Spoonie Zebra

Just a purple Zebra living a chronically fabulous life on a limited amount of spoons. EDS🦓 Chiari💜 MCAD🤧 POTS 🥄 Tethered Cord✂️ epilepsy🥴 #raredisease🦄

[Spoonie Zebra @wheresmyspoons]

Just insomniac things 😂
#insomnia #EDS #EhlersDanlosSyndrome #EhlersDanlos #spoonie #chronicillness #chronicpain #POTS #Dysautonomia #RareDiseaseDay #raredisease #spoonieproblems #chiari #chiarimalformation #EDSawareness #invisibleillness #invisibledisability

[Spoonie Zebra @wheresmyspoons]

@ForestFaire Thank you!! It really is. Sending love and spoons 🥄💜🦓

[Spoonie Zebra @wheresmyspoons]

Hi guys, I’m under $1,800 away from my deposit on my service dog and every share helps so can everyone retweet this when y’all see it please? Thank you!
https://t.co/9qoTICZYQl

[Spoonie Zebra @wheresmyspoons]

@ForestFaire I am so sorry, I haven’t logged into this account in FOREVER

[Spoonie Zebra @wheresmyspoons]

Okay but this one made me cackle

#EDS #EhlersDanlos #EhlersDanlosSyndrome #POTS #Dysautonomia #MastCell #MCAD #chronicillness #chronicpain #PositiveVibes #SpreadLove #doctormemes #spoonieproblems

[Spoonie Zebra @wheresmyspoons]

“It’s your struggle, so it’s mine too. It’s your fight, so it’s mine too. Beyond that, I will never claim this. I will never water down your experience by attaching myself to it. I’m not brave or strong, you are. I’m just a dad who would do anything for his kids” -my dad

[Spoonie Zebra @wheresmyspoons]

Puns😂
#EDS #EhlersDanlos #EhlersDanlosSyndrome #POTS #Dysautonomia #MastCell #MCAD #pun #rollajoint #chronicillness #chronicpain #PositiveVibes #SpreadLove #ankle #ankleinjury

[Spoonie Zebra @wheresmyspoons]

https://t.co/NnDrgo72TC
Hello lovely zebras! If any of you could donate or share, I’d really appreciate it!
#EDS #EhlersDanlosSyndrome #servicedog #fundraisingtwitter #fundraiser #pleasehelp #Epilepsy #POTS #MCAD #support #chronicillness #chronicpain #GoFundMe

[Spoonie Zebra @wheresmyspoons]

The trifecta 😂
Just a meme to make y’all laugh in such difficult times. Hope everyone is well. #EDS #EhlersDanlos #EhlersDanlosSyndrome #POTS #Dysautonomia #MastCell #MCAD #spongebob #spongebobmeme #chronicillness #chronicpain #PositiveVibes #SpreadLove

[Spoonie Zebra @wheresmyspoons]

“She wore her scars as her best attire. A stunning dress of hellfire” -Daniel Saint
#DanielSaint #EhlersDanlosSyndrome #EDS #EDSzebra #spoonie #chronicillness #chronicpain #invisibleillness #Chiari #MCAD #POTS #spoonieproblems #pain #Epilepsy #quoteoftheday #poetry

[Spoonie Zebra @wheresmyspoons]

Just wanted to check in with everyone during this crazy time and drop some #CovidSupport ! #DudeBeNice & #PassItOn !#COVID19 #spoonie #chronicillness #immunocompromised #EhlersDanlosSyndrome #EDS #POTS #MCAD #epilepsy #StayHome #positivity #support #quarentine #MentalHealth

[Spoonie Zebra @wheresmyspoons]

I DO MY HAIR TOSS

CHECK MY NAILS

BABY HOW YOU FEELIN’?

FEELIN ᵒᵛᵉʳʷʰᵉˡᵐᵉᵈ
#EhlersDanlosSyndrome #EDS #EDSzebra #edsawareness #spoonie #chronicillness #chronicpain #invisibleillness #Chiari #MCAD #POTS #spoonieproblems #Epilepsy #mastcellactivation #lizzo #GoodAsHell

[Spoonie Zebra @wheresmyspoons]

If I was a rich girl
Na-na-na-na-na-na-na-na-na-na-na-na
Then I'd spend all the money in the world
To become a healthy gi-i-i-irl
#EhlersDanlosSyndrome #EDS #EDSzebra #spoonie #chronicillness #chronicpain #invisibleillness #Chiari #MCAD #POTS #spoonieproblems #pain #GwenStefani

[Spoonie Zebra @wheresmyspoons]

Day 27 of hospitalization as a #chronicillness patient:
I have a night nurse refers to how I feel before seizing as a “seizure Aurora” instead of a “#seizureaura” his entire shift
#EhlersDanlos #EDS #edsawareness #spoonie #Chiari #MCAD #POTS #spoonieproblems #Epilepsy #spoonie

[Kylee🐝 @kyleebpr]

In light of a horrible video of a suicide that is circulating, here’s a little sunshine. If you need a sign, this is it. The national suicide helpline is 800-273-8255
🚨If you get a DM from a stranger, DO NOT OPEN THE LINK. Video 1444 is graphic & upsetting🚨#SuicidePrevention

[Spoonie Zebra @wheresmyspoons]

Me when I’m a skeleton
#EhlersDanlosSyndrome #EDS #EDSzebra #edsawareness #spoonie #chronicillness #chronicpain #invisibleillness #Chiari #MCAD #POTS #spoonieproblems #pain #chiariawarenessmonth #spookyseason #nobrain #skeleton

[Spoonie Zebra @wheresmyspoons]

For those of you who haven’t heard, Sia has so bravely named Ehlers Danlos as one of her diagnoses in this tweet. This is a huge win for us! Keep spreading the word!!
#EhlersDanlosSyndrome #EDS #EDSzebra #edsawareness #chronicillness #chronicpain #invisibleillness #pain #chiari

[Kylee🐝 @kyleebpr]

Thank you so much for coming out with your diagnosis. Because of this tweet alone, thousands of people who have never heard of EDS now have 💜🦓
To all my zebras out there, keep spreading awareness and fighting the good fight. Big things are coming for us!

[Spoonie Zebra @wheresmyspoons]

My neck
My back
My ankles and knees crack
#EhlersDanlosSyndrome #EDS #EDSzebra #edsawareness #spoonie #chronicillness #chronicpain #invisibleillness #Chiari #MCAD #POTS #spoonieproblems #pain #chiariawarenessmonth

[Sarah Spoonie☔️ They/Them @sarah_spoonie]

Sally from Nightmare Before Christmas has EDS

She steps wrong and her limbs just fall out. Totally EDS