Sally Ann

An advocate, educator and Director of creating awareness of epilepsy and SUDEP.

[Sally Ann @youngsally]

@TheVictorBoyce @ShelterPartner1 beautiful article @TheVictorBoyce - he's left a huge legacy. His memory lives on and the continued voice he still has today!

[Sally Ann @youngsally]

@PedsEpilepsyDoc Will I get to see you??

[#kNOwSUDEPnow @knowsudepnow]

When you donate $100 to @kNOwSUDEPnow in November 2019, you will receive a special K(NO)W SUDEP NOW t-shirt like the one @thevictorboyce is wearing in this picture! Shirts will be shipped in January 2020. Donate at https://t.co/yCwW9HmI1w.

📷 by @thevictorboyce

[bec @vintagewallows]

spread this spread this spread this

[bec @vintagewallows]

here are some more links if you want to learn more <3

first aid: https://t.co/lSYlQj68u9

different types of seizures: https://t.co/crrKqffiIx

more about SUDEP: https://t.co/e7c5zVoDlT

triggers: https://t.co/YrmhMN5xoK

[Sally Ann @youngsally]

@lilactozier Thank you for sharing!!!

[Sally Ann @youngsally]

Working with Dr. Patel was great today! We are thankful for his collaboration and assistance.

[Anup Patel, M.D. @PedsEpilepsyDoc]

Thank u @EpilepsyFdn for having me help with the education video on #SUDEP in #epilepsy.

[Sally Ann @youngsally]

@PedsEpilepsyDoc @EpilepsyFdn Thanks so much!!! Always a pleasure working with you!!! So passionate, especially about SUDEP.

[Sally Ann @youngsally]

Quality over Quantity https://t.co/ELAcBsG2o1

[Sally Ann @youngsally]

@GreenwichBio Thank you!!!

[Sally Ann @youngsally]

@EPICLongIsland Thank you for sharing the Epilepsy Foundation SUDEP Institute's #AIMFORZERO campaign - there is more to be done but this is definitely a start! #SUDEPInstitute #ENDSUDEP

[Sally Ann @youngsally]

@curedravet Great to have people like Jenny right here in Wisconsin and helping people nationwide. #SUDEPInstitute #EpilepsyFoundation #ENDSUDEP

[Sally Ann @youngsally]

@bugsme012 I'm so sorry for your loss! I, too, lost my daughter 5 years ago and now make it my mission to educate and most of all end it. If you need bereavement support, please reach out to the SUDEP Institute, a program with the Epilepsy Foundation. 1-800-332-1000 or [email protected]

[Sally Ann @youngsally]

@Stutzy6 I am so sorry for your tremendous loss. I, too, lost my daughter. I now run the SUDEP Institute program with the Epilepsy Foundation. We offer free bereavement support in whatever form you need it. Please reach out to 1-800-332-1000 or [email protected].

[Danny Did Foundation @DannyDidOrg]

More mainstream coverage on #SUDEP in one week than there has been in 10 years. So sad that it follows the loss of a beloved young man. Doctor disclosure communicating the risk, more research, more preventative strategies for patients; the #epilepsy community needs all of it.

[Sally Ann @youngsally]

@TheVictorBoyce I, too, lost my daughter to epilepsy on Mother's Day '14. I am so sorry for your loss. I now run the SUDEP Institute program within the Epilepsy Foundation. I will never stop educating, bringing awareness and supporting research to #ENDSUDEP. Will you join me?

[Sally Ann @youngsally]

@TracyDixonSalaz @LGS_Foundation thinking of you and always doing my best to bring awareness to SUDEP and END IT!

[Sally Ann @youngsally]

@krummler @niceguyjonesy @KarcherMS @airandspace I have a feeling my kid posed to look smart or inquisitive.

[Sally Ann @youngsally]

Do what you love https://t.co/Lgz0JLyElw

[Sally Ann @youngsally]

@niceguyjonesy Clearly my son doesn’t know a good time!!