Tumour Foundation of BC

A charity dedicated to optimizing the health & well-being of individuals affected by neurofibromatosis (NF); working to establish BC’s first NF medical clinic

[Tumour Foundation of BC @tumourbc]

MedAccessBC, which the TFBC is a member of, met BC MLAs this week about the latest @GISociety report which details the continued lack of timely and equitable access to medicines in BC. We want to work with @Josie_Osborne to build a path towards equity #bcpoli

[Tumour Foundation of BC @tumourbc]

If you're wondering why you can't obtain a prescription for Koselugo (selumetinib) even though it's been approved by Health Canada, we've got answers!

Our latest Q&A explains everything you need to know about this important treatment.

https://t.co/DuMVEhROdl

[Tumour Foundation of BC @tumourbc]

Early bird tickets are now available for this year’s NF Summit and Symposium.

Visit: https://t.co/1HDrWFqMJR

[Tumour Foundation of BC @tumourbc]

Understanding NF2 Podcast featuring Grace Gregory & Prof. Gareth Evans. Bradley Findlay, a Biomedical Sciences student, discusses #NF2Schwannomatosis and treatments. Join the conversation on raising awareness and supporting those living with NF2

https://t.co/GswplZVzwZ

[Tumour Foundation of BC @tumourbc]

Secure your ticket now and be a part of this transformative event. Your presence not only promises an unforgettable evening but also contributes to our ongoing efforts in supporting individuals and families affected by NF in your community.

https://t.co/w38pc4d1U4

[Tumour Foundation of BC @tumourbc]

Our new resource is here!

Navigating Health Transitions: A Guide for Young Adults with NF.

https://t.co/5bYXWdhGkA

[Tumour Foundation of BC @tumourbc]

The power over pain portal is looking for youth ages 12-18 who have been experiencing pain for 4 months or longer to participate in their study.

You will he required to answer their questionnaire and use the portal for 8 weeks.

https://t.co/bvnC01AjQG

https://t.co/wdZZlm9t7l

[Tumour Foundation of BC @tumourbc]

Happy New Year from us at the Tumour Foundation of BC.

We look forward to continue supporting the community and shed light on NF
Let’s make 2024 the best year yet for NF awareness.

Wishing everyone a year filled with strength, love, and positive strides towards a better future!

[Tumour Foundation of BC @tumourbc]

Happy #GivingTuesday! Make a donation to the Tumour Foundation of BC, in the link in our bio.

Thank you in advance for any contributions 🙏🏼✨

[Tumour Foundation of BC @tumourbc]

This year, we're thrilled to participate in Giving Day, a national initiative to spread kindness and make a difference.

Mark your calendars for Tuesday, November 28th! 💙 🗓 #GivingTuesday

[Tumour Foundation of BC @tumourbc]

We want to provide support to individuals and families affected by NF by offering financial resources to access specialized care that might otherwise be out of reach.

Visit our website to discover how the Family Fund Grant can make a difference.

https://t.co/u7GrmgtMYS

[Tumour Foundation of BC @tumourbc]

Check out out instagram to learn more about NF! Did you know these facts? https://t.co/fFhlthUT3P

[Tumour Foundation of BC @tumourbc]

Your call will remain confidential and is open to individuals aged 16 and older.
In the event of a crisis requiring immediate attention, please contact the crisis centre in your community.

#NFsupport #neurofibromatosis

[Tumour Foundation of BC @tumourbc]

If you are living with neurofibromatosis or have inquiries about this condition, our team of professionals is available to assist you.

[Tumour Foundation of BC @tumourbc]

Our support staff can provide answers to your questions regarding:

1. Diagnosis and treatment
2. The progression of NF1, NF2, and Schwannomatosis 3. Employment-related concerns
4. Navigating life transitions, and more!

[Tumour Foundation of BC @tumourbc]

We extend our heartfelt gratitude to Alexion for their unwavering support in making this vision a reality. Together, we can make a difference!
#NFAwareness #NFAdvocacy #NFCanada

[Tumour Foundation of BC @tumourbc]

We are thrilled to announce that on October 27th, a gathering of dedicated volunteers from NF organizations across Canada will be coming together in Vancouver.

[Tumour Foundation of BC @tumourbc]

It's been over a decade since the Canadian NF leaders last convened, and in the face of rapidly evolving healthcare landscapes, we are eager to collaborate and amplify our advocacy and awareness endeavours nationwide.

[Tumour Foundation of BC @tumourbc]

Tune in for a not-to-be-missed webinar from the Children’s Tumor Foundation for an important announcement of the results of the INTUITT-NF2 platform clinical trial, and more.

Register at https://t.co/fZbfVQxfCH

#NF2 #neurofibromatosis #schwannomatosis