Julia Alton

[AVROBIO @avrobio]

My name is Julia Alton, Executive Director of @CdnFabry, and I’m taking over the AVROBIO Twitter account today to celebrate and bring awareness to #FabryAwarenessMonth!

[Canadian Fabry Assoc @CdnFabry]

To our Fabry Health Care Professionals:
Just like all of us, you have good days and hard days, but one thing stays consistent - you continue to be there for all of us. Thank you for fighting for Fabry and your dedication to make our days better through this time, and always.

[CRISPR News 🧬 @CRISPR_News]

First U.S. Patients Treated With CRISPR As Human Gene-Editing Trials Get Underway https://t.co/ubqGJgOHnu

[Julia Alton @AltonJulia]

Rare Disease Day photo collage!

[Canadian Fabry Assoc @CdnFabry]

2019 Rare Disease Day photo collage. The message of “Be Rare Be You” reached 16 Countries and was worn by 1000’s. Look forward to the mountains we will move in 2020. #rarediseaseday2019 #fabry #berarebeyou #strongertogether #rareiseverywhere

[John Tory @JohnTory]

Today is International Rare Disease Day which gives us the chance to raise awareness for people suffering from rare diseases. Read my proclamation on Rare Disease Day here: #RareDiseaseDay #ShowYourRare

[John Tory @JohnTory]

The International Rare Disease Day Flag will be raised over City Hall today to help bring awareness to rare diseases and to show our support to all Canadians suffering with a rare disease. #RareDiseaseDay #ShowYourRare

[John Tory @JohnTory]

The Toronto sign will also be lit in blue today to help raise awareness for International Rare Disease Day. #RareDiseaseDay #ShowYourRare

[Julia Alton @AltonJulia]

Rare Disease Day 2019 - what makes you Rare? #BeRareBeYou #StrongerTogether #rarediseases #Fabry

[Canadian Fabry Assoc @CdnFabry]

We are #StrongerTogether. #BeRareBeYou

[Julia Alton @AltonJulia]

1/12 Canadians are affected by a #raredisease. Wear this tattoo on #RareDiseaseDay (Feb. 28th) to show that we are all rare in our own way. Help spread the message of #empowerment. Order your tattoo @www.fabrycanada.com for $5.00 - all proceeds go to the @CdnFabry #berarebeyou

[Rare is Everywhere @RareEverywhere]

Ultra-rare black leopard photographed for first time in 100 YEARS in Africa - Rare really is everywhere! The leopard has the same genetic variation as the black jaguar in the book- melanism! Pics & video here:
https://t.co/1AypPJpIfF

[Canadian Fabry Assoc @CdnFabry]

This year for @rarediseaseday the #cntower will be lit up in the #raredisease colours bringing #awareness to all those living with #RareDiseases

[Canadian Fabry Assoc @CdnFabry]

Incredible #brewery supporting all those living with #RareDiseases - thank you @DawsonTrail for participating in the #BeRareBeYou campaign - they are ready for @Rare Disease Day- Feb. 28th - get your tattoos @ https://t.co/tenis3focv #StrongerTogether #localsupport

[Canadian Fabry Assoc @CdnFabry]

Pleasure meeting with @PattyHajdu Minister of Workforce Development & Labour who is supporting our #BeRareBeYou Campaign. Patty and her team are spreading #awareness and #empowerment to all those living with #rarediseases #fabrydisease #strongertogether #whatmakesyourare

[Julia Alton @AltonJulia]

From pain to empowerment with Fabry disease - https://t.co/AvuTXTmefu https://t.co/7jovWZmrL5

[Canadian Fabry Assoc @CdnFabry]

#RareDiseaseDay is right around the corner - celebrate Feb.28th wearing a #berarebeyou tattoo and help spread #awareness for all those living with #rarediseases get your tattoo @ https://t.co/tenis3focv

[Rare is Everywhere @RareEverywhere]

Zeal Access did a very nice write-up today about Rare Is Everywhere- including helping me launch the new Teacher’s Toolkit today, which I am making available for FREE 🙂 to support the use of Rare Is Everywhere in the classroom to teach about diversity!

https://t.co/2fqOD2lWIP

[Canadian Fabry Assoc @CdnFabry]

SK/MB # Fabry #patients come together today to hear about #genetherapy, #genetics, #naturopathic tips, and how to take control of your life. #empowerment #education

[Canadian Fabry Assoc @CdnFabry]

Board members sharing their uniqueness by sporting their #berarebeyou tattoos at the Nova Scotia Patient Empowerment Meeting #PatientExperience #community #Advocacy #raredisease #Fabrydisease

[Horizon @HorizonNews]

Shout out to @GlobalGenes for another impactful RARE Patient Advocacy Summit. Our team enjoyed spending time with old & new friends in the #raredisease community, and was amazed by the number of #RAREis signs we created together w/ messages of strength & hope. #2018GGSummit

[Strangers Project @StrangersProj]

That’s a wrap! Thanks @GlobalGenes and @AbeonaBio for this incredible opportunity. My heart is so full from all the stories from this amazing community at the #2018GGSummit.