The Dash Alliance

We connect the dots in rare.

[The Dash Alliance @tda4rare]

We know that the disconnects b/t stakeholder groups when it comes to collaboration hinders #raredisease progress for the whole community. That’s why we’ve created #ResourceRare, a multi-functional platform designed to foster collaboration across disease groups. DM for an invite.

[TheRareFair @therarefair]

Don’t miss this informative panel as we discuss #sharenting with @RareRevolutionM. Where is the line between sharing about your child’s #raredisease diagnosis to raise awareness and invading their privacy? Join us as we look for the line and address what to do when it’s crossed.

[TheRareFair @therarefair]

Join us at the 4th annual #RareFair, the original virtual event for the #raredisease community. Don’t miss this encore panel of #raredads like ⁦@malezebra20202⁩ as they discuss rare fatherhood. #rarefair2022 #rareunited

[The Dash Alliance @tda4rare]

#24hoursofrare is back! Join us as we cross the globe time zone by time zone to highlight the best in #raredisease!

[The Dash Alliance @tda4rare]

@mycitymed is now “The Dash Alliance” for rare disease collaboration. Check us out at https://t.co/ksQrBucPe5

[The Dash Alliance @tda4rare]

#NewProfilePic

[The Dash Alliance @tda4rare]

Join us now for this important panel with @combined_brain, @globalgenes, @ChildrensPhila, @ORDIndia. #24hoursofrare #registries #bigdata

[The Dash Alliance @tda4rare]

⁦@cherubs⁩ very own Dawn Ireland on collaboration between nonprofits in #raredisease at #24hoursofrare! Live now on main stage.

[Breaking Down Barriers @BarriersDown]

Fantastic to see over 30 organisations working together for change. Making sure health services are equal for all communities. Kerry discussing these barriers at #24HoursOfRare hosted by @MyCityMed

[The Dash Alliance @tda4rare]

Don’t miss @ABatemanHouse, Alix Hall, @Naomilitchfiel2 and Ollie’s Army on the main stage. Registration is still open https://t.co/l0HzKcCdfQ.

[The Dash Alliance @tda4rare]

@cvonraesfeld @AllofUsResearch And all available on instant replay, too!

[The Dash Alliance @tda4rare]

Join @cvonraesfeld and @AllofUsResearch for a fantastic presentation on the #allofus database, a NIH initiative, today at 2p ET!

[The Dash Alliance @tda4rare]

@AS_UK @BarriersDown @KerryLeeson is such a driving force for change!

[Breaking Down Barriers @BarriersDown]

Not long to go, until Kerry will be discussing 'Cultural Barriers Impacting Access' at the #24HoursOfRare event hosted by @MyCityMed
2:30pm TODAY
@pccorry @RareRevolutionM @rarediseaseuk @findacure_fdn @camraredisease
There is still time to register 👇👇
https://t.co/NmxVzJ9kJW

[The Dash Alliance @tda4rare]

@cvonraesfeld @AllofUsResearch @RepCarbajal @RepZoeLofgren @RepJudyChu @RepBrownley @RareAdvocates @EveryLifeOrg @missionempathy @AllofUsCA We are so lucky to have you!!

[Beacon for Rare Diseases @RareBeacon]

TODAY at 4pm🔔

Naomi Litchfield of @bionicalemas is hosting a panel at the #24HoursofRareEvent!

Naomi will be discussing: What are the #Ethical Preapproval Considerations for #Rare #PatientGroups?

Register for FREE now!

👉https://t.co/llBtGZuRCo

[The Dash Alliance @tda4rare]

Dr. Veeral Shah of @CincyChildrens speaking on developments in pediatric neuro ophthalmology and advice for med students. “You never stop learning because life never stops teaching.” #24hoursofrare

[The Dash Alliance @tda4rare]

@Purrfectly_Rare They can ask questions in the platform so other attendees can see - will “feed” them to you!!

[Marni Cartelli @Purrfectly_Rare]

Tomorrow 9am=my session on "Collaborative Physician & Patient Relationships in the Treatment of Pain"...
Unless u didn't like it, then that was someone else in it 🤣

Huge thanks 2 @MyCityMed 4 hosting #24hoursofrare & providing such diverse programming 4 the #RareDisease comm.

[The Dash Alliance @tda4rare]

⁦@Purrfectly_Rare⁩ discussing collaboration between patients and physicians in the treatment of pain at #24hoursofrare
Registration is still open!