Top Tweets for #RareFair
Sat on a panel @RareRevolutionM #RareFair!
We shared about a collaboration between @trendcommunity and @AvadelPharma to amplify the voice of those with #narcolepsy.
Honored to share the stage with Jennifer Gudeman, Maria Picone, and the incomparable @DAMMGoodSleep
#SleepPeeps
@RareDiseaseDad Happy to connect you with a former keynote speaker we had at the first #rarefair. @clairebidwell is a grief expert and a trusted resource.
This year's 4th annual #rarefair includes a day just for the kids! #rarefairjunior was created by Cambria Lord, #raredisease patient & advocate, plus a team of amazing kids impacted by rare. No cost to attend. https://t.co/YgH7vCICCh
Join us at the 4th annual #RareFair, the original virtual event for the #raredisease community. Don’t miss this encore panel of #raredads like @malezebra20202 as they discuss rare fatherhood. #rarefair2022 #rareunited
@NeenaNizar Agree 100%. That’s why this year’s #rarefair features #Rare72, our new virtual hackathon model to source collaborative solutions. Free signup at our site - all #raredisease stakeholders welcome.
Our founder and CEO Dr. Femida Gwadry-Sridhar was invited by Eden Lord to be a panelist at the #RareFair. We are honored to have this opportunity to share our expertise and experience on "Rare Tech: Rare Diseases & Evolving Technologies. #pulseinfoframe
Are you considering an evidence generation platform for your rare disease foundation? Join Dr. Femida Gwadry Sridhar our founder and CEO to learn about the latest technology and standards as well as ways to "future proof" your registry. Join us at the #RareFair, 9/2 @ 1:00.
I am very excited to join a panel at the #RareFair next week discussing the media, podcasting, and getting the voices in the #RareDisease community heard. Thanks for the invitation, @MyCityMed and @emlord! #HCLDR #HITMC https://t.co/uYq7CAI4sX
#RareFair has been virtual LONG before #SARSCoV2!! #VirtualConference Come one and all! @wegohealth @_OurOdyssey_ @nextstepfund @PatientWorthy
Join The Rare Fair next week where our own Lisa Deck, The World of Rare Disease host, will share on the Media panel with Bo Bigelow from the Rare Disease Film Festival and Rebecca Stewart of Rare Revolution!
The #RareFair is coming! On September 1st and 2nd, @MyCityMed will host the only 100% virtual, 100% inclusive event for the rare disease community for the 3rd year in a row. Join us!
Hey @MyCityMed Just ran into @backpackhealth at #rnecon19 and thanked him for supporting the #rarefair #strongertogether #RareDisease
@RarePOV @MyCityMed None of this happens without support from partners like @retrophin and participation from advocates like @Purrfectly_Rare @Rose_of_Sharon8 @Rose_of_Sharon8 @NeenaNizar @RareAdvocacy @GlobalGenes @lbdeck @RachelleM_Dixon @livinlavidalopo and so many others!
Agreed! Way to go @emlordd and @MyCityMed ! What an excellent conference. I only caught half of it but love the option of having thirty days to watch the rest of the videos! #therarefair #RareFair
No one worked harder this week than @emlord & her husband Jeff of @MyCityMed who hosted #therarefair to make resources available to #raredisease patients, caregivers, medical students & stakeholders from around the world. I appreciate their dedication to the rare community. 👏🏻 👏🏻
@InsomniaDoodles is doing a twitch stream of Rare Fair which you can view at https://t.co/V79lDQyGxJ #RareFair #RareDisease #RareDiseases #twitch #stream #rarefair2019 #rarediseaseadvocacy #advocacy
The findings from natural history studies not only improve the understanding of a disease, but also the trajectory of clinical development. #WelcomeToTheTable #RareFair
Noproblem. I just came back and looked at the rest of the conversation. An issue I have in common with u is the loss of a real job. So challenging emotionally 2 deal with. We’re lucky to have patient advocacy to turn to but imagine this is common with #theother50% #rarefair
@lbdeck Thanks for joining in, sorry for the late start! @MyCityMed
Perfect way to learn and connect with the #raredisease community by accessInc @therarefair by @MyCityMed at home with my coffee! #rarefair
@NeenaNizar @MyCityMed @ncdawn @RareAdvocacy My father tried to teach me it was okay to say NO...I didn't listen...sorry Dad. But it is an important lesson to learn...it is not rude or inappropriate.
#RareFair
#rarefairI love the accessibility of the #rarefair @MyCityMed I'm watching @ncdawn talk about starting a nonprofit and sustaining success! @RareAdvocacy
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