The Endometriosis Coalition

The Endometriosis Coalition works to raise awareness, promote reliable education and increase research funding for endometriosis • 501(c)(3)

[The Endometriosis Coalition @theendoco]

Happy Endometriosis Awareness month! Our goal this year is to spread accurate information about #endometriosis and stop the misinformation that causes harm to endo patients.

[The Endometriosis Coalition @theendoco]

The entire community mourns her passing, and our prayers are with her loved ones. Jahmby's legacy will live on in the fight against endometriosis.  #EndoWarrior

[The Endometriosis Coalition @theendoco]

Our hearts are shattered by the loss of @JahmbyKoikai, an extraordinary endometriosis advocate for all. She was a warrior in every sense of the word. Her passion, strength, & relentless dedication inspired us all and touched the lives of so many in our community and beyond.

[The Endometriosis Coalition @theendoco]

@drbethrackow @littlewordsproj Thank you so much!

[Beth Rackow @drbethrackow]

I will proudly wear this bracelet in solidarity with my #endometriosis patients. END ENDO! Perfect sentiment. Thanks to the special patient and mother who were buying for themselves, and got me one too ❤️ #endendo #gynsurgeon @theendoco @littlewordsproj

[Project Endo @projectendo]

#Repost @megconnolly_ 🖤 ⁣

“#1in10 women have Endometriosis. I am 1 in 10.
Approximately 9 years ago, I first heard the word “#Endometriosis” and quite literally fainted (twice) in the doctor’s office. The word encapsulating the chronic illness that explained my 10+ years..."

[SWHR @SWHR]

From the patient perspective, what does @JayRishe of @theendoco want to see investigated in regards to #endometriosis?

Here more in this #SWHRtalksEndometriosis webinar clip! Watch the full conversation online this month: https://t.co/peweFR1mWf #EndometriosisAwarenessMonth

[The Endometriosis Coalition @theendoco]

Happy #InternationalWomensDay to all of our amazing warriors 👏

[The Endometriosis Coalition @theendoco]

Join us on 3/1 in NYC as we launch our official partnership with Little Words Project! Free to attend, but RSVP required here:

https://t.co/YrQuQfOZoQ

[The Endometriosis Coalition @theendoco]

📱 Link to this article: https://t.co/NgWmFwB2Cn

[The Endometriosis Coalition @theendoco]

Our Associate Director Meghan Maloof Berdellans @megconnolly_ spoke with @Verywell Health sharing her 10-year-long journey from symptoms to diagnosis via laparoscopic excision surgery.

The sooner we start treating this as a full body disease, the better off we will be.

[The Endometriosis Coalition @theendoco]

📱 Link to this article: https://t.co/NgWmFwB2Cn

[The Endometriosis Coalition @theendoco]

Our Associate Director Meghan Maloof Berdellans @megconnolly_ spoke with @Verywell sharing her 10-year-long journey from symptoms to diagnosis via laparoscopic excision surgery.

The sooner we start treating this as a full body disease, the better off we will be.

[Project Endo @projectendo]

A great opportunity to see Below the Belt for free alongside NYU medical students & faculty. You'll also have the opportunity to ask questions in a post-screening panel discussion with NYU's Division Director of Minimally Invasive Gynecological Surgery Dr. Ted Lee & Shannon Cohn.

[SWHR @SWHR]

Jenneh Rishe, BSN, RN @JayRishe and founder of The Endometriosis Coalition Inc. @theendoco shares her #endometriosis story with us:

Jenneh's symptoms first appeared at age 27. What started first as cyclical pain around her period soon became persistence and severe.

[SWHR @SWHR]

After years of countless doctor appointments, tests, and procedures, Jenneh received an #endometriosis diagnosis. @JayRishe @theendoco

It takes a full health care team of experts to diagnosis and treat endometriosis, Jenneh adds. #SWHRtalksEndometriosis

[SWHR @SWHR]

Be your own best advocate, says Jenneh. @JayRishe @theendoco

"We're told that our symptoms are normal, and they’re not. Excruciating pain is never normal. Excruciating pain that keeps you from functioning is never normal."

[SWHR @SWHR]

Jenneh @JayRishe founded The Endometriosis Coalition Inc. @theendoco to create an advocacy and support space for individuals with #endometriosis.
#SWHRtalksEndometriosis

Learn more and get involved: https://t.co/l5TXLQ73jU

[SWHR @SWHR]

Because there is no cure for #endometriosis, it is critical that individuals are empowered throughout their journey with this chronic disease. Tune in to SWHR's #SWHRtalksEndometriosis webinar: https://t.co/9fMqlMbHve

@zilahdi @JayRishe @PonceHealthSU @HopkinsMedicine @theendoco

[SWHR @SWHR]

Happening next week! Join SWHR and @zilahdi @JayRishe @PonceHealthSU @HopkinsMedicine @theendoco for an #Endometriosis webinar about the persistent gaps in disease diagnosis and treatment: https://t.co/gnbzKyf8gm #SWHRtalksEndometriosis

[SWHR @SWHR]

#Endometriosis has an average diagnostic delay of up to 6.7 years in individuals. #SWHRtalksEndometriosis

During the "Elevating Endometriosis" webinar learn more about closing these care gaps: https://t.co/7lEIk3nLoF @zilahdi @JayRishe @PonceHealthSU @HopkinsMedicine @theendoco