DAISy-PCOS

Dissecting Androgen excess & metabolic dysfunction – an Integrated SYstems approach to PolyCystic Ovary Syndrome. #WellcomeTrust funded, led by Prof @WiebkeArlt

[Caroline Gillett @cdtgillett]

A big day for #PCOS! The condition will now be know as Polyendocrine Metabolic Ovarian Syndrome #PMOS. Head over to @veritypcos to learn more or read today’sLancet paper https://t.co/dNHd0Z6Ohx. Multilingual resources also available here: https://t.co/2eqakNpCCw #PCOSNameChange

[DAISy-PCOS @DaisyPcos]

Great to hear one of the DAISy-PCOS Leaders, Sunila Siddiqui @ssid93 share her perspective on why the name change matters to those living with #PMOS! #PCOSNameChange Read more here: https://t.co/h872EhvL3P @veritypcos 🌼

[DAISy-PCOS @DaisyPcos]

We encourage all to learn more about why the #PCOSNameChange was needed
& how stakeholders across the globe (including @DAISyPCOS) came together to drive forward this initiative led by Professor Helena Teede & colleagues @MonashUni. Learn more here: https://t.co/eAcFBI3X4I 2/2 🌼

[DAISy-PCOS @DaisyPcos]

An exciting day for those affected by, supporting care for & undertaking research in #PCOS! The new name, reached through rigorous consensus with worldwide partners, is Polyendocrine Metabolic Ovarian Syndrome #PMOS which more closely reflects the true nature of the condition 1/2

[Verity (PMOS UK) @veritypmos]

PCOS has a new name. It will now be known as Polyendocrine Metabolic Ovarian Syndrome (PMOS). A change that accurately reflects the condition affecting 3.1 million women and girls in the UK. This is the largest global engagement ever for a medical name change.

[Verity (PMOS UK) @veritypmos]

It’s incredible to see so many UK professionals involved in @aepcossociety on #PCOS #ECE2026 #becausehormonesmatter
@eka_melson @SandroGraca @Devicollab @DaisyPcos

[Verity (PMOS UK) @veritypmos]

PCOS has a new name. It will now be known as Polyendocrine Metabolic Ovarian Syndrome (PMOS). A change that accurately reflects the condition affecting 3.1 million women and girls in the UK. This is the largest global engagement ever for a medical name change.

[Verity (PMOS UK) @veritypmos]

#PMOS is the new name for #PCOS it will allow for research and funding on this life long health condition
#ece2026 #PCOSNameChange

[Verity (PMOS UK) @veritypmos]

What’s next #PMOS #PCOSNameChange

[Michelle Welsh MP @MichelleWelshMP]

📢 PCOS NAME CHANGE! 📢

Polycystic Ovary Syndrome (PCOS) has been renamed Polyendocrine Metabolic Ovarian Syndrome (PMOS) to reflect the realities of the condition which affects 1 in 8 women.

My statement on this important step forward 👇

💜 @veritypcos

[DAISy-PCOS @DaisyPcos]

The @LindAlliance Top 10 #PCOS Research Priorities are being announced today! Bravo to all involved, including members of the PCOS community who contributed questions & helped prioritisation. We can’t wait to hear what priorities have been identified! Exciting! Tune in 5pm 📣🌼

[Verity (PMOS UK) @veritypmos]

📢 Calling all #PCOS patients, healthcare professionals & researchers — big news!

We’re announcing the Top 10 PCOS Research Priorities on a webinar, open for all. Tuesday, 21 Oct at 5pm.

Register:
👉 https://t.co/ehXpTTmuRi

@cardiffuni @LindAlliance

[Verity (PMOS UK) @veritypmos]

Registrations open soon for the #JLAPCOS webinar with @cardiffuni on #PCOS

[Caroline Gillett @cdtgillett]

A big thank you to my local MP Laurence Turner @larry_turner for taking the time to respond to my invite & for joining us at the @APPG_PCOS report launch. I was pleased to have the opportunity to talk with you about #PCOS women’s health research & public engagement @unibirmingham

[Caroline Gillett @cdtgillett]

Read the report here https://t.co/o812Q767Wd It features insights from one of our Hildas #PPIE advocates & @DAISyPCOS Leaders, Sunila! Thank you Sunila for all the work you’ve done with us on research engagement and involvement over the years! 🌼 #PCOSAPPG #pcosawarenessmonth 2/2

[Caroline Gillett @cdtgillett]

Delighted to have been at the Houses of Parliament today with @DAISyPCOS 🌼for the launch of the @APPG_PCOS inaugural report outlining recommendations for reform on #PCOS diagnosis, treatment & care. Incredible work by @verity & collaborators to get to this point! #PCOSAPPG 1/2

[Caroline Gillett @cdtgillett]

Great day at the QE hospital engaging #PCOS patients (& partners!) on a discussion about the ongoing Seva clinic pathway development led by @drpunith & @Devicollab team. Special thanks to Dani & Sunila for helping co-develop this event & for sharing their own stories! ✨

[Verity (PMOS UK) @veritypmos]

Get your friends involved in helping with #pcos research with our friends at @DaisyPcos

[DAISy-PCOS @DaisyPcos]

📢 We need your voice! Help shape the future of PCOS research. We’ve narrowed down over 1400 suggestions to a shortlist of 51. Now, it’s time for patients and healthcare professionals to vote for the most important topics. 📷 It only takes 10 mins #PCOS #JLApcos #PCOSAwareness

[Caroline Gillett @cdtgillett]

Thank you London! Another day of feedback from people with lived experience of PCOS for @DAISYPCOS #EMPOWERPCOS. We appreciate all the questions & suggestions received & will take them on board as we decision-make. Great to be joined by @carand2015 @veritypcos today as well! 😊

[Caroline Andrews @carand2015]

Amazing afternoon of patient engagement with the team @DaisyPcos

[Caroline Gillett @cdtgillett]

Thank you Birmingham attendees! Such a useful & enjoyable day getting your feedback @DAISyPCOS #EMPOWERPCOS. Special thanks @eka_melson for talking through plans & answering questions so thoroughly! Thanks Lida & Cadence for behind the scenes support! London… see you Monday! 😀