Thea

[Thea @weedgrower74]

100%

[Zeest Khan, MD @doctor_zeest]

🎯🎯🎯🎯

[Adam @ABrokenBattery]

“It's not just oh you know a bit forgot about, it has been like so drastically forgot about, it's unbelievable”

Former Olympic sprinter @BethDobbin on the neglect of #MECFS and the underfunding of research, comparing £6M for ME with £496M for dementia between 2019 and 2024.

[Liam's LC/ME Journey @liamsLCjourney]

I cannot believe how many patient communities are getting organized this year!

After years of Turkish people saying they can't find other Turkish people with Long COVID or ME, there is now a Turkish WhatsApp chat!

https://t.co/9FFb5BPVeV

Thanks to the phenom @BadeTrosper for being a leader here.

Share around and let's see if we can find any Turkish people suffering out there on Twitter who need community!

[Elham raker @ElhamRaker]

My daughter has been contributing to the NIH RECOVER trials for over 4 years. Spending long hours each time at the hospital, depleting her precious energy, nothing in return. No updated research, no treatments, no care team. This was my response.

https://t.co/MLqf3wROEu

[Thea @weedgrower74]

@Dfrizz007 how do we email you?

[Thea @weedgrower74]

@erikmoldwarrior @cstroeckw good point

[Thea @weedgrower74]

NIH is failing our kids with Long COVID
https://t.co/5W5FwGNUcq

[Thea @weedgrower74]

@surf4children IV antibx and vasular workup?

[Thea @weedgrower74]

@Alina_MSN_RN great question. help us find out

[Mark Vink, MD @Huisarts_Vink]

How not surprising.

Our response entitled

Important methodological limitations in study of Psychophysiologic Symptom Relief Therapy for #LongCovid. Response to Donnino et al.

has been rejected by Mayo Clinic Proceedings: Innovations, Quality & Outcomes

Link in 3rd tweet

/1

[Thea @weedgrower74]

@atranscendedman Congratulations 🎉🎉🎉

[Bettina Grande @GrandeBettina]

6/6
Statt Kinder in ihrem Kampf mit der Erkrankung zu psychopathologisieren,
sollten wir unsere Arbeit machen:
Ihre Schmerzen lindern,
ihre ärztliche Versorgung auch zu Hause sicherstellen und wirksame Behandlungen für ME/CFS bei Kindern entwickeln.

#MECFS #MEKids #MECFSKids

[Thea @weedgrower74]

@ImmunoFever @HHSGov @amyrochlin @CODA_research @tylerdmyers @PaigeSHansen @mhornig @technopolymath @TomerTalVH @MIT_TRG @GlennonDoyle check out this incredible innovative group

[Thea @weedgrower74]

@GemzME @sunsopeningband Thank you

[Thea @weedgrower74]

Yes please ...
Add to list

[💜OldFashionedAnne @oldfshndanne]

I see that you are aware of Long Covid, even if this article you wrote in 2022 implies the pandemic is over (it isn't). People are still developing Long Covid every day.

Please help us all 😷

https://t.co/bF3XXsHwbO

[Amy Rochlin @amyrochlin]

An important new study in @PLOS Digital Health of nearly 20 million patient records suggests hEDS may be substantially more common than previously recognized and is associated with nearly threefold higher odds of a Long COVID diagnosis.

This intersects directly with a central question we're investigating through CODA Craniocervical Dysfunction Initiative (CODA CCD): Is hypermobility a preexisting vulnerability, an additional consequence of disease, or something more complicated?

Could immune dysfunction contribute to acquired changes in connective tissue, or make existing hypermobility more pronounced? Could infection trigger a process in which inflammation, connective tissue abnormalities, and autonomic and vascular dysfunction reinforce one another?

@ImmunoFever @FranCarrilloPhD

https://t.co/RTfKNRBTjC

[Thea @weedgrower74]

@Dysautonomia @tuppersquares that tracks

[Thea @weedgrower74]

@DarainChains would you please message me?

[Thea @weedgrower74]

@useless_priest they think it's a psych problem