Eric Valor

An average man surviving ALS; an extraordinary disease.
Executive Director SciOpen Research Group
Board Member Team Gleason
Scientist
Self-taught in all skills

[Eric Valor @surfiving]

I was hoping to reach 600 downloads of my book "Hamachi Eyes" by the New Year. I just looked and I am now at 616! Wow! Thanks for all your support! I hope everyone enjoyed & feel free to comment on the page. https://t.co/ufW0TR21XW

[Eric Valor @surfiving]

@pwallach87 Nazare is the real deal. It's a huge mushburger, fortunately! But the men & women who do tow-in there (absolutely no way you you can paddle into one going that fast) build up so much speed that dislocations of shoulders & breaks of ribs. Get to the shoulder fast!

[Eric Valor @surfiving]

@pwallach87 Better late than never! My mission in Life is to show anyone, living with ALS or not, can overcome any obstacle. Some people just have a rougher go of it than someone else.

[Eric Valor @surfiving]

@natalietran Better late than never! My mission in Life is to show anyone, living with ALS or not, can overcome any obstacle. Some people just have a rougher go of it than someone else.

[Eric Valor @surfiving]

https://t.co/xMADIq11VE

Tobii "strongly disagrees", says merger would "increase innovation", "benefiting users".

Oh, so innovative: Buy the competition *JUST* to kill the product like w/ ERT & Dynavox? Time for an anti-monopoly lawsuit.

[Eric Valor @surfiving]

@ArrestALSNow @DrOzdinler @alsadvocacy @NEALSConsortium Aye... I really miss Rob and Ben. They were my "partners in crime" for my Oral Sodium Chlorite analog to Neuraltus' intravenous NP001. Rob helped me plan it & I think Ben found the source for the NaClO2. Ben announced too soon before I determined safety on myself.

[Eric Valor @surfiving]

@NgoShyuan @ArrestALSNow @DrOzdinler @alsadvocacy @NEALSConsortium Completely understandable and yes, agreed.

[Eric Valor @surfiving]

@DrOzdinler @ArrestALSNow @alsadvocacy @NEALSConsortium And even "negative" data (data which show no effect on disease) should be published so others learn & previous blind alleys are not repeated. This saves time & money which can be devoted to more potentially fruitful research.

[Eric Valor @surfiving]

@NgoShyuan @ArrestALSNow @DrOzdinler @alsadvocacy @NEALSConsortium Check out my replies to Dr. Ozdinler.

[Eric Valor @surfiving]

@DrOzdinler @ArrestALSNow @alsadvocacy @NEALSConsortium Having more scientifically educated PALS would make your job easier in presenting data & most likely increase enrollment in clinical trials because we would understand the urgent need & understand the social compact which trials entail.

[Eric Valor @surfiving]

@DrOzdinler @ArrestALSNow @alsadvocacy @NEALSConsortium The simple solution is to STRONGLY discourage "unpublished data" & make sure they are published in Open Source journals like @PLOSONE so people w/o institutional subs can access without resorting to drastic means. That would make many more "educated" PALS.

[Eric Valor @surfiving]

And where does s/he grow them? (yes, there were a few female pirates in history)
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In the gAHRRRden!

[Eric Valor @surfiving]

What's a pirate's favorite thistle?
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AHRRRtichoke!

[Eric Valor @surfiving]

@TheSeaRose I'm down with hotdogs and cheese (and drag it through the garden..!)

But in Cheerios? I am certain there's a Biblical dietary law against that in Leviticus somewhere.

[Eric Valor @surfiving]

My answer to If you had the ability to permanently eradicate one disease from our world, what would it be? https://t.co/fCOcVEMaD6

[Eric Valor @surfiving]

@rmattila74 Aye. I was fed the same corn syrup candy with a multivitamin mixed in. I had 38 years of life without Type 2 Diabetes, & that "formula" poison nearly killed my pancreas & liver. Today I have to watch my glucose & take diabetes medication. Standard formula ruined my health.

[Eric Valor @surfiving]

My answer to What is the biggest shock you ever received at a doctor or hospital visit? https://t.co/aCyA54scc4

[Eric Valor @surfiving]

@soledadobrien I am disabled from #ALS and I would LOVE to be able stand long enough for my feet to ache. I haven't had that joy for 12 years. Instead, my entire body aches from disuse and the cramps from the motor neurons misfiring. This is offensive to me for good reason.

[Eric Valor @surfiving]

@SteveGleason #ALS was certainly my most insurmountable obstacle, & one which created my largest opportunity to grow. I found Buddhist lessons from my reading about the current Dalai Lama very helpful.

[Eric Valor @surfiving]

@NgoShyuan @LeonardvandBerg @AmmarAlChalabi @Fred_Steyn @rpavaneijk Hey! Right on, Dr. Ngo! Can't wait for the results!

My most hearty congratulations!