Victoria Lawrence

[Victoria Lawrence @vicbullock]

@SonyaChowdhury @sueperkins @actionforme @soulsanctuarygc @therealgokwan @MelGiedroycShow So grateful. What a day. Thanks to @therealgokwan for being so graceful when this middle aged woman threw herself at you!

[Victoria Lawrence @vicbullock]

To hear M.E. spoken about publicly the way @sueperkins did today in conversation with Miko Giedroyc and @SonyaChowdhury blew my mind. We have come so far...but much more to do. We can only do it with support https://t.co/cKVvzejE4B. Thank you!

[Sonya Chowdhury @SonyaChowdhury]

Honoured to be interviewed by the amazing @sueperkins helping to raise understanding of #MyalgicEncephalomyelitis & @actionforme today. Thank you to the brilliant @soulsanctuarygc for partnering with us. Even had a visit from @therealgokwan & great to see @MelGiedroycShow again 2

[Sonya Chowdhury @SonyaChowdhury]

Honoured to be interviewed by the amazing @sueperkins helping to raise understanding of #MyalgicEncephalomyelitis & @actionforme today. Thank you to the brilliant @soulsanctuarygc for partnering with us. Even had a visit from @therealgokwan & great to see @MelGiedroycShow again 2

[Victoria Lawrence @vicbullock]

Thank you @TimesONeill for sharing Maeve's story. Too heartbreaking and unjust to comprehend. Change cannot come to quickly. I am so sorry for what you and your family have been through.

[Sonya Chowdhury @SonyaChowdhury]

@theslowlane_ME Brilliant work, as always @theslowlane_ME I know how much goes into this each year and how much it costs you energy wise. Thank you from the bottom of my heart for everything you do

[Action for ME @actionforme]

Our CEO @SonyaChowdhury, was featured in the Spring edition of @ThirdSector magazine. During the interview, Sonya discussed how we put #pwme & staff at the heart of everything we do as an organisation. We've got some photos of the interview 👇👇

[Victoria Lawrence @vicbullock]

This man @DocStrain - finally telling it like it is - thank you our fantastic Medical Advisor!

[Action for ME @actionforme]

It is #WorldMEDay & to mark this inaugural event, our Chief Medical Advisor @docstrain has written a piece discussing how it’s time that we acknowledge medicine still has a lot to learn for #pwme.
Available here: https://t.co/sEC8W5XwTN
What will the world #LearnfromME

[Sonya Chowdhury @SonyaChowdhury]

On the plane heading to Dallas then Reno then Incline Village with @DocStrain to meet with the eminent Dr Dan Peterson and colleagues @RedefiningMECFS there is so much we can learn from each other. Our governments are listening and great things can happen @actionforme @sajidjavid

[Victoria Lawrence @vicbullock]

A very long but very important day

[Sajid Javid @sajidjavid]

This #WorldMEDay the publication of 10 research priorities for ME from @jameslindalliance @ActionforME is a step in the right direction & we will be developing our own delivery plan later this year.

This will help better understand and support people with ME & their families.

[Action for ME @actionforme]

On #WorldMEDay, @NICEComms has set out the steps needed to put the recently updated NICE guideline on #MECFS into practice. https://t.co/i6DpgSQRVa

We worked with ForwardME to ensure this guideline was led by #pwme & are excited to see what the world will #LearnFromME

[Victoria Lawrence @vicbullock]

On World M.E. Day as the @PSPforMECFS report is launched we look forward to the voices of people with M.E. being heard and for this to translate into the vital research investment we need for M.E. #WorldMEDay

[Action for ME @actionforme]

"It is so important that the voice of those with lived experience of ME, and those that represent them, is at the heart of all future work to improve the lives of people living with this debilitating illness."

[Action for ME @actionforme]

PEOPLE SHOULD BE BELIEVED! Yes, we should.

Thank you, @marionfellows, for believing in our community.

#Parliament #ME #MECFS

[Action for ME @actionforme]

@JimShannonMP supporting his constituents with M.E. by adding the important anecdotal evidence needed to convince Parliament. Thank you for your support.

[Action for ME @actionforme]

Minister of State @scullyp

Acknowledging that M.E. is poorly understood by employers and health professionals!

Looking forward to the action from the @beisgovuk to address these issues raised in this debate.

#ME #HouseofCommons #Parliament

🧵

[Sonya Chowdhury @SonyaChowdhury]

important to remember l/t impact of #Covid on children & adults as testing ends ⁦@DocStrain, our ⁦@actionforme⁩ medical adviser, in ⁦@BBCNews⁩ article on #LongCovid. Also, ‘Many with #ME left for years, if not decades, w underlying symptoms’ https://t.co/MZGnUlBcMB

[Action for ME @actionforme]

We are looking for a Research Director to join our team! Are you a committed, collaborative & compassionate individual?

We will also consider part time/job share & flexible working requests.

For more info & to apply visit: https://t.co/chmXw7MSgd

Apply by 15/04 #hiring

[Action for ME @actionforme]

Our statement on the lifting of Covid restrictions.

Read now ⬇️⬇️

https://t.co/AiuVDUqPYy

[George Monbiot @GeorgeMonbiot]

Remember the lengths to which the media went to make Rishi Sunak - a multimillionaire without an apparent shred of concern for less fortunate
people - acceptable to the public?
Dishy Rishi, Superman etc.
The more extreme the doctrine, the harder it must be sold.

[Victoria Lawrence @vicbullock]

absolutely no shame whatsoever. this is as stark as it gets.
@nadhimzahawi this is a decade of children's education!

[Haggis_UK 🇬🇧 🇪🇺 @Haggis_UK]

#Ridge: If you are a parent looking at this what do you think you would conclude about how the Tories prioritise state school pupils?

Nadhim Zahawi: That was the financial crash.. we had to tighten our belts

#Ridge: On the back of state school pupil funding

#SundayMorning