United Mitochondrial Disease Foundation

UMDF powers the research, education, & support that is advancing treatments for patients and families affected by mitochondrial disorders.

[United Mitochondrial Disease Foundation @UMDF]

Participate in studies to help researchers better understand #mitochondrialdisease. UMDF maintains an ongoing list of studies that you might be eligible to participate in as a patient or caregiver. To learn more about research opportunities visit: https://t.co/0N56bfYsVe

[United Mitochondrial Disease Foundation @UMDF]

This month, UMDF is proud to host a Primary Co-Enzyme Q10 Deficiency (PCQD) Listening Session with the FDA. Thank you to our listening session partner, @MitoAction. Learn more about UMDF’s regulatory work at https://t.co/oMgWpu39Wk. #mitochondrialdisease

[United Mitochondrial Disease Foundation @UMDF]

You don’t have to navigate #mitochondrialdisease alone. Connect with patients and families through UMDF’s weekly virtual Support Meetings. Check our events calendar for login details and join us. https://t.co/weNphgGg21

[United Mitochondrial Disease Foundation @UMDF]

Congrats to Hugh McKinney, recipient of this year’s UMDF Heartstrings Award! Hugh’s dedication honors the memory of his late brother, Henry, and continues to inspire hope throughout the #mitochondrialdisease community. Watch Hugh’s acceptance speech: https://t.co/qn0KfWLhnS

[United Mitochondrial Disease Foundation @UMDF]

Join us in congratulating the Kallaos family — William, Connie, Bill Jr., Bonnie, Olivia, and Liam — on being the recipients of this year's UMDF Energy Award! Watch their acceptance award video here: https://t.co/7mtSCYElhX #mitochondrialdisease

[United Mitochondrial Disease Foundation @UMDF]

Congrats to Chelsea Newberry, this year’s recipient of UMDF’s LEAP Award. LEAP stands for Living, Encouraging, Achieving and Persisting, and Chelsea exemplifies this every day as a UMDF Support Ambassador and someone navigating a #mito disease. https://t.co/6FeN979l3F

[United Mitochondrial Disease Foundation @UMDF]

UMDF was proud to award this year’s Stanley A. Davis Leadership Award to #mito mom, Aneesa. As a mother navigating #TK2d alongside her son Jeremiah, she has turned personal moments into a source of hope for others. Watch Aneesa’s acceptance speech: https://t.co/RP7QbhyHLK

[United Mitochondrial Disease Foundation @UMDF]

Did you attend #MitoMed? Tell us how we did. Simply visit the Evaluations tab in the Mito Med app. All attendees who submit a completed evaluation form online by 7/31 will be entered in a drawing to potentially win 1 free conference registration for Mito Med ‘27 in Philadelphia.

[United Mitochondrial Disease Foundation @UMDF]

Help #mito researchers by participating in UMDF’s biorepository. In collaboration with @combined_brain, patients with a confirmed #mitochondrialdisease can participate by joining UMDF’s patient registry, mitoSHARE & donating a sample at roadshows across the US. [email protected].

[United Mitochondrial Disease Foundation @UMDF]

A community that understands your journey starts here. Connect with patients and families through weekly Virtual Support Meetings hosted by UMDF to share experiences and find encouragement in the #mitochondrialdisease community. https://t.co/weNphgGg21

[United Mitochondrial Disease Foundation @UMDF]

In The Donkey and the Cart, Charles A. Mohan Jr. shares the personal journey that led to the founding of UMDF and helped build a movement for the #mitochondrialdisease community. Order today. 50% of all book sales will benefit UMDF. https://t.co/35HXwlur0Z

[United Mitochondrial Disease Foundation @UMDF]

In an open letter to the #PDCD community, Saol Therapeutics today shared that they have resubmitted their New Drug Application for dichloroacetate (DCA) for the treatment of Pyruvate Dehydrogenase Complex Deficiency (PDCD). Read the letter: https://t.co/u0T8Ym01cz

[United Mitochondrial Disease Foundation @UMDF]

This year at #MitoMed, we were honored to have members of the @ucb_news team present the Stanley A. Davis Leadership Award to #mito mom, Aneesa, who cares for her son Jeremiah with Thymidine kinase 2 deficiency (TK2d). Aneesa is a UMDF Ambassador and fierce advocate.

[United Mitochondrial Disease Foundation @UMDF]

Thanks to the work of our community, UMDF is proud to share #MitochondrialDisease is an eligible research topic in the DOD's Peer Reviewed Medical Research Program. Up to $370m is allocated for FY26 awards, with Letters of Intent due as early as 7/16.
https://t.co/PwxEzBNeVz

[United Mitochondrial Disease Foundation @UMDF]

Congratulations to Jill Guyer, UMDF’s National Director of Development, on the arrival of her beautiful baby girl, Annie! We are thrilled for Jill and her family and so excited to welcome Annie to the UMDF family 💕

[United Mitochondrial Disease Foundation @UMDF]

At #MitoMed, UMDF Support Ambassador Chelsea Newberry was recognized as this year’s LEAP Award recipient for her support of the #mito community. Chelsea shared her reflections on the conference experience and the power of connecting. Read her Substack: https://t.co/gUSgTB12aM

[United Mitochondrial Disease Foundation @UMDF]

Connect with patients and families in the #mito community at one of UMDF’s weekly virtual Support Meetings. Visit our events calendar for login details for each meeting and join us. #mitochondrialdisease https://t.co/weNphgGg21

[United Mitochondrial Disease Foundation @UMDF]

What were the biggest takeaways from #MitoMed 2026? Before leaving Orlando, Dr. Amel Karaa from @MassGeneralNews, shared her reflections on the conference and lessons learned from the #mito community. Stay tuned until the end to discover where we'll gather for MitoMed 2027!

[United Mitochondrial Disease Foundation @UMDF]

While in Orlando for #MitoMed 2026, we caught up with Dr. Fernando Scaglia of @bcmhouston to hear his perspective on the conference, highlights from the scientific programming, and what gives him hope for the future of #mitochondrialdisease research.

[United Mitochondrial Disease Foundation @UMDF]

In collaboration with @PolGFoundation and @MitoAction, join UMDF on Friday, June 26 from 11:00 am - 1:00 pm ET for the #POLG Virtual Summit. Hear directly from leading POLG researchers, clinicians, biopharma partners, and patient advocacy partners about the latest advancements.