APPG on Polycystic Ovary Syndrome (PCOS)

Email: [email protected]

[APPG on Polycystic Ovary Syndrome (PCOS) @APPG_PCOS]

Our Chair @MichelleWelshMP has been a strong champion for improving awareness and understanding of PCOS in Parliament.
The move to PMOS better reflects the complexity of the condition and the experiences of millions living with it. The APPG looks forward to continuing its work💜

[Michelle Welsh MP @MichelleWelshMP]

📢 PCOS NAME CHANGE! 📢

Polycystic Ovary Syndrome (PCOS) has been renamed Polyendocrine Metabolic Ovarian Syndrome (PMOS) to reflect the realities of the condition which affects 1 in 8 women.

My statement on this important step forward 👇

💜 @veritypcos

[APPG on Polycystic Ovary Syndrome (PCOS) @APPG_PCOS]

PCOS has changed its name to PMOS - Polyendocrine Metabolic Ovarian Syndrome.

This landmark change reflects the tireless work of campaigners in the UK and globally.

As the APPG, we look forward to continuing to advocate for better awareness, diagnosis, treatment and support.

[Verity (PMOS UK) @veritypmos]

PCOS has a new name. It will now be known as Polyendocrine Metabolic Ovarian Syndrome (PMOS). A change that accurately reflects the condition affecting 3.1 million women and girls in the UK. This is the largest global engagement ever for a medical name change.

[APPG on Polycystic Ovary Syndrome (PCOS) @APPG_PCOS]

The APPG on PCOS welcomes the renewed Women’s Health Strategy and its focus on prevention and integrated care.

As the focus shifts to delivery and implementation, we look forward to working with the Department to ensure it makes a tangible difference for people with PCOS.

[APPG on Polycystic Ovary Syndrome (PCOS) @APPG_PCOS]

PCOS affects 1 in 8 women, yet awareness and understanding remain far too limited.

Great to see @MichelleWelshMP's piece in @TheHouseMag highlighting why improving understanding of the condition matters.

https://t.co/tRgpYz4d5z

[APPG on Polycystic Ovary Syndrome (PCOS) @APPG_PCOS]

Last week, the PCOS APPG convened parliamentarians, clinicians and NHS leadership to discuss delivery of a national pathway for PCOS as a chronic, multisystem condition.

The focus was on implementation and alignment across policy and commissioning. More to follow.

[Michelle Welsh MP @MichelleWelshMP]

Today I chaired the the All-Party Parliamentary Group (APPG) on Polycystic Ovary Syndrome (PCOS) bringing together charities, clinicians and advocates to improve healthcare for women with this condition.

PCOS affects 1 in 8 women, yet many face delayed diagnosis and fragmented care. At the meeting, we discussed the need for faster diagnosis and better access to specialist support in primary care.

Thank you to everyone who shared their expertise and lived experience. Through the work of this APPG, we will ensure women with PCOS receive the personalised care they deserve.

[Michelle Welsh MP @MichelleWelshMP]

This week I met with @veritypcos and Baroness Merron, Minister for Women’s Health.

We discussed the PCOS APPG’s recommendations on diagnosis and care pathways. The Minister acknowledged the long-standing underfunding and neglect of PCOS.

Progress is being made - PCOS will be included in the new NHS England Online Hospital when it launches - an important step towards faster access to care.

[APPG on Polycystic Ovary Syndrome (PCOS) @APPG_PCOS]

One month on from launching our landmark report, we’re reflecting on the incredible response from the PCOS community, clinicians and parliamentarians. 💜

The momentum for change is growing, and this is only the beginning.

📖 Read the report: [https://t.co/8RfO85ruuc]
#PCOS

[Kirsteen Sullivan MP @kittysull1]

Yesterday I attended a powerful drop-in event on Polycystic Ovary Syndrome (PCOS) in Parliament hosted by the PCOS charity Verity.

PCOS affects 1 in 8 women in the UK impacting reproductive, metabolic and mental health. Yet treatment and support is inaccessible to many women.

[Tonia Antoniazzi @ToniaAntoniazzi]

In support of constituents suffering from Polycystic Ovary Syndrome (PCOS) I went to the @APPG_PCOS report launch. It shows just how urgently we need reform in diagnosis, treatment and support. Millions are impacted. We must do better. [https://t.co/VoqOFgmJmc]

#PCOSAPPG

[Kirsteen Sullivan MP @kittysull1]

A critical report from the PCOS All Party Parliamentary Group (APPG) which lays bare how much work remains to be done to improve care for women living with this condition.

[APPG on Polycystic Ovary Syndrome (PCOS) @APPG_PCOS]

🚨 34% of people with #PCOS waited over 4 years for a diagnosis.

Our report Breaking the Cycle calls on Government to:
✅ Embed new NICE guidelines into a national diagnostic pathway
✅ Integrate PCOS care in Women’s Health Hubs

Read more & act 👉 [https://t.co/8RfO85ruuc]

[APPG on Polycystic Ovary Syndrome (PCOS) @APPG_PCOS]

On Monday we launched the first-ever parliamentary report on #PCOS

Thank you to all MPs, clinicians & advocates who joined us to push for change.

Read our report here: https://t.co/8RfO85ruuc

#PCOSAPPG

[Michelle Welsh MP @MichelleWelshMP]

The @APPG_PCOS is working to create the right pathway for women with Polycystic Ovary Syndrome.

I spoke with Channel 5 News Health Correspondent @catherine5news about the launch of our report.

💻 Read the report - Addressing Systemic Failures in PCOS Diagnosis and Management - here: https://t.co/YJPtigJDTb

[Michelle Welsh MP @MichelleWelshMP]

This week, the All Party Parliamentary Group on Polycystic Ovary Syndrome (PCOS) @APPG_PCOS launched a landmark report which set out key recommendations to improve outcomes for those living with PCOS in the UK.

As the Chair of the APPG, I spoke to @BBCWomansHour about my experiences and the work that needs to be done 👇

[Sarah Champion @SarahChampionMP]

Despite 1 in 8 UK women living with #PCOS, it remains poorly understood & severely underdiagnosed.

Chronic conditions in women have been side-lined for too long. Very much welcome this report🙏@MichelleWelshMP @APPG_PCOS @veritypcos @APPGGlobalSRHR
https://t.co/wwnv4nR27T

[ITV News @itvnews]

'Frustrated and alone': Women with PCOS face widespread failures in treatment

https://t.co/AcxwGiOpRQ

[Caroline Gillett @cdtgillett]

Delighted to have been at the Houses of Parliament today with @DAISyPCOS 🌼for the launch of the @APPG_PCOS inaugural report outlining recommendations for reform on #PCOS diagnosis, treatment & care. Incredible work by @verity & collaborators to get to this point! #PCOSAPPG 1/2

[RoyalCollegeObsGyn @RCObsGyn]

Today we attended the launch of the All Party Parliamentary Group on Polycystic Ovary syndrome (PCOS) at the Houses of Parliament - a landmark moment for PCOS recognition in UK policy. #PCOSAPPG @APPG_PCOS (1/3)

[APPG on Polycystic Ovary Syndrome (PCOS) @APPG_PCOS]

🚀 The launch is underway!

Hearing from incredible voices leading the change on #PCOS:

➡️ Michelle Welsh MP, our APPG Chair
➡️ Dr Itunu Johnson, sharing crucial clinical insight
➡️ The amazing team from @veritypcos, providing a patient perspective

#APPGPCOS