Spoonie Speak

#SpoonieSpeak is a #spoonie chat so ppl feel they're out with friends while in their PJs! Creator @whentaniatalks, co-host @hamrowannie. Currently not monitored

[Spoonie Speak @spooniespeak]

Apologies for the lack of chats.

Due to hospital error I've been left without vital meds & v unwell.

Last week, my GP put an emergency plan in place, which helped me cope rather than just survive.

Seeing the consultant Mon, so hopefully will be well enough for chats soon.

[Spoonie Speak @spooniespeak]

Thanks for a great #SpoonieSpeak everyone! I hope you all have a good week.

[Spoonie Speak @spooniespeak]

Q4. What can we as patents do to try and build a trusting relationship with our medical professionals?

#SpoonieSpeak

[Spoonie Speak @spooniespeak]

Q3. Have you managed to build a trusting relationship with a medical professional you initially didn't get on with?

If so, what changed to make this trusting relationship possible?

#SpoonieSpeak

[Spoonie Speak @spooniespeak]

Q2. What would you like medical professionals to know about the importance of building a trusting relationship?

#SpoonieSpeak

[Spoonie Speak @spooniespeak]

Q1. Have your medical professionals done or said anything that has helped you build a trusting relationship with them?

#SpoonieSpeak

[Spoonie Speak @spooniespeak]

Intro: Please introduce yourself in a way you feel comfortable.

#SpoonieSpeak

[Spoonie Speak @spooniespeak]

Welcome to #SpoonieSpeak!

Tonight's topic is building a working relationship with medical professionals.

[Spoonie Speak @spooniespeak]

#SpoonieSpeak in 1 hour.

The topic? Building a working relationship with medical professionals.

[Spoonie Speak @spooniespeak]

Thanks for a great #SpoonieSpeak everyone!

I hope you have a low pain, low fatigue week.

[Spoonie Speak @spooniespeak]

Q4. What would you like non-chronically ill friends and family to understand about how fatigue affects you?

#SpoonieSpeak

[Spoonie Speak @spooniespeak]

Q3. Do you find pacing difficult?

Do you have a strategy in place to help you pace?

#SpoonieSpeak

[Spoonie Speak @spooniespeak]

Q2. Have you been able to identify anything that negatively affects your fatigue levels?

Have you managed to reduce this? If so, how?

#SpoonieSpeak

[Spoonie Speak @spooniespeak]

Q1. When your fatigue is high, what do you do to help you stay positive?

#SpoonieSpeak

[Spoonie Speak @spooniespeak]

Intro: Please introduce yourself in a way you feel comfortable with.

#SpoonieSpeak

[Spoonie Speak @spooniespeak]

Welcome to #SpoonieSpeak!

Tonight's topic? Managing fatigue.

[Spoonie Speak @spooniespeak]

Thanks for a great #SpoonieSpeak everyone!

I hope you all have a low pain, low fatigue week.

[Spoonie Speak @spooniespeak]

Q4. How could restaurants be more accessible to those with chronic illnesses, both in terms of physical access and menu options?

#SpoonieSpeak

[Spoonie Speak @spooniespeak]

Q3. If you're able to eat out, what do you look for in a restaurant so that it caters for your needs?

#SpoonieSpeak

[Spoonie Speak @spooniespeak]

Q2. Have you found any strategies to help make eating out a little easier?

#SpoonieSpeak