6 years ago, when I was diagnosed with #AnkylosingSpondylitis, I thought I was dying on my worst days.
Now, those worst days are what my good days feel like.
This is life in an #incurable body. I have no choice but to adapt & readjust to a forever worsening body.
This image is from the Oxford Textbook of Axial Spondyloarthritis.
The BASFI (Bath Ankylosing Spondylitis Functional Index) is used to determine functional limitations in someone with #AnkylosingSpondylitis.
My worst #pain/#fatigue is from standing longer than a minute.
Ankylosing Spondylitis:
#ASbadAS rolling in steel rods wrapped in barbed wire.
#ASbadAS the flu 24/7 plus debilitating pain.
#ASbadAS being invisible.
Use the hashtag. Raise awareness during Spondylitis Awareness Month.
Anyone in the blogging community! A man named Mark Roth is giving my name out to others saying I have worked with him. I HAVE NOT WORKED WITH HIM. Please be aware of this as I did not work with him because he wouldn’t answer any of my questions and I didn’t think it was a genuine
After spending months worrying and self-doubting, I've finally done it!
Digital planning shop is now open!Things You Can is all about planners, smashing goals and focusing on what you CAN do! 🙌
Appreciate it if anyone wants to have a look! 💗
Etsy: https://t.co/dpmn23qmrg
The grief of an #incurable body is forever. We experience the slow death of our bodies while we're living in them.
We grieve anew with each loss of function, forced into a cycle of constantly overlapping stages of #grief, never fully achieving acceptance before the next loss.
I'm going to say something uncharaceristically harsh to EVERYONE feeling the need to minimize what most pain patients go through:
YOU
WOULDN'T
LAST
TEN
MINUTES
IN
MY
BODY
without begging for a morphine drip.
Don't act like you understand when you don't! Listen to Kate.😡