Sandra Sermone

President/CEO ADNP Kids Research Foundation /ADNPkids.com,SPARK For Autism Advisory Committee, Advocacy Ambassador for Autism Speaks, Mom to Tony (aka Superman)

[Sandra Sermone @ssermone]

The moment 72000 fans cause a 3.2 earthquake! #TaylorSwift #ErasTour https://t.co/AyIDsx9Oph

[Sandra Sermone @ssermone]

Check out Seattle Eras Tour Taylor Swift's video, 22 Hat Day 1! #TaylorSwift #ErasTour #TaylorSwiftErasTour https://t.co/VXSYqGDqGK

[Sandra Sermone @ssermone]

#ketamine #autism

[Sandra Sermone @ssermone]

First-ever clinical trial for rare disorder that is a leading genetic cause of autism also identifies path for a ketamine clinical development program @mattmight @SeaverAutism @SimonsFdn @autismspeaks

https://t.co/giJchHVCfX

[Sandra Sermone @ssermone]

Thank you KOIN Extra AM for doing a live interview with me today on Rare Disease Day in DC, and for sharing the challenges faced by parents of children with rare brain diseases.

https://t.co/1xbHqUKqDW
#RareDiseaseDay2023 #cureADNP

[Sandra Sermone @ssermone]

What the……….?
@amazon is “ending” #AmazonSmile?
Small #raredisease grassroots nonprofits like ours @ADNPkids need every penny we can get, and our family & friends sign up to help us, no you are shutting it down. #AmazonFrown this sucks!

[Sandra Sermone @ssermone]

@Ticketmaster If they start at 3pm, why does mine day 2:00pm and I am in Washington?

[Sandra Sermone @ssermone]

New Study Suggests Ketamine May Be An Effective Treatment for Children with ADNP Syndrome
First-ever clinical trial for rare disorder that is a leading genetic cause of autism also identifies path for a ketamine clinical development program https://t.co/73rCdNymGM

[Dani Schultz @danithechemist]

mRNA display makes billions of macrocyclic peptides in one round (🤯) - dramatically impacting drug discovery.

@ACSMedChemLett highlights Merck’s PCSK9 inhibitor which is the first clinical candidate from this technology!

https://t.co/yvZFxi0M0f

[Sandra Sermone @ssermone]

@eperlste @JaneAustenCode I’m 25 mins north - we should connect!

[Sandra Sermone @ssermone]

@eperlste @stopbatten @CureSPG50 @Clubhouse Can’t wait! Terry is the most driven parent that I’ve ever met.

[Sandra Sermone @ssermone]

@49ers WOW 🤩

[Sandra Sermone @ssermone]

@leekleek217 @AOkwuegbunam Ah, wish this was on the west coast for Rocco.

[Sandra Sermone @ssermone]

@IlliniFootball @leekleek217 @49ers We are so excited for you!!! Hope to see you in San Fran one of the times we take Tony to UC Davis.

[Sandra Sermone @ssermone]

LIVE on Gene Fixers w/⁦ ⁦@mattmight⁩ to discuss drug repurposing, specifically the repurposed drug #ketamine for #ADNP found using Dr. Might’s ⁦@ncats_nih_gov⁩ funded AI tool.
.
1st #raredisease to start #fda #RepurposedDrug trial using #AI https://t.co/UgdaR5XvY3

[Transcripta Bio @transcriptabio]

.@LynseyChediak is Rarebase’s Head of Partnerships. In our first episode of Rarebase Remarks, learn about Lynsey's own experience with #raredisease and her hopes for research and treatment.

https://t.co/YnJqRApVti

[Sandra Sermone @ssermone]

We are so excited to start this amazing project that we hope will help our children. Rare Disease research is funded by families - because we are desperately trying to save our children. Read about how we are stepping into gene therapy for ADNP.

[UCDavisMINDInstitute @UCDMINDINST]

Thank you ADNP Kids Research Foundation and @SimbaGlobal for funding an ambitious $4 million program at the MIND Institute to test #GeneTherapies for #ADNPSyndrome!

@ssermone
@FinkLab @jill_silverman_ @UCDavisStemCell
https://t.co/5UsLQQS5zg

[UCDavisMINDInstitute @UCDMINDINST]

Thank you ADNP Kids Research Foundation and @SimbaGlobal for funding an ambitious $4 million program at the MIND Institute to test #GeneTherapies for #ADNPSyndrome!

@ssermone
@FinkLab @jill_silverman_ @UCDavisStemCell
https://t.co/5UsLQQS5zg

[Sandra Sermone @ssermone]

@mattmight @HomeDepot @Romanoffreno That’s awful!

[Sandra Sermone @ssermone]

@DeRubeisLab @jill_silverman_ @ucdavis @worldwideneuro @SeaverAutism @SinaiBrain @MountSinaiPsych Was this recorded???