The face of my work's disability advocacy group is not disabled and I have feelings about it. The person is kind and passionate so I feel guilty about my feelings. I plan on stepping into leadership soon but I've only been at the org since fall. #DisabilityTwitter
Joined a gym yesterday so I can hopefully wrangle my bones with less pain and also not ask my spouse to lift everything for me. Gonna be working with a trainer and nutritionist. No scale. No calories. Pretty nervous but I did get some great purple tights at the store. #EDS
@crippledscholar I really enjoy drinking cold bubbly things, and also enjoyed beer. NA beer is way less bad for you than sugary soda. I like sparkling waters, NA beer, "hop water", sparkling juice/NA champagne, etc. Also its nice at parties to not be asked why ur not drinking.
@ClaireMax I'm 0% famous but you're really inspiring, are super into cosplay, and make my lil gay heart pitter patter. You remind me of how fun it was to strength train, so much so that I just joined a gym yesterday to get some muscles back. ποΈββοΈ
@ringsplintsUK@TheEDSociety Hi @ringsplintsUK will you ship to the US? I need a thumb splint for my thumb MCP and IP joints. The Silver Ring Splints folks in the US don't integrate the two joints into one brace like you have here.
@nikkie_music @tenderbrushes @rgay I hope you're free of that burden and can experience your joys fully now.
I have a partner now who celebrates my successes and isn't threatened by my joy. I'm so happy.
@nikkie_music @tenderbrushes @rgay I've never met anyone who also did this. Its such a painful defense mechanism, to minimize yourself so the people who are supposed to love you treat you warmly.
The public opinion you are subject to as a chronic illness patient is so fucking exhausting.
Every new person who interacts with my body has opinions on how to make it better and how what I've been doing until now is wrong.
@Kellie_Martin You got this!!! It's tough!
Something that helps me when it's tough is to remember that Sir Anthony Hopkins has been sober for 45 years. He is my patron saint of sobriety :)
@bennessb Warm tall socks, constant hot tea rotation, heating pad, no fireplace so sitting in front of a space heater, hoodie with hood up, fingerless gloves inside, and candles lit to will the springtime back.
@bonejenge @teonawrites DO NOT go for this chair. My partner and I have been waiting on ours for 2 years. They will not give refunds. Google "beyou scam" or "beyou kickstarter". Its a mess.
@POTSparty If you're able to, checking in with a podiatrist may be a good idea. It could be a plantar wart, or if it is a callus, the doc may have insight into why it is persistent (like your gait or footwear). Home treatment can include a salicylic acid or oregano EO regimen.