FormerAddisonsCEO

Former Chief Executive of Addison's Disease Self Help Group, supporting people affected by Addison's. All views my own.

[Beacon for Rare Diseases @RareBeacon]

We couldn't agree more ♥️

[FormerAddisonsCEO @AddisonsCeo]

Time for a bit of rugby practice between photo shoots. Sam (age 12) doesn’t let Addisons stop him from doing sports & having fun! #FacingAddisons

[FormerAddisonsCEO @AddisonsCeo]

Wonderful day in #NEWCASTLE @IGM_NCL yesterday with @AddisonsUK & @Lucysewill working on our Facing Addisons awareness raising project, kindly supported by @arnoldporter

[FormerAddisonsCEO @AddisonsCeo]

The closing date for our #BeanieHatChallenge is fast approaching! Final entries, please!

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

Thanks to our amazing supporters joining in the #BeanieHatChallenge to raise awareness of Addison's disease! 💙

📸We've had photos from Anna at the @LLHalf , Rachel braving the sea at Salthill Galway, Philip in Vietnam & Cameron at college!

Read more > https://t.co/XXldSm2rMM

[FormerAddisonsCEO @AddisonsCeo]

A big welcome to the team @ALDLife who have taken over the running of the @addisonsuk onine shop this week. Our thanks to the community volunteers that kept everything running during April/May. #MovingOn

[FormerAddisonsCEO @AddisonsCeo]

And our social media team @AddisonsUK are especially fab! Give them a clap, folks cos they work really hard all year round to keep us all in the loop. #PoweredByVolunteers

[FormerAddisonsCEO @AddisonsCeo]

A big THANK YOU to all our amazing @addiosnsuk volunteers! It's #volunteersweek and by way of thank you, all our wonderful volunteers will be receiving a special BOX OF FAB of goodies and a personal thank you card. You are fab! Well done. @NCVOvolunteers

[FormerAddisonsCEO @AddisonsCeo]

@havingasitdown If you drop a line to enquiries@ they can add Circle to the list for a pack. Might be a week or two before it arrives - loads to send!

[FormerAddisonsCEO @AddisonsCeo]

A big THANK YOU to all our amazing @addiosnsuk volunteers! It's #volunteersweek and by way of thank you, all our wonderful volunteers will be receiving a special BOX OF FAB of goodies and a personal thank you card. You are fab! Well done. @NCVOvolunteers

[FormerAddisonsCEO @AddisonsCeo]

#addisonsqa 2/2 We aim to break even on injection kits normally. Thanks to @addisonsuk @simonhspearce & Sarah Spain and you, with the success of our book "Living With Addison's Disease" it means we're able to sell kits at well below cost price tonight. Stay safe. And goodnight.

[FormerAddisonsCEO @AddisonsCeo]

#addisonsqa Thank u everyone, especially @Anna_L_Mitchell and our amazing @addisonsuk Social Media Team (Pippa, Sophie, Vick) and everyone who contributed to the chat tonight. Folks who have ordered el-cheapo injection kits, they will be with u towards the end of next week. 1/2

[FormerAddisonsCEO @AddisonsCeo]

@Jennyg1lbert New website doesn't need registration or login. It's there for the people. (Thanks for the order, just don't tell anyone I went mad with the discount....shhhhh!) ;)

[FormerAddisonsCEO @AddisonsCeo]

@kymnphoebe Buy 2! #IAmSoFiredInTheMorning ;)

[FormerAddisonsCEO @AddisonsCeo]

#AddisonsQA And for Mums & Dads looking after youngsters with #addisons or #AI, here's your discount on kids kits, too. #IAmSoFiredInTheMorning https://t.co/UngOtO0X3f

[FormerAddisonsCEO @AddisonsCeo]

@kymnphoebe This kit will be fine. It has a small needle, which is just the job. Good luck!

[FormerAddisonsCEO @AddisonsCeo]

#AddisonsQA I will probably get fired for this, but we've just reduced the price of emergency injection kits to £4.95 (+p&p) (was £15) until 9pm BST tonight. If you don't have one (or fancy a spare), now is a great time to order one - be safe : https://t.co/MmbBTXKaWk

[FormerAddisonsCEO @AddisonsCeo]

@csf0961 @PippaLittle3 We are working to #FixThis. Our #MedsForLife campaign is reaching out to CCGs to remind them of national guidance - >56 days meds per script. No ifs, no buts. #workinprogress

[FormerAddisonsCEO @AddisonsCeo]

#AddisonsQA A4 And don't be afraid to talk to your employer or colleagues at work. I spend a large chunk of my week talking with people trying to do the best for their team members, who have #Addisons. People do care & want to help. Be open.

[FormerAddisonsCEO @AddisonsCeo]

#AddisonsQA A3 Recently I had the privilege of talking with someone with #Addisons who had experienced physical stress climbing a mountain (literally). This is what he had to say... https://t.co/RCmK81zNMO

[FormerAddisonsCEO @AddisonsCeo]

@AddisonsUK #AddisonsQA A2 Something that sometimes gets overlooked - happiness. Sometimes v happy events or things can affect people. For eg, at our recent Facing Addisons photoshoot, someone was unwell because they had been to their sister's wedding. Happy day, but "stressful" nonetheless.

[FormerAddisonsCEO @AddisonsCeo]

@AddisonsUK members in Ireland may be interested to learn that our recent best-selling book "Living With Addison's Disease" is now available to borrow nationally from Libraries Ireland and in person from the library at Trinity College Dublin. #InternationalAddisonsDay