Voices Of MS

Sharing the day-to-day voices of people effected by Multiple Sclerosis. Share with me or use the hash tag #VoicesOfMS (original tweets by @siiilenttbob)

[Voices Of MS @voicesofms]

@BlazePizza @TajinUSA How did the penguin fix his home when it broke?

Igloo it!

[Shift.ms @shiftms]

Can you describe your MS with a GIF? 😃

[T-Mobile @TMobile]

Don't trust big decisions to just any network. You deserve 5G that rocks 🤘 — Largest 5G network. Fastest 5G speeds. #LeaderIn5G

RT for a shot at a Samsung Galaxy S21+ 5G! The fastest 5G network meets the fastest 5G Galaxy device! #Sweepstakes​

Rules https://t.co/EQMVQ16qpW

[𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos]

Feeling guilt is part of having a chronic illness but please remember you did nothing wrong. It is not your fault.

[Shift.ms @shiftms]

The funnier outcome after the treatment with Lemtrada was my hair, from still to curly...Did anyone else experienced that after your #msmed ? #mscanbefun #letsstaypositivedespitems #stopms #BeYourself #enjoylife

[Dr. Brandon Beaber @Brandon_Beaber]

Financial distress is common in MS. Dr. Sadigh at Emory found that 56% had a decrease in income since diagnosis, and 35% skipped medication or recommended imaging tests for financial reasons. Have you ever avoided a medication or test for cost reasons? https://t.co/YgAHMMTOOb

[Chilterns Neuro Centre @ChilternsNeuro]

It's supposed to be getting hot hot hot later this week!😎 Between 60% and 80% of people with MS say heat makes their symptoms worse. Keep cool this week with some great tips from the MS Trust https://t.co/tRv1ItYqXg

[Mattias Millbro 🐧 @multipelskleros]

Spenderar kvällen på neurologlös akut. Får i alla fall lite #UngMedMS-jobb gjort. Alltid nått...

[Penelope Conway 🇺🇸 @PositiveWithMS]

I don’t know who needs to read this, but there is no right way to live with #MultipleSclerosis.

[🧡Jennifer Villegas🧡 @jennaville22]

I started using this for my thighs. They're always in pain. I highly recommend if you have multiple sclerosis. It's amazing!!
#MSsucks #MultipleSclerosis https://t.co/HFL76VhLkR

[Psychotrrish🐾 @trrish]

@SammiV4 @voicesofms Our huge MS clinic in Colorado is advising us to postpone Ocrevus infusions for 2 months. The idea being that we'll be less vulnerable to the COVID19. I 100% do not want to do that, and hope to fight it. #MSsucks

[Samantha @SammiV4]

I just had a freak out that my infusion approval ran out. Luckily I was wrong. I’m good till August. Why did I think that? #MSawareness #qurantinebrain

[southerndrawling @BethRoseboro]

I have advanced Multiple Sclerosis. I'm staying at home and no one is allowed to visit. This does me absolutely no good when my husband's plant refuses to close and he goes to work everyday around 100's of ppl.

[Mad Skillz @BowerMelisa]

Well, I was advised today by neurologist after working a busy 8 hour shift selling people their liquor (a must have I know 😑) I should probably not be working with the public because I’m on Ocrevus. So I’m probably not getting paid unless I can get sick leave pay indefinitely 😭

[𝕃𝕦𝕔𝕜𝕪𝕊𝕥𝕒𝕣𝕤𝕀𝕟ℂ𝕒 @Ring14Terri]

For the people with MS https://t.co/jBGJhPkA76

[OrchidDreams♿🧡 @orchid413]

THIS! I get peeps that come up to me, find out and be like, "Oh, my (insert any person they met or know that has MS) has MS. I know what that's like!" This disease is so different from one person to the next. I'm not your aunt, cousin, friend, that has it. I am a diff person.

[NFNicole🐢🐘🐆🐾 @Not_Interesting]

This. Exactly like this #chronicillness #ChronicPain #Disability #MultipleSclerosis

[Gregory Mansfield @GHMansfield]

Me, a wheelchair user:”Can you move your car? I need the ramp.”
Driver:”I need to park here. There are no spaces. There’s a driveway down the street. Use that.”

An access ramp is not a parking space.
Ableism tests the patience of disabled people every day.

[Aleyna @AleynaMoreHuman]

I just tried to type a response to someone's tweet using the hashtag #MSfatigue. But the voice typing system (which I am using because my neuropathy is bad today) entered it as: #MSButtCheek
It seems to intuitively understand how I feel about my multiple sclerosis fatigue.

[Voices Of MS @voicesofms]

@TMobile #tueyearseve + #contest