My Grandad is convinced a seagull called Sally has been stalking him since the 70s because he destroyed her nest. Although it sounds mad I secretly believe him, especially after I took him for lunch & a seagull swooped at his head & he shouted back "when will this end Sally?"
This is Trevor Fisher, an inpatient in @ArthurRankHouse in Cambridgeshire, speaking to @Channel4News this week.
I am a palliative care specialist and Trevor’s interview has devastated me.
His hospice has just found out that in 6 months, Cambridge University Hospitals NHS Trust will withdraw its £800k funding.
This means that 9 of the hospice’s 16 beds will close, denying patients like Trevor the precious end-of-life care they need.
In total, 200 people a year in Cambridgeshire will now be forced to die in an overcrowded hospital instead of the hospice environment they so longed for. Some will doubtless end up dying on trolleys in corridors - we witness this far too often, these days & I can tell you, it is barbaric.
@CUH_NHS says it has made this “very difficult decision” following a “value for money assessment” - confirming what I have long known as a doctor, that too often, patients with terminal illnesses are treated as second class citizens whose lives simply don’t matter as much as other people's.
Yet the real responsibility here lies not with the NHS trust but with the current government, who is forcing the NHS nationwide to cut clinical services in order to meet impossible “efficiency savings” (what weasel words those are).
These cuts were necessary, say @CUH_NHS, “in order to maintain core services within a reduced budget” - that is to say, the reduced budget they are now receiving from this government.
So this is on you, @wesstreeting, and on you @UKLabour. You've chosen to do this & now patients like Trevor must live - and die - with your choices.
I believe that the measure of a civilised country is how well it cares for its most vulnerable members. The difference between politicians and me is that I look the palliative care patients they are failing in the eye.
So I will put it to you directly, Mr Streeting.
We are still a rich country capable of affording decent, humane palliative care for all. Do you really care so little for dying people that you are happy to fail them on your watch?
Thank you @channel4news for covering this story.
#palliativecare
#hospicecare
#NHS
20 years ago today, my daughter was born at a large London teaching hospital - weighing just over two pounds.
She spent 11 weeks in Neonatal Intensive Care. I couldn’t have asked for better treatment - for either of us.
But just one week in my local district hospital’s special care unit nearly broke me. A ward sister told me: “You won’t be the first woman to have a premature baby - and you won’t be the last.” That just about summed up the attitude.
Two decades on, I’m still a patient at the same London teaching hospital. It’s busy, but the staff are consistently attentive and kind. When I emailed my consultant’s PA in June to share my new breast cancer diagnosis, a registrar phoned me almost immediately. The very first words he said were: ‘I’m sorry to hear that” - followed by calm, clear medical reassurance.
The first words from my GP practice, by contrast? “I don’t know what you want me to do.” (All I’d asked was for a form to be signed.)
And honestly, I don’t think it’s improved in 20 years. The postcode lottery, the gaps between Trusts, the difference between compassion and indifference - it’s all still there.
This is exactly what I mean when I say: the NHS is not Premier Inn. The service you get isn’t the same everywhere - and sometimes, the difference is night and day.