international collaborative network @GSTTnhs @GSTT_SpecAmbu @EvelinaLondon

[Guy's and St Thomas' @GSTTnhs]

The Rare Diseases Centre at St Thomas' Hospital is one of the only units in the UK, providing comprehensive care for people who have rare diseases

[shehla mohammed 💙🧡 @snmcb]

@JannieBroadcast @AmyandFriends @ZipWorldUK @PAK1 @drolgathomas @crossovernat @SteveNy00177589 @paupoljr @DebThomasCopy @LoveCelticWoman @EllenAngharad @famousamos111 @LolaGanzarolli Thanks for the hot tips around take off and landing !!

[shehla mohammed 💙🧡 @snmcb]

@AmyandFriends @JannieBroadcast @ZipWorldUK @PAK1 @drolgathomas @crossovernat @SteveNy00177589 @paupoljr @DebThomasCopy @LoveCelticWoman @EllenAngharad @famousamos111 @LolaGanzarolli I’ll be joining you too , hopefully smiling to hide the totally terrifying endeavour for a brilliant cause !

[shehla mohammed 💙🧡 @snmcb]

A notch up from the abseil down St Thomas but also for a good cause. Thanks for any support you can offer ! @GSTT_SpecAmbu @GSTTnhs @AmyandFriends

https://t.co/DMQIw3YXCA

[shehla mohammed 💙🧡 @snmcb]

@JulianBarwell

[shehla mohammed ���🧡 @snmcb]

@JulianBarwell Oh my heavens ! Keep going so it’s time for ..

[shehla mohammed 💙🧡 @snmcb]

@MeenaBalasubra5 @SCYPHeROfficial @shefunihealth @SheffChildrens Many Congratulations Meena !

[shehla mohammed 💙🧡 @snmcb]

A privilege to be part an amazing group of likeminded clinicians and scientists working in a true collegiate spirit to get the best outcomes for the patients we look after @GSTTnhs @EvelinaLondon

[Amy and Friends @AmyandFriends]

Some of our wonderful scientists/clinicians from across the world who dedicate the lives to helping our families - this phenomenal team deserve the biggest clap 👏 ❤️💙💛👏

[shehla mohammed 💙🧡 @snmcb]

This award recognises their exceptional skills, knowledge and expertise and the central role of nurses in the development of innovative services that improve co-ordinated care for those with rare and ultra rare diseases. @AmyandFriends @GeneticAll_UK

[shehla mohammed 💙🧡 @snmcb]

Huge congratulations to Paula Sullivan and Phillipa Sellar, nurse practitioners in our Rare Diseases Centre, who have been awarded the prestigious title of Queen’s Nurse from the Queen’s Nursing Institute.@GSTTnhs @GSTT_SpecAmbu @EvelinaLondon @NHSEngland

[shehla mohammed 💙🧡 @snmcb]

It was an honour to be invited to the recent Bloom Syndrome Patient & Family Conference in Frankfurt. The UK Blooms RDCN highlighted role of the specialist MDT clinics in the development of integrated care pathways @GSTTnhs @GSTT_SpecAmbu @EvelinaLondon

[shehla mohammed 💙🧡 @snmcb]

We discussed our approach to a be-spoke management plan for patients and the key role of a dedicated specialist nursing team as well as clinical observations and challenges at Year 1 whilst reflecting on future plans.

[shehla mohammed 💙🧡 @snmcb]

With over a 100 attendees from 13 countries we had a very informative weekend of talks & workshops leading to many new and innovative collaborations