The one part of @JNJNews's epically bad statement I agree with is the ending--about TB diagnostics. They're right. Millions go undiagnosed because diagnostic tests are ridiculously expensive. I assume this means Johnson & Johnson will join the movement to lower prices for diagnostics. I'm grateful in advance for their support. Their CEO has my phone number. I assume he'll be calling any day now.
My reply to the board members of @FishersIN and @NoblesvilleIN seeking to remove my books (and over a hundred others) from the young adult literature shelves in their libraries. Heartbreaking for this to happen in Central Indiana, where I live and strive to support.
.@pih and @msf have 12 quick questions for Johnson & Johnson.
Does the generic bedaquiline deal include children?
Can humanitarian organizations distribute generic bedaquiline?
Please, @JNJNews. TB patients everywhere need clarity! https://t.co/Lmy8vrqsKB
.@JNJNews: "Don't worry; we're using our bedaquiline profits to invest in research for TB and other infectious disease."
Also @JNJNews: "We are radically reducing spending on research for TB and other infectious disease even though we said otherwise ONE DAY AGO in the Guardian."
It's true, @JNJNews. We're starting to have feelings for you since you announced the deal to make generic bedaquiline available through the Stop TB Partnership. But we can't FULLY close this thrilling enemies-to-lovers romance until you
- Commit to the deal with GDF in perpetuity.
- Provide the list of countries that can access bedaquiline through this deal.
- Publicly acknowledge this amounts to a functional abandonment of secondary patents on bedaquiline in countries with high TB burden.
Say that in a tweet or press release, and IT'S ON.
(you know what this whole thing also is: a BIG warning to the folks who make certain TB diagnostics, for which the price gouging is unconscionable, that if they don't quietly lower prices, they will end up regretting it. That's right. We're not done. Just getting started.)
Like many intentionally confusing corporate crisis response messages, this says a bunch of things that are true but don’t mean what you think, like for example:
“On April 5, during a World Health Organization meeting, the GDF shared its intent to launch a tender for generic versions of SIRTURO® 100mg in the third quarter of 2023”
This sounds like it says “everybody can have generic bedaquiline!!” But actually they *had to allow* the production of a generic because some countries had the power and systems in place to reject their attempt to extend their patent. The generic will not be available in countries where the patent extension wasn’t rejected, just like John said in his video.
Unless that’s not the case @JNJNews!!
If you’re telling us that you will allow the sale of generics anywhere in the developing world then we will happily send thank you baskets to your entire c-suite! Please let us know! Maybe we got it wrong and you only did the arduous work of extending the patent in a bunch of developing countries for funsies!
I want to be very clear that no one is SUGGESTING that people will die because Johnson & Johnson is trying to immorally extend their patent on bedaquline an additional 4 years after its 20-year term.
Instead, people are STATING THE FACT that people will die because of Johnson & Johnson trying to immorally extend their patent on bedaquiline an additional 4 years after its 20-year term.
Hey, so we're coming to the end of Day One for the poor admin of @JNJNews. Please let your bosses know that hundreds of thousands of people are horrified and disgusted by J&J's attempt to extend their monopoly on bedaquiline, a critical tuberculosis drug.
SIX MILLION people who need to access bedaquiline will be unable to do so over the next four years unless J&J backs down. I wish I could tell the @JNJGlobalHealth admin that tomorrow will be better. But actually it will be worse. The pressure will grow.
Learn about the crisis and what you can do: https://t.co/7hJ9nncMwZ
It is hard to develop new drugs, and risky both in terms of making money and because you can end up with a lot of people mad at you (like people are right now.)
But this is a situation where evergreening a patent is simply the wrong thing to do. #PatientsNotPatents
An open letter to @JNJNews. Stop pursuing the secondary patent of bedaquiline. YOU KNOW that millions of people will be unable to access lifesaving treatment for multidrug-resistant tuberculosis if you extend the patent. YOU KNOW it violates your credo. https://t.co/JArPHWpmv5
Experience Hurling & Camogie right here in North America!
There are 180+ clubs in the USA and Canada. Find a club near you: https://t.co/E60IZ3ktp9
I just played pickle ball for the first time and it made me feel like an old. I’m fairly certain it’s the first step on the path toward eating dinner at 4 o’clock off a tray table while watching Judge Judy.
Told these bozos that they have a right to kill anyone over anything, that every feeling of anger or fear is justified and that the world is after them, and then gave them the weapons to lash out.