🌻tikks🌻

husband has long covid
wear a 😷
Anti racist
Anti ableist
Pro Europe

opinions my own and nothing to do with my employer!

Toriesoutnow

Treat Long Covid

[𝕷𝖆𝖚𝖗𝖊𝖓 💜💙 @facesareablxr_]

More humane assessments - I've been asked in both my first assessment and my review assessment, why I hadn't killed myself, which I think is actually shocking. I think the assessors need training across all levels, especially in terms of invisible disability and ones which flare up. I think they also need to be trained not to lie on the reports, I've had a look at both of mine after having to go to a tribunal, and in both reports they lied throughout. The whole assessment process is flawed

[Sam Long Covid Since March 2020 @CounsellingSam]

@Shrink_at_Large I'd like to see the PIP application process to reflect the existence of disabilities like Long Covid, MECFS and endometriosis.
Disabilities where our ability to function is Fluctuating.

[Darren Parkinson 🌍💚💙 @DarrenBar88]

6 months ago I lost my job because of #LongCovid.

I fought to keep my job, but I'm simply too ill to work and I'm not getting any better.

How will cutting my #PIP and #ESA get me back to work when I was dismissed on ill health grounds ?

#WelfareBill #DisabilityBenefits

[Dr Graham Lloyd-Jones @DrGrahamLJ]

Well this is interesting!

I get blocked by a fellow MD for pointing out facts.

Here’s the story and why it is important…

(Short thread)

Dr @DrScomaME_CFS a @Yale-trained MD posted this earlier today and it was reposted by @DrEricDing
1/6

[Long Covid Support @long_covid]

📣 1/5. The UK Government is proposing significant changes to welfare benefits.

These reforms could profoundly impact individuals with #LongCovid and #MECFS.

We've launched a survey to gather your insight. ⬇️

[Gina 😷 SARS2isAirborne #VoteGreen 💚 @Saffiya_Khan1]

Long Covid Awareness Day was on 15th March.

U.K. politicians largely ignored it. Only the leaders of The Green Party posted about it.

It’s becoming increasing ridiculous that the Government isn’t addressing this, both in terms of treatments & prevention.

It’s a health crisis.

[Michael Rosen 💙💙🎓🎓 NICE 爷爷 @MichaelRosenYes]

News in: Wes Streeting has become a clinical psychologist or psychiatrist. Wonderful. Well done, Wes.
https://t.co/FxzeXYErwj

[🌻tikks🌻 @vtictac]

Long Covid Awareness Day
5 years
5 bloody Long years of being unheard, invisible, gaslit & minimised. All because of Covid from March 2020 (pre vaccines!!)
5 years, March 2020.
Before and after Covid.
@long_covid
5 years being part of an amazing community ❤️😘
#longcovid

[Long Covid Support @long_covid]

There's not long to go until #LongCovidAwarenessDay on 15th March. Chair of the APPG on #LongCovid, @JoPlattLeigh, shows her support for us all. Thank you, Jo! 🙏

[Shaney Wright @ShaneyWright]

A big spike in chronic illness has followed every pandemic in history yet commentators cannot fathom why we're currently seeing a big spike in chronic illness. Covid – and its millions dead and ill – shall not be mentioned under any circumstances, so laziness it must surely be..

[🌻tikks🌻 @vtictac]

@nationalrailenq @GWRHelp 🥰🥰🥰🥰

[🌻tikks🌻 @vtictac]

Huge praise for the accessibility workers @nationalrailenq London Paddington today. Never used before, but just took all the stress away from getting my husband onto the train to Worcester today and being there to meet us.
Thankyou thankyou thankyou
#LongCOVID #disability ❤️

[🌻tikks🌻 @vtictac]

@nationalrailenq They buggied us all to the train and got him on. I will be sure to use and recommend again ❤️

[Marina Purkiss @MarinaPurkiss]

As we welcome the news that the UK will support Ukraine with a £2.26bn loan…

Here’s your reminder that the Conservatives wasted £9.9bn on unusable or defective PPE

Never forget their staggering corruption and incompetence.

[AJ Leonardi, MBBS, PhD, MPH @fitterhappierAJ]

In 2020 I claimed covid infections and reinfections would cause T cell exhaustion and harm to T cells

Now, to my minimal surprise, the head of the american association of immunology has published the very hypothesis disparaged and called nonsense below; that covid harms the immune systems T cells and exhausts them.

I faced relentless attacks from many individuals. After two years of warning about immune harm and publishing opinions, my claim landed on the desk of Vincent Raccaniello, supposed “worlds virology professor” (a pretentious title) who dismissed it as Twitter nonsense in 2022

Vincent Rajkumar, the editor of blood, claimed it was nonsense.

Then Carlos Del Rio, the medical advisor to entities in the airline industry, said I could not even call myself an immunologist.

The abuse of me and my reputation continued.

Zeynep Tufekci, an editor at the new York times called me names and went as far as calling me crazy, saying “dolphins” whispered my opinions to me on covid’s immune harm.

She quotes, “Exhaustion? Not a thing.”

I faced utter disrespect and maliciousness.

“Someone” threatened a New York Times opinion editorial to the National Institutes of Health, where I was working at the time, claiming that I was a crank eroding trust in science for claiming covid harms the immune system. This is documented in emails.

They also went after Johns Hopkins. I was told I was no longer permitted to publish such opinions after the Dean was intimidated.

I hope they enjoy their reward. The reward is written testimony by their own hand of their wrongness to be displayed for all time on a matter of such great importance.

Their opinion wasn’t worthless, but rather it was the opposite of helpful. It was harmful. All their expertise only made the impact of an incorrect opinion greater.

I sacrificed career prospects and happiness. For some time, every Professor that wanted to downplay immunological harm from covid would virtue signal by attacking me. I say again, they say the T cells will save us, but who will save the t cells?

[🌻tikks🌻 @vtictac]

@1goodtern My gp, "pop your mask off" me "nope" her "r u scared" me "nope, covid is Airborne, I'm also a carer for my hubby with LC" her "what's the point in coming to me if all I can see is your little eyes".
Totally irrelevant to why I was there! And I have a whole big body to look at!

[🌻tikks🌻 @vtictac]

@colrainlove65 @long_covid @AmandaPritchard By masking to protect my husband for the past 4 yrs because of his Long Covid I have protected myself and my own health. By not being ill my asthma is significantly improved to the point I am no longer using inhalers. It is incorrect to suggest masking is harnful

[Long Covid Support @long_covid]

@AmandaPritchard We’ll just throw this out there… how about masking (ideally FFP2/3) in all healthcare settings to help reduce airborne transmission to patients and staff of those viruses you speak about. 🤷🏻‍♀️

[🌻tikks🌻 @vtictac]

@1goodtern 🖐