wstfcure

Our mission is to educate the world about the disease Syringomyelia and Chiari malformation.

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Don't suffer in silence...education saves lives!

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Educational Topic: Your Health Prioritized. Let's talk about Day to Day Life with Syringomyelia and Tools to Successfully Navigate the Tough Times.

#Syringomyelia Awareness

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Syringomyelia Awareness Month Day 11: Primary care serves an important role and can communicate with the neurosurgeon and other specialists to help identify red flags early between visits, initiate rapid referrals, and help manage co-existing conditions.

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Syringomyelia Awareness Month Day 8

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Syringomyelia Awareness Day 6: Pain; in honor of children and adults worldwide diagnosed with SM and Pain.
"Symptoms of damage to the spinal cord vary among individuals, where the syrinx forms, how large it is.... Symptoms may include: PAIN."
Source: National Institute of Health

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Syringomyelia Awareness Day 4: Let's Define Syringomyelia and Syringobulbia one more time. #Syringomyelia #Education

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Syringomyelia Awareness Day 3: Education is a key factor to promote positive changes and progress one step at a time! #Syringomyelia #Education

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Syringomyelia Awareness Education Day 2: Let's learn more about the cranial nerves and their function in our body to understand why symptoms can arise when they are compressed and/or damaged.
We also attached a fun symptom puzzle chart. #Syringomyelia #Education

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Today marks the first official day of our Official Syringomyelia Awareness Month of May!

Please join us in solidarity and recognize men, women, and children diagnosed with Syringomyelia; it is because of their journey we are here today. We honor you!
#Syringomyelia #Education

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#Syringomyelia; An Artist's Journey. It is an honor to share! To watch the entire video: https://t.co/VP3rEhy1wr

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Check out a sample of our new January education video! #Syringomyelia and #Chiari The Basics You can watch the entire video and give us a like on Facebook here: https://t.co/VP3rEhy1wr

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A reminder to us all "Never Give Up" from a precious 2 year old: Boy becomes a walking miracle https://t.co/BG8X4N5YWE via @CBSNLive

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As School Begins, Please Teach Your Children About Disabilities https://t.co/wFntwUHMaE

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We are launching WSCTF Member's Voice! The Daily Journey. Read more here: https://t.co/VP3rEhy1wr

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Check out this journey about a daughter's experience with #Chiari and #Syringomyelia shared from her mother's perspective: Titled:
"Congratulations! It’s a bouncing baby Zebra!" https://t.co/ljZpg2oBe8

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Share your story: Your experiences are important to help empower men, women, and children on their journey, increase awareness of the day to day challenges, and promote patient safety. Learn more and contact us today!

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26 Things People Don't Realize You're Doing Because You're Feeling Lonely https://t.co/9xmegHvV17

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@kimberlychiari We are saddened to hear about what transpired when you went to the ER. How are you feeling today? We would like to share your tweet with our community. Is that ok? You can connect with us via email at [email protected]. We will be in touch.

[Spinal CSF Leak Foundation @spinalCSFleak]

Today is Pediatric Headache Awareness Day during Migraine & HEADACHE Awareness Month #MHAM. Read about relief for Allie’s head pain due to #spinalCSFleak with help of Dr Michael Malinzak @DukeRadiology + Dr Wouter Schievink @CedarsSinai
https://t.co/LxgcGUqnTZ

[National Organization for Rare Disorders (NORD) @RareDiseases]

This evening, the House of Representatives voted to pass the #RighttoTry Act (S.204). NORD is incredibly disappointed that this legislation will be heading to the President's desk. For more information, check out our statement below. https://t.co/2irnflbK80