Ledia Alushi Agley

PhD researcher @NIHRresearch @ARC_EoE | Specialist Physiotherapist | Parkinson's | Ageing | digital therapeutics | prevention | physical activity

[Ledia Alushi Agley @AgleyLedia]

Thank you @MichaelOkun for this great summary of our paper. I'm so pleased to see this work published @journal_PD and look forward to further implementing this project. @ARC_EoE, @ParkinsonsUK grateful for the support

[Michael Okun @MichaelOkun]

We tell everyone to exercise in Parkinson's, however we all know how hard it is to stick w/ exercise even if you don't have Parkinson's? What do we need? A Knowledge, Exercise-Efficacy and Participation (KEEP) intervention. Check out this KEEP digital intervention by Agley @journal_PD.
Key Points:
- The authors point out we tell virtually everyone 'face-to-face to follow a generic one-size-fit-all exercise approach.'
- They wanted to rise up and meet the demand for 'interventions that are easily accessible, scalable and co-designed with people living with Parkinson's.
- They examined 30 folks in an assessor-blinded randomized feasibility trial.
- 64% recruitment rate.
- All but one participant completed the 6-month follow-up.
- Accelerometer data with a daily average wear time of 23.9 hours.
My take: The authors are tackling an under-appreciated and critically important challenge in Parkinson's disease. We have an intervention that works, but many people don't use it or stick with it. Knowledge, exercise-efficacy and participation to the rescue. Though this may not work for everyone, we need to galvanize the community to figure out how to scale up exercise us in Parkinson's, and we need to stop assuming that because we tell everyone to exercise that they do it. BRAVO to Agley and colleagues for persisting to aut viam inveniam aut faciam – I will either find a way or make one.
https://t.co/O0OXSJdphh #parkinson @ParkinsonDotOrg

[Ledia Alushi Agley @AgleyLedia]

@MichaelOkun Thank you for this summary!

[Ledia Alushi Agley @AgleyLedia]

Excited to share our latest research on bridging the gap in PD care! The KEEP intervention offers a tailored, digital exercise education programme for newly diagnosed PwP. Check out the study: https://t.co/0LQpea6SVI #HealthcareInnovation #DiGiTALhealth @ARC_EoE @NIHRresearch

[Ledia Alushi Agley @AgleyLedia]

One of the best parts of my PhD in #Parkinsons is working with amazing people like Trevor. His motto, "Be better than your excuses," drives him to walk 120km of Hadrian’s Wall to support research. Read his story and support him! [https://t.co/LQuw7YpNlX] #Fundraising @PDandHDLab

[Ledia Alushi Agley @AgleyLedia]

Many thanks @ParkinsonsUK @PDandHDLab and all X friends in disseminating the survey

[Ledia Alushi Agley @AgleyLedia]

Extremely proud of this work published @PLOS. With emerging evidence on the positive role of exercise in PD management there is a need for more interventions that appropriately promote exercise at diagnosis https://t.co/N2jWxptXhR

[Ledia Alushi Agley @AgleyLedia]

@julie_physio @ParkinsonsENEx @ParkinsonsEN Will you be going Julie? Hope all is well with you x

[Ledia Alushi Agley @AgleyLedia]

@Marta__Camacho Amazing cake! Brilliant work! Congratulations Marta!

[Julie Jones @julie_physio]

New paper published by @AgleyLedia
Exercise and physical activity promotion for people newly diagnosed with Parkinson’s disease: a UK survey exploring current practice and the views of healthcare professionals @ParkinsonsENEx @ParkinsonsEN
https://t.co/iDpJnhPDt6

[Ledia Alushi Agley @AgleyLedia]

@julie_physio @ParkinsonsENEx @ParkinsonsEN Thank you @julie_physio for posting and a big thank you to everyone @ParkinsonsEN and @ParkinsonsUK for dissemination of the survey and participation!

[Ledia Alushi Agley @AgleyLedia]

@julie_physio @jamesalexphysio @WorldPDCongress So excited to finally meet in person! What a great start today! @WorldPDCongress

[Julie Jones @julie_physio]

Just amazing to meet up with @AgleyLedia and @jamesalexphysio at the @WorldPDCongress We published a systematic review together during Covid and this is the first time that we gave all met

[Ledia Alushi Agley @AgleyLedia]

@julie_physio @ParkinsonsUKSco @Physio_RGU thank you so much for presenting our work Julie- sorry to have missed it but so pleased you could present the poster! hopefully will join #mdscongress next year

[Ledia Alushi Agley @AgleyLedia]

@emma_soneson @minafazeloxford @OxPsychiatry Congratulations Emma!

[James Alexander @jamesalexphysio]

Really pleased to shout out about this systematic review that we have published in @journal_PD looking at Physical Health Education in Parkinson's. Be sure to check it out DOI: 10.3233/JPD-223259. Great work @AgleyLedia & @julie_physio 👏 #Parkinsons

[National Health Careers Conference 🏥 @healthcareersco]

Watch @ListonMatt host the panel session on the #AHP Live stage at NHCC2021 joined by @AgleyLedia @Deli_1102 @Richard_richhec @Jen_Breck @gitaramdharry as they discuss opportunities in health research and clinical academic career.

https://t.co/hVkSloO6D0

#healthcareerslive

[Ledia Alushi Agley @AgleyLedia]

@purposeful_pd How about the knowledge around how to exercise and choose exercises that are suited to specific needs. When in the course of PD is this info provided and is there enough research which targets barriers such as low exercise expectations and low exercise self-efficacy in PD?

[Ledia Alushi Agley @AgleyLedia]

@theneuroheroes @ParkinsonsUK @CureParkinsonsT @SportParkinsons @ReachURPeak @PdAvengers @DaveClarkTV Great work @theneuroheroes ! would you be able to check progress over the month per participant? ie how many they did on the 1st and how many STS on 29th of Jan? if so, that would be excellent! #buildingstrengthwithPD :)

[Ledia Alushi Agley @AgleyLedia]

I learned a lot and got inspired by listening and being part of this great panel. Thank you for inviting me @ListonMatt @carrie_biddle @healthcareersco

[Carrie Biddle @carrie_biddle]

@BeverleyHarden @healthcareersco @ListonMatt @AgleyLedia @Deli_1102 @Richard_richhec @Jen_Breck @gitaramdharry @OfficialCAHPR @HazelRoddam1 @GHancock2304 Just started for anyone wanting to join our conversation hop in @healthcareersco #AHP Live stage

[Ledia Alushi Agley @AgleyLedia]

Looking forward to sharing my AHP in Research experience tomorrow @healthcareersco! Thrilled to be part of it

[Carrie Biddle @carrie_biddle]

If you are an #AHP interested in research and the clinical academic career pathway how about joining our panel session @healthcareersco tomorrow? With panel host @ListonMatt featuring @Richard_richhec @gitaramdharry @Jen_Breck @Deli_1102 @AgleyLedia #AHPCareers #Inspire