The gaslighting is over. @HHSgov is taking action on Lyme disease:
✅ Held a series of roundtables featuring physicians treating Lyme disease
✅ Launched a program to develop protocols for treatment
✅ Focusing on reforms for specialized diagnostics and treatments
✅ Introduced a website to help patients find Lyme disease specialists
✅ Educating doctors across the country on how to recognize Lyme disease
Today, @HHSGov is launching a major new multi-million-dollar pilot program that has the potential to transform how we prevent Lyme disease and other tick borne illnesses in America.
🚨Incredible evidence of Lyme persisting in pancreas & heart from a @LymeBiobank sample from young man who died in his 30’s. 😔
Lyme Biobank’s Liz Horn explains:
HERE WE GO.
Water testing at Henley-on-Thames revealed E coli levels 10 times above the threshold for safe bathing water.
Govt have refused an application from local community groups to become a designated bathing spot because of the low number of swimmers. I wonder why that is? 🤬
https://t.co/lsvVIRrG4q
🚨 NEW: Paper on Bartonella henselae (aka cat scratch disease): Single antibiotics often don’t cut it because the bug hides in tissues, cells lining blood vessels, immune cells, & biofilms (seen on heart valves).
Certain combo treatments (especially gentamicin + rifampin or gentamicin + azlocillin) performed better.
Important in vitro research (not proven in people yet), helps explain why some cases need combo antibiotics.
My wife has Lyme disease and other co-infections, but it doesn’t show up through standard antibody testing. You need a more expensive test to find it.
Today I asked @SecKennedy what we can do to make sure people with unexplained symptoms are getting thorough and accurate testing
🔥 BREAKING: Our new @LymeBiobank study dropped TODAY in Journal of Clinical Microbiology showing common FDA-cleared blood tests miss 64-78% of early Lyme!! Lyme Disease Awareness Month started early for us this year 💚 🧵
NHS DESTROYED A DOCTOR FOR TRYING TO SAVE LIVES
Dr Raj Mattu was a cardiologist at Walsgrave Hospital in Coventry. In 2001 he noticed something that should have been blindingly obvious to management: cramming five patients into a cardiac ward designed for four was killing people, because essential services like oxygen were being cut off.
He went to the @BBC. He named the problem. He tried to save lives.
Management's response was to suspend him in 2002 and then bury him under a deluge of around 200 complaints to the General Medical Council.
Not one. Not ten. Two hundred. Every single one was rejected.
A tribunal later found that a senior manager had openly said: "Don't worry, as far as Raj is concerned, we are not worried about a parking ticket, we want to get him off the road completely." The suspension arrived within weeks. @sharmilaxx
Dr Mattu suffered detriments on more than 25 separate occasions. NHS even hired private investigators to try to discredit him. A 2005 inquiry chaired by Andrew Stafford QC recommended he be reinstated. Management ignored it.
He was finally dismissed in 2010. The tribunal process ran for six months and produced a 400-page judgment. The total legal cost to the @NHS is estimated at over £11 million in taxpayers' money. Coventry Live All to silence one doctor who told the truth.
He was eventually awarded £1.22 million in compensation. The managers who orchestrated the campaign mostly remained in post. David Loughton, the CEO who oversaw the whole thing, is now a CBE.
I know a fraction of what Dr Mattu went through. In 2024 I was the target of 3 fabricated complaints. Three. And even that was enough to make me understand exactly how this weapon works. You do not need evidence. You just need volume, institutional backing, and the willingness to grind someone down for as long as it takes.
Dr Mattu said it best himself: the people who lost out most were the patients. For 13 years the trust prevented him from looking after them. And by doing so, they sent a message to every other NHS whistleblower: this is what happens if you speak up.
Nothing has changed.
Source: @guardian / @BBC / @lexology / @sharmilaxx
@elonmusk@elonmusk this is amazing but what is sad is that this man more than likely had misdiagnosed Lyme disease that went ALS. So if he’d been treated properly in the first place things could be very different indeed. ALS is a big one with chronic Lyme and tick diseases
@StevePhillipsMD Dear Steven. Hope yr good. Could you kindly list the attendees that were at the roundtable please. First and second round. We don’t know who they all are. Thanks.
.@SecKennedy: “One of the reasons we wanted to host this meeting, as I make clear, is to announce to the world that the gaslighting of Lyme patients is over.”
@1goodtern@WillowLymeInfo And apparently 70% of all USA are rejected on health grounds too. It’s a major problem and I feel that decisions and actions they took a long while ago have ruined the future generation.
A few of the pathogen highlights from the last couple of years as they appear in English hospital episode statistics for *young* adults.
Typhoid and paratyphoid
Other salmonella
Shigellosis
Other mycobacteria
@1goodtern The lab test in uk is useless. At best 50% accurate. So many cases being missed and misdiagnosed. Also all clinical diagnoses need to be counted.will be thousands. It’s an emergency