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Alstrom Syndrome Int
@AlstromInternat
58 countries
Joined June 2014
58
Following
70
Followers
11
Posts
AlstromInternat
retweeted
NIH
@NIH
over 11 years ago
A5
@NIHClinicalCntr
is the largest hospital devoted to clinical research and a major resource for rare disease patients worldwide.
#NIHChat
AlstromInternat
retweeted
Rare Disease Day
@rarediseaseday
over 11 years ago
The 2015 video is OUT - bring people
#livingwith
a
#raredisease
out of the shadows: http://t.co/fyysRiZUsF
AlstromInternat
retweeted
Genetic Alliance
@GeneticAlliance
over 11 years ago
Genetic Alliance CEO
@sharonfterry
attends
@BarackObama
#PrecisionMedicine
Initiative announcement. Watch it live: http://t.co/aQ8BpwSt3N
AlstromInternat
retweeted
National Organization for Rare Disorders (NORD)
@RareDiseases
over 11 years ago
Involve the patient:
#raredisease
registries accelerate treatment & address knowledge gap about patients' daily lives http://t.co/4wUXCXt3AZ
AlstromInternat
retweeted
Rare Disease Day US
@RareDayUS
over 11 years ago
50 days until
#RareDiseaseDay
2015! Be heard, tell your story. http://t.co/flcZVS3rXt
#HandprintsAcrossAmerica
Alstrom Syndrome Int
@AlstromInternat
over 11 years ago
The results are in! YOU DID IT!!!! You helped Alstrom Angels win $10,000! http://t.co/yf1qvn9pzf Congratulations
@AlstromAngels
Alstrom Syndrome Int
@AlstromInternat
over 11 years ago
Amazon donates to Alstrom Syndrome International when you shop @AmazonSmile. http://t.co/k3ff2M4efT
#YouShopAmazonGives
AlstromInternat
retweeted
Rare Disease Day
@rarediseaseday
over 11 years ago
100 days until Rare Disease Day - the website for
#RareDisease
Day 2015 launched today! Add your events now! http://t.co/aPY7HWqU8F
AlstromInternat
retweeted
Cassie Johnston
@CassieJohnstonJ
over 11 years ago
Are we part of your morning routine yet?? Get coffee...VOTE AGAIN!
#constantcontact
http://t.co/03p9BHT6iT
Alstrom Syndrome Int
@AlstromInternat
over 11 years ago
@AlstromInternat
#DFGEntry
AlstromInternat
retweeted
CENA Project
@CENAProject
almost 12 years ago
CENAs disease advocacy partners:
@AlstromInternat
@AXYSinfo
@jsrdf
@pxe
@NGF_Gaucher @HFIconnect
@IBCResearch
@DCOutreachInc
@MLDfoundation
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