Alstrom Syndrome Int

[NIH @NIH]

A5 @NIHClinicalCntr is the largest hospital devoted to clinical research and a major resource for rare disease patients worldwide. #NIHChat

[Rare Disease Day @rarediseaseday]

The 2015 video is OUT - bring people #livingwith a #raredisease out of the shadows: http://t.co/fyysRiZUsF

[Genetic Alliance @GeneticAlliance]

Genetic Alliance CEO @sharonfterry attends @BarackObama #PrecisionMedicine Initiative announcement. Watch it live: http://t.co/aQ8BpwSt3N

[National Organization for Rare Disorders (NORD) @RareDiseases]

Involve the patient: #raredisease registries accelerate treatment & address knowledge gap about patients' daily lives http://t.co/4wUXCXt3AZ

[Rare Disease Day US @RareDayUS]

50 days until #RareDiseaseDay 2015! Be heard, tell your story. http://t.co/flcZVS3rXt #HandprintsAcrossAmerica

[Alstrom Syndrome Int @AlstromInternat]

The results are in! YOU DID IT!!!! You helped Alstrom Angels win $10,000! http://t.co/yf1qvn9pzf Congratulations @AlstromAngels

[Alstrom Syndrome Int @AlstromInternat]

Amazon donates to Alstrom Syndrome International when you shop @AmazonSmile. http://t.co/k3ff2M4efT #YouShopAmazonGives

[Rare Disease Day @rarediseaseday]

100 days until Rare Disease Day - the website for #RareDisease Day 2015 launched today! Add your events now! http://t.co/aPY7HWqU8F

[Cassie Johnston @CassieJohnstonJ]

Are we part of your morning routine yet?? Get coffee...VOTE AGAIN! #constantcontact http://t.co/03p9BHT6iT

[Alstrom Syndrome Int @AlstromInternat]

@AlstromInternat #DFGEntry

[CENA Project @CENAProject]

CENAs disease advocacy partners: @AlstromInternat @AXYSinfo @jsrdf @pxe @NGF_Gaucher @HFIconnect @IBCResearch @DCOutreachInc @MLDfoundation