Amazing performance from Team Unity Synchro Pre Juvenile during the first intermission of the @tavistockbraves game on Friday night! Best of luck the rest of the season in your competitions. #LocalSports#TeamUnity@PJHL_Official@BLanger19
https://t.co/XSkFaSxxwp
Are you looking for a change? Want to work in a fun supportive environment? Come join our team. Even if you think you are inexperienced or overqualified, we would love to chat. DM or email today to start the conversation.
GRIT Engineering, a female-led Stratford engineering firm, won service professional of the year at the Ontario Home Builders' Association's annual members meeting this week @BeaconGalen https://t.co/UWrOFNUc6r
Pulmonary exacerbations are common in people with cystic fibrosis. From 2018 to 2022, there was a decrease in children and adults who were treated with intravenous (IV) antibiotics.
Explore more trends in the Patient Registry Highlights Handout: https://t.co/IUt2p6rQGc
Canada needs to do better!! We cannot continue to lose patients due to a system that seems to be designed to provide barriers to access to lifesaving therapies.
One more example of patients suffering the consequences of not having the #raredisease drug strategy implemented.
Positive clinical trends seen in the 2020 and 2021 CF Foundation Patient Registry were sustained in 2022, with continued improvement in lung function. Lung function is a primary indicator of health for people with cystic fibrosis. Read more highlights: https://t.co/IUt2p6riQE
Giving a new cystic fibrosis medication to a pregnant woman who carries the gene for the disease was unexpectedly beneficial for her fetus, a Stanford Medicine team found.
How a Cystic Fibrosis Drug Given Prenatally Changed the Lives of One Family https://t.co/hveR7BfYft
The results are in!
Your generous support of our 10th annual #Farwell4Hire fundraising campaign has helped us raise more than $200,000 for #CysticFibrosis research in 2023, bringing our overall total to more than $1.2-million. I'm overwhelmed with gratitude. #curecf
The Municipality of North Perth has been made aware of two incidents at a local business, involving vandalism and mischief of Pride flags and private property. Read our full statement on the North Perth website: https://t.co/7OZS8M8uWk
Happy Father’s Day to all the dads out there — but especially the dads with cystic fibrosis who have overcome a brutal medical diagnosis and the infertility that comes with it to become parents.
You guys are the real dudes.
It's not often that the #Farwell4Hire campaign continues so deep into June. Today, I take a moment to pause and remember why I'm doing it. Twenty-nine years ago, my sister Sheri lost her battle with CF. I refuse to quit until we have a cure. And we're close. My god, we're close.
My 10 year college reunion is next weekend. At the time it felt like graduating from BC would be the only milestone I'd achieve in my life. I was hospitalized a few months after graduation and set down a path towards certain demise. It was really scary!
Then my 5 year reunion rolled around. I had just started on the Trikafta clinical trial and was only starting to realize how my life would change.
Now, my 10 year reunion is jammed between work trips to Ohio, Philly, SF, DC and a family trip to Vermont.
When I graduated from school, I lacked the physical strength to leave home for more than a few hours. Now... it's just so different. Amazing how things change.
I suppose some (most?) college graduates aren't looking that far out from graduation... I certainly wasn't. I couldn't because I didn't let myself look to the future. There was no future... only sickness.
Looking back, it's amazing how wrong I was... and how things have changed. Maybe there's a lesson in here somewhere. Maybe not. But all these years later, I can confidently say that no matter how terrible things get... they can get a hell of a lot better when we least expect them to.