Stephen

Hubbie @jkbmedic. Retired Director of Nursing. Medallist of the Order of the British Empire (he/him)

[Stephen @stejs9]

If you only RT one tweet today, please, let it be this one.

#RIPRobinWilliams #RobinWilliams

[Stephen @stejs9]

@grantmathieson Gorgeous

[Stephen @stejs9]

Watching the coverage on @BBCNews - as a former Railway Chaplain I’m sending my thoughts and prayers to the passengers involved, their loved ones and former colleagues @BTP & @LNER following last night’s attack.

[Stephen @stejs9]

@AlexHynes And to you x

[Stephen @stejs9]

@TheBookshopMan Happy birthday gorgeous x

[Stephen @stejs9]

@liam43102 You don’t look a day over 39! Lol

Happy birthday x

[Stephen @stejs9]

@NigelBradbury77 Good good .

[Stephen @stejs9]

@NigelBradbury77 Hope it went ok?

[Stephen @stejs9]

@NigelBradbury77 Happy birthday handsome x

[Jon Stone @jonstoneneuro]

More to come on online stigma, as well as anti-stigma material. 30/

[Jon Stone @jonstoneneuro]

You may have also heard @dr_caoimhe_mc presenting the huge joint effort exploring FND as a feminist issue at the recent @fndsociety meeting in Verona. https://t.co/JcIVd5Cy5f 29/

[Jon Stone @jonstoneneuro]

This is one paper in a PhD from @dr_caoimhe_mc on stigma and FND. Another paper exploring how stigma unfolds over time in FND has also been published recently. https://t.co/6jesUetLNy. 28/

[Jon Stone @jonstoneneuro]

Conclusion. Stigma drives lack of care for patients. Institutional changes, training, research and patients and health professionals working together are likely to help make FND legitimate & visible. 27/

[Jon Stone @jonstoneneuro]

The growing number of patient-led FND charities worldwide, health professional organisations such as @FNDsociety, increasing research, changes in curriculae and FND service pathways are all positive steps. 26/

[Jon Stone @jonstoneneuro]

There is evidence that stigma can be challenged and overcome. Studies show that having a shared understanding of FND, giving time, a clear care plan, & empowering the patient with a tailored, legitimate explanation that they could share with others were some key points. 26/

[Jon Stone @jonstoneneuro]

But it's not all gloom and doom.

Stigma in FND can be overcome. 24/

[Jon Stone @jonstoneneuro]

“Society knows nothing about this, which is the huge problem, and automatically people are assumed to be malingering” - Healthcare professional, South Africa, (Fouch´e et al., 2019). 24/

[Jon Stone @jonstoneneuro]

9. Care access and inconsistencies: Globally, stigma itself is a major barrier to service access & development. Poor care is a bigger problem in low-middle income countries, but worldwide there is a deficit in clinicians who have the perceived expertise to treat FND. 23/

[Jon Stone @jonstoneneuro]

“Well, I don’t feel competent or skilled. I just look and I think, “Oh, god, how am I going to get through this one?” - Occupational Therapist, UK (Nicholson et al., 2021). 22/

[Jon Stone @jonstoneneuro]

8. Knowledge, training and skillset.
Lack of competence, skills and teaching among healthcare professionals and knowledge in the public is invalidating for patients, and leads to patients feeling “othered” by having to explain their condition. 21/

[Jon Stone @jonstoneneuro]

“The problem we have as physios is often that consultants aren’t honest with patients about their true diagnosis which makes our treatment and explanation of symptoms more difficult” Physiotherapist, UK (Evans-Lacko et al., 2011). 20/