Stephen Petty

Disability Practitioner, song writer and musician

[Stephen Petty @spetty79]

Today is International Batten Disease Awareness day. @BattenDiseaseuk are celebrating the lives and families affected by the disease. This one is dedicated to my nephew Bertie 💛. #batten #awareness #SupportEachOther

[BDFA @BattenDiseaseuk]

Today is to raise awareness and celebrate the people in our community but we also remember to families who have lost loved ones🧡
This post is about the lovely little Bertie,thank you to Mimi and Andrew for sharing these lovely memories today#battenday2024 #battendiseaseawareness

[Stephen Petty @spetty79]

@SoVeryBritish Jammy Dodger
Chocolate hobnob
Custard cream

[Stephen Petty @spetty79]

@lesleyjaneblack Wedgwood rooms is the only one I can think of. @koolkagool can you suggest anywhere??

[Stephen Petty @spetty79]

Shopping early in IKEA... ALONE. #gamechanger

[Stephen Petty @spetty79]

A powerful poem. 💛 #battens

[BDFA @BattenDiseaseuk]

Last but by no means least to close our stories and quotes from our amazing Batten community this year for Awareness day, we have the lovely Alison.
Alison is mum to Joshua who has CLN6 and she wanted to share a poem she wrote about him.

https://t.co/1i7AtUzdop

[Stephen Petty @spetty79]

I can't express how utterly amazing the @Youngfathers Heavy Heavy album is. Every time I listen, a different song stands out and will resonate with how I feel at that particular moment. Such talent #alternative #music #awesome

[Stephen Petty @spetty79]

Why were on-coming car drivers acknowledging my waiting at a temporary red light due to road works 🤷‍♂️

[Stephen Petty @spetty79]

@lesleyjaneblack I know right?! They would never say 50 to the hour.....although that will be the next development. 🤷‍♂️

[Stephen Petty @spetty79]

I can't get my head around youngsters saying '50 past' the hour. #tellingthetime #YOUTH

[BDFA @BattenDiseaseuk]

Please help the BDFA be in with the chance of winning £5,000!🧡
Nominate us via the link below using the BDFA charity registration number: 1084908
Please do share so your followers can nominate us too.
Thank you so much for your support🧡
https://t.co/O70BqQYfVi

[Stephen Petty @spetty79]

I demand to know what the exclusive content is before I subscribe.

[Stephen Petty @spetty79]

Happy with my flag knowledge. https://t.co/15OIuZzbOu

[Stephen Petty @spetty79]

My children are getting through our milk like they have some some kind of milk addiction. Lactoholics if you will. #teenagers #milk

[Stephen Petty @spetty79]

@SoVeryBritish Lock, Stock and two Smoking Pancakes

[Stephen Petty @spetty79]

In the car on the way to the Gym only to realise I'm still wearing my slippers. #MiddleAge #cool

[Stephen Petty @spetty79]

When a song makes you smile after a hard day, it's worth sharing 😊. Thanks again to @BBC6Music https://t.co/lzQI9Ao0Rn

[Stephen Petty @spetty79]

Easiest one yet. https://t.co/qtbklzlwAZ

[Stephen Petty @spetty79]

That was quick, for me. https://t.co/D6Mcwuy7Qe

[Stephen Petty @spetty79]

22 days without alcohol. Pros: sleep is better, anxiety levels down, patience up, life expectancy increased, clearer head, more productive, fitness up, saving money. #DryJanuary #soberlife #lifestyle #alcoholawareness

[Stephen Petty @spetty79]

Too many options Wordle 579 X/6

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