Top Tweets for #BeRareBeYou
Honored to have our FAV AVES cheering us on! #weloveyou #wewearpurpleforVillani #berarebeyou @shsaviators @AvesAthletics @SycamoreSchools @shsvillanit
Take part in revolutionizing patient care around the world! #JointheGRITStudy. https://t.co/5IQ05V6vdd
#raredisease #rarediseaseawareness #rarediseaseadvocate #rarediseasejourney #berarebeyou #rareasone #myraredisease #chronicillness #geneticdisorder #raremetabolicdisorder
Do you know that there are novel ways of managing your symptoms, medication, and overall health? Talk to us to learn more! https://t.co/5IQ05V6vdd
#raredisease #rarediseasejourney #berarebeyou
#clinicalresearch #medicalclinic #yyc #canada #northamerica #mhealth #ehealth
You don’t have to have a rare disease to be rare, we are all rare in our own way. Ask yourself today, “what makes me rare?” Embrace it! #CFA #berarebeyou #fabry https://t.co/HUOHCVw7RH
Dr. Khan’s team at the MAGIC clinic wearing their new CFA masks #stayhealthy #staysafe #CFA #masks #covid19 #berarebeyou #strongertogether #whatsyoursilverlining? https://t.co/qrfmc88eMM
Couldn't be prouder of the community I am a part of, Thank you to everyone out there for all the support you provide. #ThankYou #BeRareBeYou
https://t.co/9sEt4YsQ0N
To our Fabry Health Care Professionals:
Just like all of us, you have good days and hard days, but one thing stays consistent - you continue to be there for all of us. Thank you for fighting for Fabry and your dedication to make our days better through this time, and always.
Julia Alton, executive director of @CdnFabry and her mother, Donna Strauss, vice president of @CdnFabry, spoke to AVROBIO about their experience with Fabry disease and their mission. Thank you, Julia and Donna! #FabryAwareness #BeRareBeYou
AVROBIO joins the rare disease community by recognizing Fabry Awareness Month throughout the month of April. #Fabry #FabryAwareness #BeRareBeYou @CdnFabry @AustraliaFabry
Happy Rare Disease Day 2020! Thank you to Dr. Khan for holding and inspiring event in Calgary. #CFA #BeRareBeYou
This week AVROBIO acknowledged #RareDiseaseDay with "Cinema Rare," screening a few short films from DISORDER: The Rare Disease Film Festival, which depict the challenges and triumphs of the rare community. #BeRareBeYou
We're sporting our #BeRareBeYou tattoos in support of the @CdnFabry and @FabryAustralia for #RareDiseaseDay!
#Repost lakeheadreslife with make_repost
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#BeRareBeYou #RareDiseaseDay
Today is Rare Disease Day. Rare Disease Day happens on the last day of February to raise awareness for rare diseases and improve access to… https://t.co/4NPv1Mn2tl
On this leap year's #RareDiseaseDay thinking about all families dealing with their individually rare diseases, that are collectively common. Most affect children and very few have specific therapies. Rare disease is a public health issue. #BeRareBeYou #WeDealWithRare
NEW on website today https://t.co/qiMWW1NDYw Unique contemporary design necklace. Great for both business and casual wear. #berarebeyou @Bitethebiscuit @BusyTweeters #wearingirish
ungallicollective is ready for Rare Disease Day: Feb. 29th with their Be Rare Be You tattoos. Grab yours today at https://t.co/tenis3wZB5 and embrace what makes you rare! #berarebeyou #empower #rdd2020 #rarediseaseday @… https://t.co/nlgVZpTGvW
Abstract design Contemporary earrings. Treat yourself with this pair available on our Studio Sale https://t.co/aN4ySV9L29 completely unique, just like you! #wearingirish #berarebeyou
I had such a wonderful time being a part of the Canadian Fabry Association #Patient #Empowerment workshop here in Vancouver. The sweatshirts at the workshop can be preordered for anyone who is interested. #BeRareBeYou
Only one week until the @CdnFabry Patient Empowerment Workshop in #Vancouver, BC! @DrSeemaKanwal @AltonJulia #RareDisease #BeRareBeYou https://t.co/ga1TYlKLyH
Thank you Canadian Association of Pompe for inviting me to speak. #toronto #canadianfabryassociation #berarebeyou @pompecanada
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