TANDconsortium

Empowering families through technology:
TANDem is an international multi-disciplinary project involving multiple stakeholders from the TSC community.

[TANDconsortium @TANDconsortium]

TANDem: an international multidisciplinary mobile-health project focusing on TAND in Tuberous Sclerosis Complex. Let’s empower families and individuals living with TSC!
https://t.co/FDv4JuP5Mn

[TANDconsortium @TANDconsortium]

📢 NEW PAPER Our International Consensus Recommendations for #TAND have been published in JNDD and are freely available online! Please share and RT widely 🎉🌎 @jansen_ac @UKTSA @tscalliance @K_B_Foundation

https://t.co/dvkGnuTevr

[TANDconsortium @TANDconsortium]

Delighted to announce that @jansen_ac was awarded the 2023 Manual R. Gomez Award, which recognises the work of individuals who have made a significant research contribution to the field. Congratulations - so well deserved! 🎉
📍@tscalliance International TSC Research Conference.

[TANDconsortium @TANDconsortium]

📢 NEW PAPER ALERT. Our paper on the development and feasibility of the TAND-SQ is now freely available to view online - published in Pediatric Neurology. @tscalliance @UKTSA @K_B_Foundation

https://t.co/00ERuQsYOa

[TANDconsortium @TANDconsortium]

⏰ Less than one week to go! Don’t forget to register to receive the zoom link for this free online event focused on TAND research.
➡️ Open to all students, researchers, clinicians and professionals! @tscalliance @ETSCAssociation @UKTSA #tuberoussclerosis #TAND #TSC

[TANDconsortium @TANDconsortium]

📣📣 See registration details below to attend our free online #TAND #minisymposium taking place on the 29th June 2.00 - 4.30 pm CET. We look forward to seeing you there! @UKTSA @ETSCAssociation @tscalliance

[TANDconsortium @TANDconsortium]

🚨 DEADLINE EXTENDED. 250 word abstracts to be submitted by FRIDAY 19TH MAY - study protocols, case studies, literature reviews. Submissions from early career researchers encouraged. Please RT ➡️ #tuberoussclerosis #TSC #TAND #TANDem

[TANDconsortium @TANDconsortium]

🌎 On TSC Global Awareness Day @tscalliance @ETSCAssociation @UKTSA we celebrate the power of research in partnership with TSC families #TuberousSclerosis. 🎦 Watch this short movie to learn more about the #TANDem project https://t.co/HG1HmQnGSa

[TANDconsortium @TANDconsortium]

🚨A reminder that the deadline to submit abstracts for our TAND mini symposium in June closes THIS MONDAY at 5pm CET. Study outlines, reviews and protocols from ECRS welcome. Please RT and share widely! #TSC @UKTSA @tscalliance

[TANDconsortium @TANDconsortium]

Accepting abstracts for this year’s #TANDsymposium in June - to be submitted by 15th May 5pm CET. ⬇️ Please share and RT - research from ECRs strongly encouraged. @tscalliance @UKTSA @TuberScleroNews @EpilepsyRUK

[Marinus @MarinusPharma]

Make sure to find us at the 2022 @TSCAlliance World Tuberous Sclerosis Complex (TSC) Conference, an important event bringing together members of the TSC community to share the latest on research and treatment.

[Anna Jansen @jansen_ac]

Powerful testimony of life with TSC & Inspiring session on TAND and the power of global collaboration #WorldTSCConference @TANDconsortium @tscalliance #beTSC

[TSC Alliance @tscalliance]

Tonight during the opening of the 2022 World TSC Conference, the @RK_BhatiaFDN announced a new collaboration with the @tscalliance to better address TAND. The $2.5 million gift is the largest single donation in the TSC Alliance's history.

Learn more: https://t.co/MRleoZqOXx

[The Notorious EEG (M. Scott Perry MD) @TheNotoriousEEG]

Congratulations to @KariRosbeck for receiving the Gomez award from
@tscalliance! No one deserves more praise than the patient advocate and leader who has moved the needle for people with #TSC more than anyone before!! 👏👏👏

[TSC Alliance @tscalliance]

We hope YOU will be able to join us at the 2022 World TSC Conference in Dallas, TX July 28-31! Early bird registration ends June 30.

Register now: https://t.co/FC9IhGlCtI

Learn more: https://t.co/Sz0W9rW6R4

#worldTSCconference

[Steven Roberds @StevenRoberds]

RT @tsalliance: Here’s a #worldTSCconference update from Dr. Martina Bebin of @uabmedicine on the PREVent Trial for infants with TSC at risk of #Epilepsy

[Kari Luther Rosbeck @KariRosbeck]

Amazing participation at the TSC Clinic Directors Meeting helping kick off the #WorldTSCConference @tscalliance

[Lisa Henske @LisaHenske]

So happy to be at the #worldtscconference with so many friends and colleagues. Thanks to @tscalliance for making this possible! Families and affected individuals are connecting with each other and with scientists and clinical leaders.

[TANDconsortium @TANDconsortium]

3.45 - 4.20 Theme 3 - qualitative and intervention based research
4.20 - 5.00 open discussion and closing remarks

➡️Registration for the event is still open: https://t.co/MbuAFyAB8g

[TANDconsortium @TANDconsortium]

☂️ TAND MINI SYMPOSIUM PROGRAM
2.00 - 2.30 welcome by Petrus de Vries, @jansen_ac, Stephanie Vanclooster and @BissellStacey
2.30 - 3.00 Theme 1 - preclinical research
#TAND #webinar #research #TSC

[TANDconsortium @TANDconsortium]

3.00 - 3.30 Theme 2 - clinical research