ALS_MND-info

#ALS amyotrophic lateral sclerosis/ #MND motor neurone disease/ Lou Gehrig's disease/ #ELA/ #SLA/ Know too much—not enough. RT,❤≠E / @RunRichRun tweets

[ALS_MND-info @ALS_MND_info]

Lou Gehrig's disease. Stephen Hawking's disease. Affects more than 250,000 people around the world. Each has a name. A family. A story.

“However bad life may seem, there is always something you can do...While there’s life, there is hope.”” - Stephen Hawking.

#ALS #MND #ELA #SLA

[ALS_MND-info @ALS_MND_info]

@egavactip Amen

[ALS_MND-info @ALS_MND_info]

@Jeanc9orf72 @isabellacueto @statnews I understand. So much that needs to be reformed in the legislative/regulatory process, especially with respect to exceptional/extraordinary circumstances.

[ALS_MND-info @ALS_MND_info]

@Jeanc9orf72 Agree with the sentiment, but the hate and disinformation have given me pause. Other sites are not the same, but there is no reason that a critical mass cannot recreate any of the communities that developed here--all of which are jeopardized by the recklessness of the new owner.

[ALS_MND-info @ALS_MND_info]

Brief thread: Afraid this site is now too full of hate, trolls and disinformation, so I've got new space staked out on the M*st*don🐘(apparently mentioning it can get you banned here). Find me: https://t.co/fD0z4P6BHL Please follow. 1/

[ALS_MND-info @ALS_MND_info]

@bsw5020 @SethPoling10 Sending good thoughts--and a hug!🤗 There's a whole world of people out there doing the same!

[ALS_MND-info @ALS_MND_info]

Cool idea: before you stop using Twitter (see above thread—don't delete your account; protect it), consider archiving your Tweets on the Internet Archive's Wayback Machine. https://t.co/vkrkKBBEXP h/t @dangillmor

[ALS_MND-info @ALS_MND_info]

Thoughtful article on sad direction this site has taken: https://t.co/aKtdNpkbWc @sandrogalea v
@BUSPH. These are my sentiments, too.

Maybe it will be okay to use this site again in the future; for now, it's become too full of hate, lies & disinformation. Hope to see you on🐘!

[ALS_MND-info @ALS_MND_info]

@StokesNeuro @picardonhealth Thank you for sharing yourself with us. Peace.

[Agam Jung @AgamJung]

“ Keep Smiling, Enjoy Life and Never Ever give up” … beautiful thought to live life by .. Thank you @MNDoddie5 for sharing this .. helps us all focus on “Living in the Now” with a big smile !

[ALS_MND-info @ALS_MND_info]

@Jaynes__World @RobBarrie389 @penguins @NHL @PenguinsPR @JakeD8771 @TheSportsman @CarBombBoom13 @ZachBoychuk @LFC @AndreaRodgers @Pittsburgh Hey Yinzers! Show this man👆a great time!!!
cc: @JohnFetterman @vstpgh @Pittsburgh @TheNextPGH @MayorEdGainey @gainey_ed @billpeduto @RoboPGH @donnelly_lab
#ALS = #MND = #ELA = #SLA = same awful disease, different languages.

[Chris McDermott @profcjmcdermott]

Yesterday we held the kick off meeting for the UK MND Institute. A full house with scientists, clinicians, funders and the founders of the #united2endMND campaign @dsetters @onein300. MND @ammaralchalabi @mndassoc @mndoddie5 @mndscotland @lifearc

[Charlotte Hawkins @CharlotteHawkns]

I’m backing the #SupportMNDCarers campaign which launches today. People with #MND are so reliant on carers, often unpaid family & friends. @mndassoc’s report shows only 25% of carers have been assessed to check if they need extra support. Please ask your MP to back a review 👇

[ALS_MND-info @ALS_MND_info]

.@BBCTwo — Please see that "Rob Burrow: Living With MND," airing on BBC Two on Tues. 18 October @ 19:00 BST (& on BBC iPlayer), is available wherever #MND #ALS #SLA #ELA strikes = 🌍🌎🌏. Need more awareness, more money, more time. https://t.co/QwgPVeNWwH @leedsrhinos @Rob7Burrow

[ALS_MND-info @ALS_MND_info]

Register for this

online "ALS Café Web 2022"

When: 17 September, 2022 -- in Japan, so be sure to correct date and time for your location!

registration link and more information: https://t.co/Aa9VqU4JyN
#ALS #MND #ELA #SLA

[東邦大学 脳神経内科 Toho University Neurology @Neurology_Toho]

We are organizing an event called "ALS Café” for patients with ALS. The theme is “Sharing Knowledge”. The seminar also creates a "reframing" process where patients and caregivers can share their problems, find new options, and regain motivation in their daily lives. #ALS #MND

[ALS_MND-info @ALS_MND_info]

Make a difference. If you fit the requirements for this job, as a senior project manager, consider applying.
#ALS #MND #ELA #SLA

[Ammar Al-Chalabi @AmmarAlChalabi]

We are hiring! If you are a senior project manager who wants to help transform the treatment of #ALS #MND please consider applying.
https://t.co/xHhqtyuHRi

#United2EndMND @dsetters @onein300 @AberdareNic @mndassoc @MNDoddie5 @MNDScotland @lifearc1

[ALS_MND-info @ALS_MND_info]

@DrOzdinler He made a big difference. You are doing the same.
#GirlsOpportunities become #WomensOpportunities.

[ALS_MND-info @ALS_MND_info]

Bradford Smith's
ALS Memorial Scholarship at BYU - Brigham Young University
https://t.co/s9pmUJXSVa
#ALS #MND #ELA #SLA

[Bradford G Smith (Brad) @ALScyborg]

I am working to create the #ALS Family Scholarship, with the goal to help ALS Families with education & career advancement.
I am trying to Understand need, so if you know any ALS Family in need of some educational help, Please share!! @bsw5020 @sabrevaya
https://t.co/uSCMQ0Chgd