AMANDA HEARD

[Genetic Alliance UK @GeneticAll_UK]

Did you see the latest takeover with @Patch1Purple this morning?

Find out more about #ITP 👇
@ITPSupportAssoc

[Rare Disease UK @rarediseaseuk]

Next up in our #TuesdayTakeover, we will hear from @Patch1Purple, discussing #ImmuneThrombocytopenia (ITP).
Look out for our tweets for an hour, starting from 10:00.

@ITPSupportAssoc #ITP #CareForRare #TwitterTakeover

[Rare Disease UK @rarediseaseuk]

My name is Anthony Heard & I have been living with the rare autoimmune condition Immune #Thrombocytopenia (ITP) for 16 years. I volunteer for the @ITPSupportAssoc. I will be taking over this Twitter for the next hour.
https://t.co/PZgO2v7FV5

#RareDiseaseDay2023 @Patch1Purple

[Rare Disease UK @rarediseaseuk]

In ITP the immune system of the patient mistakenly identifies and destroys the platelets of the patient hence creating a platelet shortage https://t.co/iNW0N9c3p9

#RareDiseaseDay2023 @ITPSupportAssoc @Patch1Purple

[Rare Disease UK @rarediseaseuk]

ITP is one of over 80 autoimmune conditions, and three key symptoms of it are random, mysterious, unprovoked purple #bruises, nose or mouth bleeds, unrelenting #fatigue https://t.co/SWwDhhz9LL

#RareDiseaseDay2023 @ITPSupportAssoc @Patch1Purple #ImmuneThrombocytopenia

[Rare Disease UK @rarediseaseuk]

There is no cure for ITP, although numerous treatment options are available to manage the illness. Some of these treatments have very difficult side effects 👉 https://t.co/RAjgZMuGFS

#RareDiseaseDay2023 @ITPSupportAssoc @Patch1Purple #ImmuneThrombocytopenia

[Rare Disease UK @rarediseaseuk]

ITP is diagnosed by exclusion. When all other reasons for a low platelet count in a patient are excluded, ITP is left as the cause. ITP can only be #diagnosed by blood tests & looking at the full blood count https://t.co/xsa0AHw31g

#RareDiseaseDay @ITPSupportAssoc @Patch1Purple

[Rare Disease UK @rarediseaseuk]

If you wish to learn more about ITP please check out https://t.co/FWfHJCC2hD.

@ITPSupportAssoc @Patch1Purple
#RareDiseaseDay2023 #RareDiseaseDay #ImmuneThrombocytopenia

[Rare Disease UK @rarediseaseuk]

This is my final tweet, but you can view more about my personal ITP story at the following link - https://t.co/qcFzuqeLwt

#RareDiseaseDay @ITPSupportAssoc @Patch1Purple #ITP

[ITP Support Assoc @ITPSupportAssoc]

Morning all - from 10am until 11am today I will be taking over the twitter feed of @rarediseaseuk to raise awareness for ITP & all rare illnesses. Please interact with the tweets by liking, re-tweeting,& commenting. #rarediseaseday2023 @mervyn_t_morgan https://t.co/rw6BnBJdef

[ITP Support Assoc @ITPSupportAssoc]

You can read my Rare Disease ITP Story at the following link -https://t.co/5JyrzSx3Fq @rarediseaseuk #rarediseaseday2023 #ITPAware @mervyn_t_morgan @Patch1Purple

[ITP Support Assoc @ITPSupportAssoc]

As we know ITP is a rare disease, just one of over 7000 & one of over 80 auto immune illnesses - https://t.co/Ghb7vkZubM @rarediseaseuk @RDD2013 #rarediseeaseday2023 @mervyn_t_morgan @Patch1Purple

[Iain Dale 🏴󠁧󠁢󠁥󠁮󠁧󠁿🇬🇧 ⚒️ @IainDale]

Funding Treatment for Incurable Brain Cancer https://t.co/TRcrbtBpa0

[Iain Dale 🏴󠁧󠁢󠁥󠁮󠁧󠁿🇬🇧 ⚒️ @IainDale]

Nancy's Twitter handle is actually @avocadofairy1

[AMANDA HEARD @AMANDAOHW]

Please sign this petition for my wonderful friend Nancy. It’s not just for her but so this treatment is available to everyone. It will take a minute and save lives. Please help. We need you.

Petition: Fund OPTUNE brain cancer treatment for NHS patients https://t.co/kL828wCY92

[Anthony Heard @AnthonyH7]

Please spare a moment to watch the video attached to this link & help Nancy increase her followers on Instagram it only takes a couple of seconds & it will make such a difference in her quest to get specialist treatment for her illness. Thank you. https://t.co/gK3J44hgPV

[Anthony Heard @AnthonyH7]

@RedChet_ @VaughanMedia @UKChange Ridiculous decisions but then again would you expect anything else from the completely out of touch BBC. And yet we still have NO CHOICE but to pay the license fee (TAX) !

[AMANDA HEARD @AMANDAOHW]

@doddoods71 Louis and Ella it ain't !

[Mervyn Morgan @mervyn_t_morgan]

Recommended for anyone who has ITP or wants to learn more about this condition this is a must read. My Purple Patch by Anthony Heard, can be found on Amazon UK.

[Anthony Heard @AnthonyH7]

After many hours of labour and plenty of blood (no pun intended), sweat & tears, my book tracing my ITP story from diagnosis in 2006 to date is out now on Amazon. Entitled My Purple Patch - Living with ITP it has all my ITP experiences, good, bad & ugly.#itpaware #itpawareness