Vicky Payne

[MND Association @mndassoc]

We’re sorry to hear that former @EnglandRugby and @LeicesterTigers rugby player, Lewis Moody, has been diagnosed with motor neurone disease.

He’s one of six people who will receive this news today – the @mndassoc is here to support Lewis, his family and all affected by #MND.

[MND Association @mndassoc]

Wondering what this is all about?

This is a striking life-size ice figure of Seckin, who has a genetic form of motor neurone disease (#MND) caused by the SOD1 gene.

Thread below 🧊👇 #PrescribeLife

[Niall @NiallMurphy_]

We’re at Westminster for a Day of Action with @mndassoc’s #PrescribeLife campaign.

Tofersen offers hope to people with SOD1 #MND but NHS delays mean at least 20 can’t access it. Every day counts.

We need urgent action. No one should be left behind.

🔗 https://t.co/Oqzn5hftTD

[The Prince and Princess of Wales @KensingtonRoyal]

Another remarkable feat for a remarkable human being. Wishing Kevin Sinfield the best of luck with his latest #7in7 challenge for @mndassoc, we know you'll do Rob's memory proud.

[MND Association @mndassoc]

Tofersen is an effective new treatment for those with the SOD1 genetic variant of motor neurone disease.

It works. It can slow progression of their #MND.

Join the community and call for NICE to make an exception to its normal criteria. Sign our petition below.

#PrescribeLife

[Charlotte Hawkins @CharlotteHawkns]

So proud to present the Lifeline Appeal today on @bbcone for @mndassoc as their patron. Having lost my Dad to MND, I know just how devastating this disease is. Three people going through it right now share their stories with you - please watch & support 🙏 https://t.co/Wj7PDfcLEX

[MND Association @mndassoc]

Watch our BBC Lifeline Appeal live right now on BBC One and BBC iPlayer.

MND Association patron, @CharlotteHawkns, presents the appeal featuring Eoin, James and Maggie who all share their stories of living with #MND.

Click below to watch and support.

[Michael Patrick @micktheejit]

Myself and Oisín had a lovely chat with @mndassoc on their podcast MND Matters - chatting all about Richard III @LyricBelfast

Link to the pod on Spotify, or search MND matters on your podcast app of choice.

https://t.co/eiPFcyaDc6

[MND Association @mndassoc]

We were very lucky to sit down with @PeterAsh_85 and @Dan_Brocklebank to record a very special follower Q&A edition of MND Matters.

Watch it with the link below 🎧

#corrie

[Peter Ash @PeterAsh_85]

Over the moon with winning a National Television Award for 'Serial Drama Performance'. Big thanks to the whole team at @itvcorrie and @mndassoc
💙🧡
#TeamCorrie #CoronationStreet #MND #MotorNeuroneDisease #NTA #NationalTelevisionAwards

[British Gymnastics @BritGymnastics]

🥇BRYONY PAGE WINS GOLD🥇

She's done it, she's completed her Olympic set, with a massive score of 56.480!

What a woman, what a gymnast, what an OLYMPIAN! 😍

We are lost for words! 🇬🇧

#UnitedByGymnastics

[BBC Breakfast @BBCBreakfast]

'We knew it was going to be something special'

Actors Peter Ash and Daniel Brocklebank spoke to #BBCBreakfast about a special edition of Coronation Street dedicated to MND campaigner and rugby league legend Rob Burrow

https://t.co/cqPmt5fAYn

[Essex Cricket @EssexCricket]

😃 𝗞𝗘𝗘𝗣 𝗚𝗢𝗜𝗡𝗚, 𝗥𝗢𝗦𝗦𝗢!

[MND Research @mndresearch]

✨ We’re back! ✨

You may have noticed we went quiet for a couple of weeks. But we are back posting about the latest and most exciting #MND #ALS research. 🔬

You also may notice that you’re no longer following us, please check so you continue to get the latest updates!

[Essex Cricket @EssexCricket]

➡️ Simon Harmer is being rested for this fixture. Adam Rossington is named as Captain for the first time in his Essex career!

🤝 Congrats, Rosso!

🦅 #FlyLikeAnEagle

[MND Association @mndassoc]

There truly is only #OneRobBurrow...

We'll be forever grateful Rob 💙

Thank you for everything you've done for the #MND community and the MND Association.

[Leeds Rhinos @leedsrhinos]

If you would like to support the @mndassoc , whom Rob was Patron of, you can do so on Rob’s Fightback Fund https://t.co/ufJ1DhsfkO

You can support the @LDShospcharity appeal to build the Rob Burrow Centre for MND here https://t.co/LNbTGOPGyF

[Vicky Payne @vickypayn]

RT @BBCBreakfast: There is only one Rob Burrow CBE.

A warrior. A legend. A family man.

Our thoughts are with Rob’s family, all at Leeds R…

[MND Association @mndassoc]

We’re deeply saddened to learn of the death of our patron Rob Burrow CBE.

Since his MND diagnosis in 2019, Rob has played a vital role in raising awareness and money to support our work. We will be forever grateful.

Our thoughts are with Rob’s family, friends and fans.

[The Prince and Princess of Wales @KensingtonRoyal]

A pleasure to award Rob Burrow and Kevin Sinfield with their CBEs at Headingley today. Thank you both for your incredible efforts in raising awareness and funds for Motor Neurone Disease. Both true heroes of the #MND community and the Rugby Football League.