Susan Swanson

Patient Advocate, MBC Thriver

[Susan Swanson @ssswanson20]

@AMJohnston1315 Heartbreaking. She had the best smile.

[Susan Swanson @ssswanson20]

@lori_burwell @BZavaletaMD Sending you love and peace Lori.

[Susan Swanson @ssswanson20]

@itsnot_pink Getting mine tomorrow. Would love to hear how you are feeling(hopefully good!)

[Susan Swanson @ssswanson20]

@lianne_kraemer @stage4kelly @Martha__Carlson Such a huge loss. She was such an amazing person and fearless advocate.

[Susan Swanson @ssswanson20]

@gregggonsalves @SueMel29 @bmsnews Spent 5 weeks off treatment trying to get a drug well into phase 3 on expanded access. Was told very promising I would get and then door slammed. “Not enough data”.

[Susan Swanson @ssswanson20]

This needs to happen⬇️

[Susan Swanson @ssswanson20]

Powerful piece that should be a wake up call to many hospitals .. As patients we are the consumers, we pay the hospitals, doctors and we needed to be treated this way.

[Abigail Johnston @AMJohnston1315]

Names https://t.co/yRmLVv55mB

[Tatiana Prowell, MD @tmprowell]

Why are we reverting to pre-#pandemic #telemedicine rules that require dr to be licensed in state where pt will login on the day of their visit? Make it make sense. The pandemic isn’t over. This is a barrier to access care. We need a single US license or reciprocity. #MedTwitter

[Susan Swanson @ssswanson20]

@itsnot_pink Erica is just an extraordinary woman. Heartbreaking 💔

[Dr. Naomi Wolf. 8 NYT Bestsellers. DPhil, Poetry. @naomirwolf]

4/ proving the lack of efficacy of masks.

[Tatiana Prowell, MD @tmprowell]

PLEASE stop saying “patients who have failed __ .” Patients don’t fail treatment. The treatment fails them. If it was your treatment that failed them, having that pointed out to you leads to a predictably awkward moment. Trust me.😬

See ASCO Lang of Respect guidelines. 👇

[Athenex Oncology @AthenexOncology]

#FacingMBCTogether ambassador, Susan @ssswanson20, researches to ensure she’s on top of the best #MBC treatment options that enable her to live the best life. She is a strong self-advocate. Learn more from Susan’s story. https://t.co/3q5IXOVvTe

[Living Beyond Breast Cancer @LivingBeyondBC]

Living Beyond Breast Cancer CEO Jean A. Sachs, MSS, MLSP, will be presenting at the virtual @Eagles Care Summit tomorrow.

[OurMBCLife @ourmbclife]

What happens when exceptional response ends? When PFS on a treatment gets shorter each time? Lara MacGregor @HopeScarvesInc shares that reality and how she holds "both fear and joy in the same hand at the same time." Thank you Lara for sharing your truth. https://t.co/HAcdCye6Ih

[Susan Swanson @ssswanson20]

@AMJohnston1315 Beautiful post. 💞

[Susan Swanson @ssswanson20]

@itsnot_pink @ErikaHamilton9 @nlinmd This is a big issue. Once you’ve bee. Through a few drugs you are”heavily pretreated “and don’t qualify except in Phase 1

[Susan Swanson @ssswanson20]

Our oncologists want us vaccinated but where are the cancer centers (that we pay exorbitant fees to for treatment) when we need them advocating for us? #bcsm https://t.co/spl8quAFdm

[Living Beyond Breast Cancer @LivingBeyondBC]

Tomorrow is the last day to apply for our Hear My Voice Advocacy Program. Join us virtually to connect with others living with #metastatic #breastcancer and learn how to raise awareness about #mets. Apply now: https://t.co/6sxUc7HoId #bcsm 📷: @lori_burwell

[Fumiko Ladd Chino, MD, FASCO @fumikochino]

🚨@GovMurphy: I am an oncologist at @sloan_kettering in New Jersey, we treat thousands with #cancer at our Basking Ridge, Monmouth, & Bergen facilities. WHY do I have to tell our staff & vulnerable NJ patients that we were not allocated ANY #covidVaccine doses?

Please help. 🙏

[Susan Swanson @ssswanson20]

@LungCancerFaces @lgreco_ny @timesunion @xeni @DrEricDing @ArthurCaplan @VABVOX @LizSzabo @ananavarro @CherylStrayed @anylaurie16 @jaketapper @rocketgirlmd @tmprowell @statnews @DrSusanLove @HaroldWimmer @jeffrossen I guess I am naive, but I am still stunned our cancer centers haven't been out there publicly advocating for us.This is truly the hunger games.