A moment of personal pride this week:
By Friday it will have been 2 years since the last hospital-based intervention for my cystic fibrosis. Feels like a monumental moment. I can’t remember the last time I made it 2 years… maybe elementary school?
All thanks to these two:
Exciting news! We are now the resident theatre company of @MuckCC in Fullerton where we will produce full-length plays, immersive experiences, and an intimate storytelling and concert series, on the grounds and in the beautiful 1920s mansion. Check out https://t.co/HjtWbgVhX2!
MBA ✅✅
I wish I could show my 22-year-old self this photo and tell him everything would be “just fine, better than you could ever imagine!”
Grateful for the spring board two years at the @TuckSchool is going to give me, great friendships and a hell of a lot of memories!
Such happy, happy news for young CF Warriors! Trikafta has been a life changer for our boys! #takethatCF @JoshGarberg @LukeGarberg
https://t.co/NWSzxEASpi
Happy to see @LukeGarberg and so many members of our theater family perform in @LHElectricCo’s production: ELFENEEZER SCROOGE, a family-friendly, COVID-19 compliant, drive-thru holiday theatrical experience in La Habra City Hall parking lot!
Dec 18-20. https://t.co/OGZum9frKB
@LukeGarberg will be performing in a new community show that opens this week (Dec. 18 - 20)! ELFENEEZER SCROOGE is COVID-compliant and in person (well, in your car but LIVE). Dancing elves and fun for kids of all ages! https://t.co/V2cng56Bme
Looking for some safe holiday cheer to share with the kids? Look no further than the drive-through Elfeneezer Scrooge experience in the La Habra City Hall parking lot! Tickets are available at https://t.co/HjtWbgVhX2 today! #elfeneezerscrooge
“Sunglasses are part of your uniform and you even wear them at night?
Well, here's the thing. We just never take them off.
Here’s the proof, set to our new arrangement of “Blinding Lights" by @theweeknd.
The @CF_Foundation has arranged to provide more than 10,000 home spirometers to people with #CF to support continued access to high quality, comprehensive care during the COVID-19 pandemic
Learn more here: https://t.co/B7CcBcB7nH
Vertex announced it has submitted three supplemental New Drug Applications to the @US_FDA to expand eligibility for Trikafta, Symdeko, and Kalydeco to additional rare CFTR mutations. https://t.co/Bjdwu6u3a8
Look at me TikToking without oxygen & not ready to collapse! A week ago I could barely walk a few steps without being exhausted on 3 litres of #oxygen#trikafta#kaftrio#mymiracle#cysticfibrosis I can’t dance but I don’t care 🤣
We took some time this weekend to also celebrate @JoshGarberg! So immensely proud of this kid for all of the hard work he put into making his dream a reality. What a freshman year you have had! We love you Joshua! Can’t wait to watch you in your next chapter at @USC! #takethatCF