Patient Support Group. Registered Charity. Supporting patients, families and professionals dealing with Thrombotic Thrombocytopenic Purpura in UK and Eire.
Less than 1 week to go!
Matty Jackson & Nicola McSorley Orford are taking on #LondonMarathonMyWay on April 26th in support of TTPNetwork.
Two inspiring stories. One important cause.
Support them 👇
Matty: https://t.co/8qi85scDBb
Nicola: https://t.co/x8OQlMgoBq
#TTP#Rare
It’s #TrusteeWeek! 💙
We’re celebrating the incredible team guiding TTPNetwork with passion, expertise & lived experience.
Their dedication helps ensure no one facing TTP feels alone.
Meet our trustees 👉 https://t.co/XukOAMyWwI
#ThankATrustee#PatientAdvocacy
We’re so excited to be part of @GoVoOfficial - the new volunteering platform connecting people with amazing opportunities. You can now easily browse, filter, and sign up for volunteer roles like being a Trustee directly on GoVo. Get volunteering at https://t.co/hHUE7GjzYa
Are you a patient with iTTP? Would you like to take part in research on the Psychological Impact of iTTP?
read more here: https://t.co/mSfcVuVZMe
take part here: https://t.co/OLYoecZLgU
The 2025 TTPNetwork Patient event is happening soon. Get your ticket here: https://t.co/HpmdNSdl25
Learn more about TTP, meet others with cTTP and iTTP and their families. Have fun! Plus refreshments and lunch included.
Missed the last post? no need to worry - send an e-card and support TTPNetwork at the same time!
https://t.co/Jh9Olx5C8F
#DontSendMeACard#Christmas2024
As Christmas approaches we are offering two opportunities to support TTPNetwork. Send an e-card or pick a penguin! https://t.co/Jh9Olx5C8F
https://t.co/vqy9CLheSq
Are you planning a trip abroad? Take a look at the Your Travel and Health website https://t.co/zcMlw4u2tL Lots of tips about what to pack, where to put your medications and travel insurance for a pre-existing condition &more.
Make your voice heard: take the new Rare Barometer survey on the impact of rare diseases on everyday life!
To make your voice heard & share your experience, take the survey by clicking here, before 8 September: https://t.co/nEpMJyPOfM
@eurordis