Stop The Bleeding

We are working in partnership with @LindAlliance to identify research priorities for patients, carers and clinicians in the field of #bleedingdisorders.

[Stop The Bleeding @StopbleedingUK]

The official report of @LindAlliance Priority Setting Partnership for people living with inherited and acquired #bleedingdisorders is now freely available here ➡️ https://t.co/q5S5M1J8ff @OfficialNIHR @HaemoSocUK @haemnet @ITPSupportAssoc @NCTcharity @PulseInSync @HCDEconomics

[haemnet @haemnet]

.@Debra_PollardRN introducing the research priorities in Haemophilia established by the @StopbleedingUK group working with @LindAlliance.

Are the opportunities for #nurses to take a lead on researching some of these topics?... perhaps in collaboration with physios too

[Haemophilia Society @HaemoSocUK]

From 2015-2018 The Haemophilia Society worked with charities, clinical experts and patient reps to identify the top 10 questions that need to be answered by research.

The final report is now published here: https://t.co/aoc9uJZZYg
#BleedingDisorders #Research ⁦@LindAlliance⁩

[Stop The Bleeding @StopbleedingUK]

The latest @LindAlliance newsletter is out now! Includes commentary from our Steering Committee member @TheWoollard about the Priority Setting Partnership experience 👇 @NIHRresearch @HaemoSocUK @haemnet @ITPSupportAssoc @NCTcharity @HCDEconomics @PulseInSync #bleedingdisorders

[James Lind Alliance @LindAlliance]

Here's the latest roundup of news from the JLA https://t.co/27fkZRH5ef Two new advisers, an Advisory Group, a new video, examples of research funding of priorities, and more...

[Oxford Centre for Haematology @OxfordHaem]

Well done to all involved in this important step towards patients with bleeding disorders driving future research into their conditions @LindAlliance @StopbleedingUK @HaemSocUK @ITPSupportAssoc

[Stop The Bleeding @StopbleedingUK]

We’re delighted that our article on the top 10 research priorities in #bleedingdisorders has been published in the official journal of @BritSocHaem ➡️ https://t.co/S8zAQKrTcw @LindAlliance @OfficialNIHR @HaemoSocUK @haemnet @ITPSupportAssoc @NCTcharity @PulseInSync @HCDEconomics

[CitySprint @CitySprint_UK]

Lovely to see the hard work by @shapiro_susie @ITPSupportAssoc @HaemoSocUK @LindAlliance @StopbleedingUK finally published. It’s a great pleasure for our team to have been involved in such an important piece of research. #UKHCDO

Read more here > https://t.co/AGDJmVDQCy

[Susie Shapiro @shapiro_susie]

Many thanks to all the patients, carers and health care professionals who participated in developing the top 10 research priorities in bleeding disorders @LindAlliance @HaemSocUK @ITPSupportAssoc @StopbleedingUK #UKHCDO @OxfordHaem https://t.co/hXadEysuKR

[David @DStephensen68]

TOP 10 Research Priorities presented at #EAHAD2019 Partnership between patients @HaemoSocUK @ITPSupportAssoc clinicians and @LindAlliance @StopbleedingUK

[Laurence Woollard @TheWoollard]

Couldn’t make today’s meeting but @StopbleedingUK has been a wonderful example of how patients, caregivers, healthcare pros, researchers and policy experts can collaborate effectively for the benefit of those impacted by inherited & acquired #bleedingdisorders. #haemophilia

[Stop The Bleeding @StopbleedingUK]

Members of the #StopTheBleeding steering group gathered today for the final meeting ahead of publishing our list of the most important unanswered research questions for people living with inherited and acquired #bleedingdisorders. We’re excited to share the results! @LindAlliance

[Stop The Bleeding @StopbleedingUK]

We wish to thank our expert Steering Group & workshop participants for their amazing involvement 👏 This has been a truly collaborative effort with representatives from patient groups working side by side with researchers, scientists & clinicians involved in #bleedingdisorders!

[Stop The Bleeding @StopbleedingUK]

After nearly 5 hrs of deliberation yest’day, we’re so pleased to have a top 10 priority list of unanswered #research questions covering inherited & acquired #bleedingdisorders 🙌 We’ll be publishing these in due course, so keep checking our webpage for updates. @LindAlliance

[ITP Support Assoc @ITPSupportAssoc]

What a day!! Over 400 questions whittled down to 10 for research. We are so proud of everyone that attended today and all their hard work!! ITP/Haemophilia patients, doctors, nurses, carers and more!! #itpaware #stopthebleeding

[Haemophilia Society @HaemoSocUK]

The final 10 #stopthebleeding questions have been picked! We worked with inherited, acquired and maternity related bleeding groups. It took 22 months & lots of discussion. Members came from Manchester, Southampton, Essex & Northern Ireland #haemophilia #bleedingdisorders

[Haemophilia Society @HaemoSocUK]

Today is the final workshop for the #Stopthebleeding project. Our Members from across the #UK will join others to decide the 10 questions to submit for research funding. https://t.co/iqYrGlDF6j  #hemophilia #haemophilia #bleedingdisorders

[Stop The Bleeding @StopbleedingUK]

We’ve kicked off our final workshop to determine the top research priorities in the field of #bleedingdisorders 🙌 Today’s meeting is being attended by people living with a #bleedingdisorder, caregivers, scientists, researchers and clinical professionals. @LindAlliance

[Laurence Woollard @TheWoollard]

Early start for final @StopbleedingUK workshop to identify top research priorities for people impacted by #bleedingdisorders. Have 25 questions to rank ranging from psychosocial strategies to menstruation. Been 21 months in the making! @LindAlliance #haemophilia #hemophilia

[Stop The Bleeding @StopbleedingUK]

*LAST CHANCE* to help us shape future #research for people living with #bleedingdisorders - #survey ends at midnight! Tell us your priorities 👉 https://t.co/FGLzPC8Sc5 @LindAlliance @OfficialNIHR @HaemoSocUK @haemnetcharity @PulseInSync @ITPSupportAssoc @HCDEconomics @NCTcharity

[Dr Kate Khair PhD @katekhair]

This survey is closing soon .... please reply if you haven’t already more nurses responses needed @haemnetcharity https://t.co/QeVT1EeTs5