The CVI Project

The CVI Project hopes to improve lives for children with brain-related visual problems. University of Bristol Research Project. Tweets by @AnnaSPease

[Prof Rachel Pilling @miss_pilling]

So far I’ve counted three presentations on cerebral visual impairment and special need eye care in this years @BCOVS2021 programme, Thanks for helping us spread the word.

[The CVI Project @thecviproject]

Message from Prof Williams: "Thanks all for such kind comments - and to all my lovely colleagues without whom nothing would have been possible. Onward!"

[The CVI Project @thecviproject]

We are SO EXCITED to let you know that our marvellous boss and PI Cathy Williams has been promoted to Professor! We couldn't be happier for her and all she has achieved! 🥳👏🍾🥂✨👩‍🎓

[The CVI Project @thecviproject]

@SophieRose98 Congratulations, Sophie! We will be cheering you on! 🥳

[Prof Rachel Pilling @miss_pilling]

Yes ⁦@guidedogs⁩ I know lots of people like Will!
What a great initiative.
Please share widely!
⁦@CVISociety⁩ ⁦@scotlandcvi⁩ ⁦@lolaeyedoc⁩ ⁦@CaireenS⁩ ⁦⁦@thecviproject⁩ ⁦@Johnny_Ravo⁩ ⁦⁦@drdamoeyes⁩ ⁦@SeeAbility⁩

[The CVI Project @thecviproject]

Our new paper offers parent and child perspectives of living with CVI - highlighting the need for better awareness in education and health: https://t.co/uYQAKeSJ1H

[Great Ormond Street Hospital Eye Department @GoshSight]

We were delighted to have #CathyWilliams talk to us this morning on #CVI and her important work on improving outcomes for affected children and families - we’ve been so pleased to be able to support this study!
⁦@BristolUni⁩ ⁦@uhbwNHS⁩ ⁦@NIHRresearch⁩

[The CVI Project @thecviproject]

Thank you so much to everyone who showed an interest and got in touch! We have some really great feedback and are making changes accordingly!

[The CVI Project @thecviproject]

CALLING PARENTS/CARERS OF PRIMARY SCHOOL CHILDREN! We need opinions on using NHS/education data in research, using 'opt out' rather than 'opt in' consent! Please DM us your email if you could look at an info sheet and send us your thoughts! Vouchers available to say thank you.

[The CVI Project @thecviproject]

Please retweet/share with any parents or carers of primary school children, thank you!

[The CVI Project @thecviproject]

CALLING PARENTS/CARERS OF PRIMARY SCHOOL CHILDREN! We need opinions on using NHS/education data in research, using 'opt out' rather than 'opt in' consent! Please DM us your email if you could look at an info sheet and send us your thoughts! Vouchers available to say thank you.

[The CVI Project @thecviproject]

@nicmcdowellnz Congratulations, Dr McDowell!! From all of us here at the CVI Project ❤️🌻

[Mac Keith Press @mackeithpress]

How do children with #CerebralVisualImpairment see? An important study of #CVI-related vision problems
@thecviproject @AnnaSPease
https://t.co/DYLFS0DSp6

[The CVI Project @thecviproject]

We've had a website refresh! Please check out https://t.co/CPNQVHuiIH 🥳

Many thanks to Hanna at https://t.co/F0QkMDZPZY for all her hard work making it look beautiful!

[The CVI Project @thecviproject]

We are very pleased that the protocol papers for our #CVI feasibility study are now published in @BMJ_Open Trial: https://t.co/7IfyWZ7JG5 Process evaluation: https://t.co/duCPRlixUV

[Corinna Bauer @Corinna_M_Bauer]

Fantastic Conversation about CVI with @katvancleef and @Johnny_Ravo. https://t.co/4t56mJ1DlT
Looking forward to reading Kathleen's pre-print publication on early qualitative signs of CVI!

[CVISociety @CVISociety]

@thecviproject @scotlandcvi Agreed, we pick up the pieces created by this situation, much heartache could be avoided through earlier identification and swift support. This is particularly upsetting when children are in known, ‘high risk’ groups.

[The CVI Project @thecviproject]

We hear this far too often from families, sadly. We must keep researching and raising awareness together to make sure that all children with CVI have access to the support they need. @CVISociety @scotlandcvi

[Kendra 🍉🇵🇸 @kendrafeliciter]

@miss_pilling @scotlandcvi @SeeAbility @LisaOptom @Johnny_Ravo @thecviproject @CVISociety @AndrewBlaikie @PlusTwoFifty I so wish it had been mentioned in the NICU to us. The only focus was ROP, which my son did not have, so we were made to think his vision was not a concern. We could have implemented CVI strategies so much earlier if we’d known...

[The CVI Project @thecviproject]

Our feasibility trial follow up data collection is underway! So grateful to the schools and families for sticking with us through so many changes. Online parent questionnaires are coming in every few seconds! #CVI #FeasibilityRCT #Intervention

[The CVI Project @thecviproject]

@scotlandcvi @nicmcdowellnz Keep us posted!

[The CVI Project @thecviproject]

@nicmcdowellnz @springloadnz Best of luck Nicola!