Tom Kindlon

With ME 37 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 29 yrs

[Tom Kindlon @TomKindlon]

"'You'd get better if you just....' is bullying and we don't deserve it." by K. Johnstone

https://t.co/MC0DGBvbwh

Screenshot from AMMES May 2026 Newsletter

#chronicillness

[Tom Kindlon @TomKindlon]

Singer Tiffany, who originally became famous in the 1980s, is battling long Covid which leaves her “battling with chronic fatigue”

https://t.co/wtjpWvFYQT

Mentions struggling to work out which in my opinion may be risky depending on her symptoms

#longCovid

[Irish ME/CFS Association @IrishMECFSAssoc]

They have said on a number of occasions that people from the ME/CFS community are welcome. #MEcfs #PwME

[Tom Kindlon @TomKindlon]

A Danish short film titled "Best practice" has been selected for the OFF-Odense Film Festival and the Friss Hús Budapest International Short Film Festival

https://t.co/XfpQMwG3uP

https://t.co/wLJQfqaGE7

Screenshot from Science for ME weekly update

#MEcfs #PwME

[Tom Kindlon @TomKindlon]

Risk factors for severe post-COVID condition in children, adolescents, and young adults

https://t.co/YJJaGaAJbF

Screenshot from Science for ME weekly update

#MEcfs #LongCovid

[Billy Hanlon @bhanlon15]

'RECOVER launches second phase of adult observational study'

https://t.co/YS79Hl9oQX

[Tom Kindlon @TomKindlon]

BBC Inside Health - ME/CFS Research

https://t.co/CWKFOKI1kK

Screenshot from AMMES May 2026 Newsletter

#MEcfs #PwME

[Tom Kindlon @TomKindlon]

Mapping cerebral blood flow in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and orthostatic intolerance: insights from a systematic review

https://t.co/dMb3458YsU

Screenshot from AMMES May 2026 Newsletter

#MEcfs #OrthostaticIntolerance

[Tom Kindlon @TomKindlon]

Creativity and chronic illness from Chronic Living Therapy @ChronicLiving1

https://t.co/HrkwW6G2vp

Screenshot from AMMES May 2026 Newsletter

#chronicillness #MEcfs @AnilvanderZee @magnetoJJ

[Tom Kindlon @TomKindlon]

Speaking Your Body’s Truth: Talking to Providers About Post-Exertional Symptom Exacerbation

https://t.co/rKMQ8yDEma

Screenshot from AMMES May 2026 Newsletter

#MEcfs #LongCovid

[AMMES @AmmesAdmin]

The June AMMES newsletter is out! Latest news and research, advocacy efforts and more! (It's free!) #MECFS https://t.co/D3BeimC6Vs

[Tom Kindlon @TomKindlon]

(USA)
Research Study on Multiple Chemical Sensitivity (MCS)

https://t.co/X0eqC3Kdee

From the June 2026 email bulletin of the Massachusetts ME/CFS & FM Association

#MultipleChemicalSensitivity #MCS

[Tom Kindlon @TomKindlon]

(Not ME-specific)
Defend US Science: Please Comment on Proposed OMB Regulations

https://t.co/iZFdoO3u9I

https://t.co/lsWeZt2L5v

From the June 2026 email bulletin of the Massachusetts ME/CFS & FM Association

[Tom Kindlon @TomKindlon]

From the email bulletin from INIM = Institute for Neuro-Immune Medicine Center for Collaborative Research

The National Institutes of Health (NIH) has awarded our own Dr. Lubov Nathason a grant for the project titled: Stratification of ME/CFS by Mycotoxin Exposure

#MEcfs #Mold

[Tom Kindlon @TomKindlon]

From the US

Long COVID longitudinal symptoms burden clusters within a national community-based cohort

https://t.co/qzWVY4pxcb

Screenshot from Science for ME weekly update

#LongCovid #PASC

[Tom Kindlon @TomKindlon]

From the US

"These findings challenge the hypothesis that preexisting mental health conditions are responsible for long‐COVID"

https://t.co/Jvjao7y5PD

Screenshot from Science for ME weekly update

#LongCovid #PASC

[Tom Kindlon @TomKindlon]

From the US

Exploring the perceived impact of physical activity on physical and mental health among individuals with long COVID: A qualitative interview inquiry

https://t.co/Qv55fvCRCe

Screenshot from Science for ME weekly update

#LongCovid #PASC

[Tom Kindlon @TomKindlon]

Neural alterations in viral pneumonia patients comorbid with insomnia in a Chinese population: Insight from surface-based morphometry analysis

https://t.co/o7ICCW3NVr

Screenshot from Science for ME weekly update

#LongCovid #COVIDBrain

[ME/CFS Science @mecfsskeptic]

1) Some thoughts on this new paper and what it means for 2-day cardiopulmonary exercise testing (CPET) protocol in ME/CFS.

For a long time, this was one of the most valuable and replicated findings in ME/CFS research, with patients failing to replicate objective exercise values.

[Tom Kindlon @TomKindlon]

From the US

Multi-omics analysis of long COVID (post-COVID-19 condition) reveals persistent mitochondrial dysfunction, suppressed oxidative phosphorylation, and immune dysregulation

https://t.co/hjfksP13o1

Screenshot from Science for ME weekly update

#LongCovid #PASC