As someone that was in the room in the meeting with @CarrollJennifer
This is *not * what was agreed to.
@SimonHarrisTD you also know full and well that this isn’t what the inquiry was supposed to look like.
Trying to control the narrative or the scope of the inquiry makes me wonder what it is you’re all trying to hide?
Why is it that our government is always so focused on self preservation and not actually ever doing what’s right for the people it’s *supposed* to serve and protect?
We fought for Harvey at 12 weeks pregnant when we got the diagnosis.
We fought for Harvey at 36 weeks pregnant when they suggested withdrawing medical care at birth.
We fought for Harvey when we found out he had severe scoliosis and had only been linked to an orthopaedic surgeon that deals with feet.
We fought for Harvey when they dismissed my concerns around allergies-later diagnosed as anaphylactic.
We fought for Harvey when they tried to provide a buggy instead of a wheelchair.
We fought for Harvey when he had delays getting a suitable hospital bed for home.
We fought for 5 years to get him a speech device so he could communicate.
We fought for him to get scoliosis surgery.
We fought for answers when we found out he was removed from the surgical list.
Harvey is now gone and we will continue to fight for him, and for the other children and families facing these unnecessary and cruel battles.
We fight because Harvey deserved better and we fight because that is what Harvey always did.
If government or CHI think we will ever be quiet and just accept what has been allowed happen, they simply haven’t been paying attention.
#JusticeForHarvey #NoChildWaiting #StatutoryInquiryNow
@CarrollJennifer@SimonHarrisTD@CHI_Ireland@MichealMartinTD@SBH_PAG@scolionetwork@Stephen63224725
@ReginaDo Remember that time you rang me and I told you all about our concerns in Harvey’s care? Remember when you told us you would help and get @LeoVaradkar to help? Remember when I never heard from you again? I do. #JusticeForHarvey#FineGaelFail
Thanks so much for all the lovely messages folks, we have an overwhelming amount of support ❤️ thank you again to everyone at @RTELateLateShow for having us on. I hope @FineGael and @fiannafailparty were watching and actually listening. #JusticeForHarvey
A full statutory enquiry is what's required , no more or less , no parents should ever have to endure and watch what they did to there first born child , the bravery they've both shown in the face of such adversity is beyond commendable ❤️ I'm proud to call them both friends
Over its 60+ years The Late Late Show has helped normalise so much social change in Ireland
Please Please Please can this be the moment we change how we treat people with disabilities.
#JusticeForHarvey#HarrisResign
PS that means not voting for Heather Humphreys
@CarrollJennifer & @SimonHarrisTD
Look at the figures @CHI_Ireland have 50% less children living with Spina Bifida in their service that a decade ago
Wake up & see that there’s been withholding of care despite increased resources
#BackUs in our call for a statutory inquiry
In awe of @GillSherratt23 & @Stephen63224725 strength. As a parent whose child is on a #scoliosis wait list - I can’t thank them enough. In their darkest moments to think of others.#JusticeForHarvey
We should all stand behind them & help them achieve their goal in Harvey’s name
Harris must be held to account for his role in the disgraceful neglect of children suffering for years, if power is not held to account tyranny ensues.
#ResignHarris#JusticeForHarvey
In the time since their beautiful Harvey passed, @Stephen63224725 & @GillSherratt23 have prioritised helping other children
For those of us trying to get our own children timely care in a dysfunctional system, we are forever grateful for their selflessness.
#JusticeForHarvey #BackUs in our call for a statutory inquiry
https://t.co/o8ijK9D4sB
For anyone who missed @GillSherratt23@Stephen63224725 interview on the @RTELateLateShow last night please take the time to watch it back.
Harvey was just 9 years old when he died in July. Much of his short childhood was spent deteriorating while waiting for the care he needed. Without his parents’ knowledge, he was removed from a surgical waiting list … an unacceptable failure that should never have happened.
Statutory inquiry now @CarrollJennifer@SBH_PAG #BackUs #JusticeForHarvey
❤️ Stephen and Gillian are incredible people. Their integrity, strength and courage shines as the speak about the heartbreaking loss of their beloved Harvey and the joy he brought to their lives. Sending them love and solidarity as they fight for all the other children waiting for spinal surgery. No more broken promises. The government must act to get children the operation that will change their lives!
#JusticeForHarvey #LateLate
@GillSherratt23@Stephen63224725