Stephen Fortuna

Full-time caregiver for Becca, my wife with severe ME/CFS, POTS, Neuropathy, etc. Co-producer “What Doesn’t Kill You” (Coming 2027).

[Stephen Fortuna @stephentuna]

@ZacharyGrinDPT Sorry, when you said “this is a direct result of…” and then made up three random reasons that had me thinking you enjoyed speculation. I replied because you didn’t name the #1 driver.

And I mostly agree, but with these diseases specifically, under-validation is the bigger issue

[Stephen Fortuna @stephentuna]

@seanstidston Thanks for sharing Sean! We’re also currently gathering self-tape interviews from the community. We use them in montages at various points throughout the doc, whenever we want to double down on a point or show the vastness of these diseases. https://t.co/V16nmb1lfJ

[Stephen Fortuna @stephentuna]

@JackHadfield14 @daniel38608 I don’t know if this is totally reflected on the page, but they agree with you. And the entry point for pharma only exists after a diagnostic test. They’ve purposefully located themselves in MA near major pharma players and meet with them. https://t.co/5xNRVFPEw6

[Stephen Fortuna @stephentuna]

@daniel38608 If you could pick, what do you think is the right org to mobilize around?

[Stephen Fortuna @stephentuna]

@JackHadfield14 @daniel38608 Have you read about PolyBio’s approach to this? We interviewed them recently, I think they have the right model.

[Stephen Fortuna @stephentuna]

@davieball Hey, my sample kit had no return mailer or instructions and I can’t get ahold of anyone. Can someone please reach out?

[Stephen Fortuna @stephentuna]

@saintlennybruce @PlzSolveCFS Unrest is an incredible film!!

[Stephen Fortuna @stephentuna]

@ValeBodi @Sabrina_Poirier @PlzSolveCFS That means a lot! I hope the patients who participated will make you feel represented, lots of incredible humans involved 🙏

[Stephen Fortuna @stephentuna]

@docsimsim @PlzSolveCFS The amount of suffering is unimaginable. I’m so sorry.

[Stephen Fortuna @stephentuna]

@sunsweptforest @CaroleBruce17 Yeah, you’re right, the title sacrifices some clarity in an attempt to be clever. If they watch the full film though they’ll get it. :)

[Stephen Fortuna @stephentuna]

@MEFoggyDog Really appreciate you sharing

[Stephen Fortuna @stephentuna]

@brailemom Thanks for sharing!

[Stephen Fortuna @stephentuna]

@TanteRos Really appreciate you sharing 🙏

[Stephen Fortuna @stephentuna]

@Dfrizz007 @MECFScomrade Great to connect here too my friend. Wishing you all the best

[Stephen Fortuna @stephentuna]

@lcbarbarian Open to feedback Dave! I think it’s ok for “ME” and “Long COVID” to share a sentence in a trailer. We distinguish between them in the film and are more sympathetic to the scientists who aren’t lumping them together.

[Stephen Fortuna @stephentuna]

@Dfrizz007 @PlzSolveCFS @MECFScomrade The current edit has several clips from her interview, I get emotional whenever she’s on screen!

[Stephen Fortuna @stephentuna]

@KatarzynaMuller @PlzSolveCFS Thanks Kathy, excited to share with you and others soon

[Stephen Fortuna @stephentuna]

@Sabrina_Poirier @PlzSolveCFS Thanks Sabrina, appreciate you and everything you do

[Stephen Fortuna @stephentuna]

@TahirihWalsh @saffronandsky @PlzSolveCFS Thanks Tahirih! Hang in there 🙏