Allison Moise

Mom,wife,bartender,peer mentor, advocate 💕 my thoughts and opinions are mine only and do not reflect any organization.

[Allison Moise @AllisonMoise2]

@HopeforHIE @DrJanetSoul The best of the best! Can’t wait to hear all about this conference.

[Hope for HIE ☀️ @HopeforHIE]

WE'RE HIRING! Looking for our next amazing social worker to join our team!
- Flexible, remote hours
- 15-20/week
- Dynamic, collaborative team
- Established support programs
- Grow with our organization as a leader!

Ideal candidate has NICU, PICU or children's hospital experience.

Learn more and apply at https://t.co/IZZqWHA1dk

#SocialWork #NeoTwitter #NeuroTwitter #NICU #NAPSW

[Allison Moise @AllisonMoise2]

I found out that my sons new nurse shares a birthday with my mom. I hope that’s a sign that it’s a good fit

[Allison Moise @AllisonMoise2]

One part of being a parent to a medically complex kid that isn’t talked about a lot is the fact that we have to give up some control and have nurses in our house. It impacts our every day routine and our marriage. Here’s to the first night with the new nurse 🎉

[Allison Moise @AllisonMoise2]

Just had to educate my child’s nurse about abortions and access to health care because she blindly follows the media. What has this world come to ?!? 🤦🏼‍♀️

[Allison Moise @AllisonMoise2]

I seriously have the the worst luck flying.. #delayed

[Betsy Pilon @BetsyPilon]

Really proud of the work our @HopeforHIE team has done & the expertise we bring to build more impactful & thoughtfully designed trials advancing research & support.

#PatientAdvocacy is more than a ✅ & #HIE is due for more effective therapies!

🧠🎉☀️

#NeoTwitter #NeuroTwitter

[Allison Moise @AllisonMoise2]

So excited to have an opportunity to be apart of this amazing team.

[Betsy Pilon @BetsyPilon]

DTW✈️MDW

#HaveHOPEwilltravel #NeoTwitter #NeuroTwitter #NICU #Research #ClinicalTrials

[Allison Moise @AllisonMoise2]

So excited to join the Sustainability membership council for PCVIS. It’s going to be amazing to connect and spread awareness with other professionals! #pcvis #cvi #cerebralpalsy #hie #neurology #opthamology

[Allison Moise @AllisonMoise2]

Nerds gummy clusters always hit the spot

[Allison Moise @AllisonMoise2]

@Neonatalpsych This so going to be such a great resource! I hope it encompasses all nicu experiences and not just prematurity. That was one of the hardest parts of our nicu experience. All resources were targeted at premies when my son was 41 weeks and arguably one of the sickest kids there

[Melissa L Russo @Russo1Melissa]

So proud of @parobek88 for his amazing work on genetic findings among neonates w HIE. He won best young investigator and he’s going to move the needle in this field!! Go Christian go !

[Allison Moise @AllisonMoise2]

Huge shout out to #TSA at @BostonLogan. Thank you for making our trip through TSA such a breeze! Traveling with a medically complex kid isn’t easy but you made it easy! #medicallycomplexkids #travel

[Allison Moise @AllisonMoise2]

@jetpackmom @tracymarani @TedDanielnews I wonder if they can swap the judge out for that one. That’s one case that shouldn’t get off if the evidence that’s public is true

[Allison Moise @AllisonMoise2]

@RobertF24250941 @TheRealBunnie Lmao it’s Maureen Hitchcock the medium but she does an amazing impression

[Allison Moise @AllisonMoise2]

@SMAC128 @TheRealBunnie She got asked the other night when out to dinner if she was Bev. The table of girls had no idea who she really was.

[Perkins School for the Blind @PerkinsVision]

We’re proud to share these moments of connection and community among #CVIParents from our 2024 #CVIConference! Cerebral/Cortical Visual Impairment is the leading cause of childhood blindness, yet less than 20% of cases are diagnosed. The time to recognize #CVI is now.

[Hope for HIE ☀️ @HopeforHIE]

📆 Join Hope for HIE TOMORROW (Wednesday, June 26) at 12 PM ET for our Live Q&A session with Annie Gunning, Hope's certified child life specialist, to discuss SOAR, her new and upcoming peer support group for children ages 7-12 and 13-17 with HIE.

Specifically, we'll discuss:
📌 The foundational pillars of SOAR -- Support, Ownership, Advocacy, Resiliency
📌 How she'll help foster connection, support, and friendships within this virtual peer group
📌 How it will be structured to create an inclusive environment for its participants
📌 Important registration details and deadlines

Tune in and watch LIVE on our Facebook, Instagram, or YouTube channel:
🔗 https://t.co/touGTLdOvr
🔗 https://t.co/EBpBzvSjge
🔗 https://t.co/w2c1dJ9153

#HIESupport #PeerSupport #Connection #ConnectedbyHope #ConnectedbyHIE #SOAR #Support #Advocacy #Ownership #Resilience #CCLS #Inclusion #Inclusivity

[Allison Moise @AllisonMoise2]

CVI conference day 2 in the books I learned so much information today and got to connect with so many amazing people. I won a gift card and met another hie mom! It’s truly amazing to see so many people in the same room advocating and completing research for CVI #cvinow hopeforhie